Need Answers ASAP

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Need Answers ASAP

by KGWOO on Thu Oct 15, 2009 12:00 AM

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Hi i'm a 42yr female who has been on gleevac for a year liver dosn't like it & my haemotologist now wants to put me in tasigna should i be worried or ask for another opinion???????????

RE: Need Answers ASAP

by Suzzie59 on Sat Oct 17, 2009 12:00 AM

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Hi:  You said exactly what the problem is.  Your liver does not like Gleevec.  Some people have to change to other treatments.  I know a lot of people who have had to go on Tasigna after Gleevec not working or having it effect other organs.  Tasigna is working very well for a lot of patients.  I always say to be sure that you are seeing a CML Specialist for proper care.

     I was diagnosed with CML in 1998, and was put on the old treatment of Interferon, and it was ruining my liver.  I had to come off of it, and had to wait months before I could get into a clinical trial for Gleevec.  There was nothing else available for me at that time.  Anyone being diagnosed now, has options with different treatments, and they are fortunate.

 

RE: Need Answers ASAP

by KGWOO on Sun Oct 18, 2009 12:00 AM

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Hi suzzie59 thanks for that am just finding my feet in this new world of cml & drugs. Was diagnoised july 2008 & did initially respond fantastic to gleevac lost weight & havn't had many side effects so am a bit disappointed that my liver is not co-operating when everything else has been gr8.Chin up & onwards not at full steam just a little slower.................  
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