CEA Reports

My husband just had another Cat Scan done friday will find out results this tuesday , he has his regular Monday chemo treatment .  I sat down friday at the Dr. office and said ok, this Exbutux, (forgive spelling )  is pretty hard chemo he lost all his hair we have every cream lotion script's for the itching his legs and arms look, better then they have been, they said maybe we give him a week off , but husband said no will see how this one works out this treatment is the long hard one,  I said you should take a break from this, maybe next treatment I don't make him do anything but try to advise him on treatment.  This man was such a good looking man and now the Dr. said Oh I bet you hate us after all were doing to you, we looked at her and everyone else and said of course not if it is helping this what we care about.   Hair grows back,  his CEA Levels are going down 6.9 at last check,  now I said to her we were told not to get hung up on CEA levels, their good if they go down but his overall feeling CT scans Pet

Scans and general health is what they take into how he is doing,   Is he eating well is his liver swollen any pain so on and so on.  Well I have notice a change is eating but I don't let him get away with much so I make him eat at least 3 good times a day, small big little what ever he has to eat something to fight this  cancer,  And I will say if he wants a small dish of Ice Cream he gets it, I know the sugar thing and all but he been through so much if it makes him happy he gonna get it. so he does.  well I hope this help that one lady that wanted to know about CEA  Another thing I notice after these last treatments he been kinda of nasty when he got home ok, I know he going through alot but don't give him a free pass , I put his little EXbutux self in proper place your sick we both know and this is not easy on you but I am here for you every step of the way but you just count to 10 before that southern  sweet talking takes off .we can get through this together.  It has been a journey for sure but got to fight it every day not each other,  so were still on the path together and happy that were still here to go down that path, prayer has help me and we do try to laugh when things get out of control he is always looking for that darn hat he calls his wig.  Take care pray for everyone on this site.

 

 

 

 HI,

 Thank you for your post,  This  journey is a really tough one and only those who walk it with cancer and caregivers understand how hard it really is. Standing together and pushing on and taking one day at a time, and knowing  that each day is precious and never to be taken for granted.

 Prayer does help a lot and also eating habits,  some ice cream is deff ok and treats are good.

Laughing helps a lot  Keep going .. no surrender and  You are right pray for every one on this site and also other cancer sites, do you know  the cancer site .....cancer forum.. its as good as site as this one with  great people on it ..

     God Bless you Both ... keep going ...

When I was on Erbitux, the first few treatments were the worst ... as the chemo cycle went on I had less and less severe postule outbreaks.

Here is a helpful site regarding chemotherapy, including managing the side effects:

http://chemocare.com/bio/erbitux.asp

The first thing recommended is to drink three to four quarts of fluid every 24 hours. Second wash hands often. Third rinse your mouth with baking soda & water solution.

This will help to reduce the postules and ease constipation which is another unpleasant side effect of Erbitux.

All of the chemo drugs are at this website, not just Erbitux. I have found some very helpful suggestions there.

 

 

On 10/20/2009 Karenb wrote:

When I was on Erbitux, the first few treatments were the worst ... as the chemo cycle went on I had less and less severe postule outbreaks.

Here is a helpful site regarding chemotherapy, including managing the side effects:

http://chemocare.com/bio/erbitux.asp

The first thing recommended is to drink three to four quarts of fluid every 24 hours. Second wash hands often. Third rinse your mouth with baking soda & water solution.

This will help to reduce the postules and ease constipation which is another unpleasant side effect of Erbitux.

All of the chemo drugs are at this website, not just Erbitux. I have found some very helpful suggestions there.

 

 

Thank you for your info, any helpful info is a blessing , when going through this at times I feel like it can be a hit and miss  road at times, I have learned alot from all the posts, and my Dr. sometimes look's shocked at some of the questions I come up with she said you sure are on top of things and I'm happy to see you and Mr. D. so proactive with his care.   They were so sure my husband would not follow  the treatments and might not show up for the Chemo at first.  He has not missed one treatment, and he has done very little complaining , so we all are proud of him,  Bless you , take care.

I am taking Minocycline 2x day and it helps with the acne rash. Also Hydrocortizone (works best for me after I wash my face before bed) the Clindomyocine cream is pretty drying and the Triamcynalone works good after showering. I also use jojoba oil after my shower - don't dry off just massage it in and let it soak in for a while before getting dressed. I only shower every other day and using the oil and Triamcynalone cream seems to control the itching on my body. My face seems to respond best with just the Hydrocortizone though.

I also just had a treatment for the 13 liver metastisis I had. Y90 treatment - I am feeling much relief and regaining appetite and feeling no pain. Ask your oncologist about it. I had my treatment done at University of Washington but I know UCSD has the best program in the US (Dr. Rose)