Alternative treatment in Germany for GBM [stage 4]

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Alternative treatment in Germany for GBM [stage 4]

by gehleb on Thu Oct 29, 2009 08:01 PM

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My brother got diagnosed with a GBM tumor [right frontal] stage 4 two weeks ago. They removed the tumor completly, [so far they can see it]. He is living in Bonn Germany and I live in Seattle. I was wondering if I can get some advice on naturalpath treatments. He will receive radiation and chemothearapy.

I also do not know how often I should travel to Germany. I just came back from Bonn, I was able to help out my brother's family  for a week to deal with the horrible news. My brother has a wife [nurse] and daughter [15 years old]

I am very close to my brother and I do want to help as much as possible.

 

Any advice is appreciated.

Thank you,

Bettina

RE: Alternative treatment in Germany for GBM [stage 4]

by heart_and_soul on Thu Oct 29, 2009 09:41 PM

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Betttina, so sorry about your brother! It's wonderful that you were there to help. How often to go back? Well, I'd plan on going in about 6-8 weeks, if not sooner. Then he will have finished the radiation and will be in waiting mode before the next MRI that can tell him how he's doing. It is ALL difficult, so having positive kind patient people around is really the best.

Regarding alternative treatments, you could check the Mayo clinic site. http://www.mayoclinic.com/health/brain-tumor/DS00281/DSECTIO think they have quite a lot of info. I don't know of any alternative treatments that cure the cancer of GBM but they can support his strength and immune system. Also look into the BUDWIG diet. http://www.healingcancernaturally.com/budwig_protocol_ii.htm

I have heard people say it helps. We tried to eliminate sugar and refined carbohydrates and stay with organic meats and vegetables, but I don't think this is a cure... just a feeling that we do whatever we can to know we tried.

For supplements, my son has taken fish oil, maitake mushrooms, green tea, curcumin, lycopene, propolis, flax oil, and resveratrol, among other things. It is advised that your brother check with his oncologist about compatibility with chemo.

Is he on steroids? Dexamethasone? If so, the goal should be to taper down the dosage to provide comfort but no more than necessary... and keep very slowly tapering. The side effects of the steroids can be a very serious problem.

I hope things go well for him and his family. And that you will find a way to stay in touch. Skype???

All the best,

Sarah

mother of Andy 27, dx gbm/pnet 1/09

RE: Alternative treatment in Germany for GBM [stage 4]

by gehleb on Fri Oct 30, 2009 05:03 PM

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Sarah,

I am sorry for your situation as well. I thank you so much for the web page advice and diet approach what you do.

By the way did you hear aubout the clinic in Houston?

http://www.burzynskiclinic.com/ .

I believe that they have a complex approach regarding GBM treatment.

Also I have found research about Ben Williams who was diagnosed with GBM in 1995 and he is still a life. He also wrote a book: Surviving terminal Cancer. You can buy it over Amanzon.com

 

Here are two documents from him:

http://virtualtrials.com/pdf/williams2007.pdf

http://virtualtrials.com/pdf/williamssupplements2009.pdf

 

Also, I was sondering if you are doing any support groups for dealing with this horrible desease. I think my brother family need some proffessional support and I guess me too.

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