Sorry to hear your news, but I'm encouraged that you're 6 years in your fight. I take care of my father-in-law who was just diagnosed in Aug. His prognosis is not good because the cancer is in his brain, lungs, spine, kidneys, lymph nodes......etc. He is receiving palliative care.
He started Afinitor 11 days ago and is not eating anything solid. Lots of diarrhea and nausea. I've been looking for anyone who is on this drug to see what's coming next. He hasn't had a rash. Have you tried Aveeno in your bath? Can't hurt. Maybe your onc can provide a topical cream to help.
Please let us know if the Afinitor is effective for you. I'll be praying that it is! Hang in there!