Women who don't have BRCA mutations could have other high-risk genes that affect treatment choices
by SharonP on Mon Oct 05, 2009 12:00 AM
by VINEYARD on Thu Oct 08, 2009 12:00 AM
On 10/5/2009 SharonP wrote:Hi everyone,Three months ago I was diagnosed with stage 3 melanoma. It had spread from a melanoma I had removed in Aug 2007 to the lymph nodes in my neck in June 2009. I was 38 weeks pregnant when I found out about the recurrence. After the baby was born I had a radical neck dissection to remove 38 lymph nodes (2 had cancer in them, one of the nodes was large, with extra capsular spread). I have also had 4 weeks of daily radiation, which just finished two weeks ago.My prognosis is still fairly poor, and as a mother of a 3 month old and a four year old, I really want to do everything I can to survive. I have read about B17 and treatment offered in Mexico at the Oasis Hospital for Hope and SPDT treatment offered in China. Does anyone have any experience with these treatments (good or bad) or any other forms of treatment that work well against melanoma? I have also been told that the recurrence was probably due to the pregnancy, which creates an environment in the body that cancer can flourish under, and that breast-feeding provides the same sort of environment and so I should stop breast feeding because it puts me at far greater risk of further metasteses. Does any one have any advice in this regard. I am posting from Australia, but I am willing to consider treatments anywhere if they are getting good results for other melanoma patients. Thanks for taking the time to read this. Sharon
First let me congratulate you on your baby. So sorry to hear about the recurrence. I just read about a clinical trial using Plaxxikon. It is in todays Cancer Care info. Don't know if it would be beneficial to you but you may want to look into it. Also have heard about a new vaccine. I have had a melanoma tumor removed from my thigh and it had spread to the Sentinal Lymph node so I had 10 nodes removed. That was in March of 2008. So far my scans are clean. There is always hope. Research as much as you can. See who is the top Melanoma specialist in your country. I was treated at Memorial Sloan Kettering in New York City and found them to be wonderful. Good luck to you.
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