On 10/15/2009
Jo Anne golfer wrote:
Help,
I will not bore you with all i have been through with my metastastic small cell lung cancer. I have taken Alimta for about a year. I am having some side affects that my Oncology Doctor says are not caused by the Alimta, but other docotrs say they are finding are side effects and may get worse. They are limiting me getting exercise and going out of the house. It seems like it is a different set of problems every couple of trreatments. I live for those good days every 21 days and I am not getting them the last couple of months. My cancer is very stable at this point. It is just the side effects. Terrible bile taste in my mouth 7/24 and trouble with my equaliberium. Any help would be appreciated.
Thanks and God Bless,
Jo
Sorry to hear about troubles. Nice to hear you've had a good year of control with the Alimta. I'd heard that sucking on something like sugarless candy helps and it helps me with that metalic/bile taste, although you can't eat candy all day. I tell people it seems like a rat died in my insides. I've heard of several people who had some hair loss/thinning, including me, on Tarceva, but it is not listed as a side effect. My hair started growing back in curly underneath the straight after I finished with Tarceva and started on Carboplatin plus Alimta. We wouldn't be bored with anything you want to say about this journey.