Neuropathy Cause by Chemo

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JJSS1 Message: RE: Neuropathy Caregiver JJSS1 Recommend this Message Report Abuse Email a Friend Track this Message [Remove] Subject: RE: Neuropathy Date: 10/26/2007 My husband has had 6 rounds of chemo (FOLFOX); his neuropathy began almost immediately. It no longer goes away for any period of time and he's feeling discouraged by his inability to play football with the kids or golf or type or handle food from the fridge......He's only 37 and he is fearful that this may never subside. I plan to ask the doctor about Lyrica or Neurontin. Have you heard of these? Private Reply Quote Reply to This Message Donarae Message: RE: Neuropathy Patient Donarae (1) Member recommended this message Recommend this Message Report Abuse Email a Friend Track this Message [Remove] Subject: RE: Neuropathy Date: 11/04/2007 I finished chemotherapy(for colon cancer using ox platinum) in June of this year--- my neuropathy began 2 weeks when my chemo ended. I had the usual neuropathy during chemo(adverse reaction to cold etc.) but nothing like what i have now....complete numbness in hands and feet...everyone says it is temporary--i began to doubt it...so i went to a neurologist at USC Dr. Engel, he gave me an EMG a muscle biopsy(didnt hurt) and a spinal tap, all in one day(last week tuesday) I will get my results back in a few weeks, he says if he sees anything he can treat it with IVIG but if it is stictly chemo based neuropathy....well we all know the story....i will let everyone know what happens....and yes it is hard to type.. donarae Private Reply Quote Reply to This Message kamkrs Message: RE: Neuropathy Cause by Chemo Caregiver kamkrs Recommend this Message Report Abuse Email a Friend Track this Message [Remove] Subject: RE: Neuropathy Cause by Chemo Date: 11/07/2007 Try lyrcia seems to work.. Private Reply Quote Reply to This Message angela759 Message: RE: Neuropathy Patient angela759 Recommend this Message Report Abuse Email a Friend Track this Message [Remove] Subject: RE: Neuropathy Date: 11/07/2007 Hi, Yup! got neuropthy, too. Started after 1st treatment and, initially, went away after a day or 2. Now I am in 9th treatment out of 12 FOLFOX4. The neuropathy has increased and is not going away. Am also getting more of side effects from the Oxaliplatinum Yu-uk!! Most bothersome is loss of balance which started around #7. It is all new to me, too.Everybody reacts differently. But after doing research AND asking my Onc. and chemo nurses, I hear it may "peak" fo a month or 2 after treatment ends, then slowly subside over the course of the next 6-12 months. Re. neuropathy. I am an artist and VERY concerned abouy my fine-motor skills. I have been doing a lot of work during and between chemo sessions (wire wrapping and glass cutting/fusing) in an effort to keep the nerve endings in my fingers stimulated. The Oncologist stopped in today while I was in infusion center getting chemo. He saw me working and said to keep at it and continue even AFTER chemo ends as this will help! Of course, since the jewelry making is also a business for me, I intended to do so. But it was good to have the doc confirm my instincts. Perhaps your husband might take up drawing, clay or wood model-building, or repairing small items etc... Private Reply Quote Reply to This Message joca2002 Message: RE: Neuropathy Survivor joca2002 Recommend this Message Report Abuse Email a Friend Track this Message [Remove] Subject: RE: Neuropathy Date: 02/08/2008 On 7/13/2006 Johannah15 wrote: My dad had surgery for rectal CA and the tumor was a T2-Stage III tumor. He just got his port and will start chemo (FOLFOX) on Monday. My concern for my dad is the neuropathy. He is a bartender and was planning on working throughout his treatments, but when they gave him the gloves that he would need to wear anytime he needed to go into the refrigerator, he was shocked. He did not realize that the neuropathy would be that dangerous for him. He is worried that he will not be able to grab cold beers from cooler chest or make chilled drinks for his customers. They say for the 7 days after your treatment that you have the sensitivity to cold. How soon does this start happening? Right after your very first treatment? Should he consider not being able to work because of the neuropathy? He also golfs and they told him that he could not be in the sun for long periods of time and that 18 holes would be out of the question. They have told him that all of this is only for the next 6 months, but it sounds like it will affect him longer than that. He is 64 yr old and unfortunately did not plan well for the future and he and my mom both still work and rely on their incomes to live. I read about the Glutamine, B-complex and B12 suggest. Any other ideas to help with this matter. We would also be glad to hear about things he should be aware of or things that he could do to make it more comfortable during this time. Thanks for helping. Please tell your Dad to listen to his doctor about the cold sensitivity!! I did not listen and started drinking cold drinks and touching colder things even when I knew I shouldnt. I ended up with a bad case of peripheral neuropathy which I think I made worse by not staying away from cold items. Tell him not to touch or drink anything cold no matter how bad it gets! Nothing is as bad as dealing with the neuropathy, trust me on that! Good luck to you and your Dad, I wish you both the best!] John Private Reply Quote Reply to This Message
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