One patient with glioblastoma still alive nine years later
by Dinod on Tue Jan 17, 2006 12:00 AM
by Anewdawn on Tue Jan 17, 2006 12:00 AM
by Novice on Sun Feb 05, 2006 12:00 AM
by Beasely on Mon Mar 20, 2006 12:00 AM
by Fredca on Thu Jun 01, 2006 12:00 AM
by Defjoeb on Tue Nov 07, 2006 12:00 AM
by Joycek on Mon Mar 05, 2007 12:00 AM
Beasely, hope you are feeling better. After reading your posting, I realized it was similar to what I am going thru. My symptons started in Sept of 2005. I would get this pain in my throat, so bad that I broke into a cold sweat, and felt like passing out. My white blood cell count was rising steadily. I started with my GP, sending me to an ENT. He scoped into my throat and took a biopsy of the mass. It turned out to be lingual tonsil tissue. Month after month I went back, he scoped my throat, no changes. He tested me for allergies, nothing significant. He recommended that I have them removed, and he set me up with an oral surgeon. I went for a second opinion before doing this. At the office of the second ENT, he never even looked in my throat, referred me to a neurologist. He did MRI and CT, this showed nothing neurological causing the pain in my throat. The tests did however show enlarged lymph nodes, generalized. (neck, armpit, chest, abdomen). So from there I went to an oncologist. He cannot figure out what is wrong with me. So many blood tests, so many office visits, I even had a bone marrow aspiration. I am so tired of going to doctors and explaining this senario. My GP told me not to give up, keep bugging the doctors until they find out what is wrong. This week I have an appointment with a surgeon for biopsy of lymph node in my armpit, only because that is the easiest to get to. And I have an appointment with a ENT that specializes in removal of lingual tonsils. It really scares me with the lymphoma issue. (My onconogist did mention that it could be early lymphoma).
by Beasely on Thu Mar 08, 2007 12:00 AM
I am very happy to see that a message I wrote a year ago is still doing some good. It is great that you are taking responsibility for your own health and making the doctors get to the bottom of your problem. Yes, I get tired of going to this doctor and that doctor, but I want to continue life for my family. Please let me know what they diagnose with your axillary node biopsy. Hang in there and keep pushing. There are fast growing lymphomss and slow growing lymphomas. I had a combination of both.
by AlwayHopeful on Mon Sep 24, 2007 12:00 AM
On 11/7/2006 Defjoeb wrote:I know this is an old post and whatever was going on has probably been addressed by now but if somebody is reading this and has the same question, all I can say is get it checked and rechecked. I had a slightly enlarged right tonsil that my primary care doctor didn't even notice. No sore throat or any discomfort. An ENT thought it might be an infection but when it didn't respond to antibiotics after 2 weeks they decided to take my tonsils out. It turned out to be Squamous Cell Carcinoma that had spread to 4 lymph nodes in my neck (Stage IV). It's been a year and 3 days since I was diagnosed. I've been through radiation and chemo and am doing fine now. If I hadn't been persistent it would be a completely different story. One little tip; when I first noticed the enlargement my wife told me to touch my tonsil. She said if it was soft it was probably OK but if it was hard it was bad. It was hard. I told this to my Oncologists and they said that she was probably right.
I have a quick question for you concerning your diagnosis, did any of the doctors who you saw prior to being diagnosed tell you that your lymph nodes are swollen? I ask because I am going through something eerily similar to the symptoms and 'treatments' tht you went through previously and all the doctors keep telling me that the lymph nodes in my neck are okay. any thoughts? anyhting would be helpful at this point.
by kataranja on Wed Oct 24, 2007 12:00 AM
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