Leiomyosarcoma

My husband was diagnoised with leiomyosarcoma in April of this year.  He is currently in denial.  A nodule in his leg was removed, and a biopsy was done, and after two opinions from the lab reports, both confirmed it was leiomyosarcoma.  After a CT scan in May, they also found a mass on his adrenal gland, and will be going to see his cancer doctor, November 3rd.  In addition, he has just been diagnoised with diabetes, and metabollic syndrome, from his primary doctor. 

At this point, I just need some information on this cancer, and anyone out there who has it, and may have gone through a period of denial.  I don't even mention the word cancer, and my husband gets very upset, stating that they got everything when they took out the nodule.  The fact is, the nodule on his leg, that was removed was found to be malignant. 

THanks, in advance for any support.

Mustangsally

My husband has been diagnosed with retroperitoneal liposarcoma.  He is being treated at Sloan Kettering in NY and getting ready for another surgery on the 16th.  They do have many sarcoma specialist there......I don't know where you live, but people comes from all over the states to get treatment there. I search the internet day and nite about my husband's cancer which friends tell me not to do.  While much of it is disheartening, I have informed myself of so much which has helped me to understand more when we meet with the surgeon, etc.

Please write back if you would like more info or just need to talk.

Sue

I agree with Sue. Even though it can be scary and disheartening to learn about sarcomas in general, having knowledge means that you will be able to advocate for your husband. The more you know, the less you'll feel overwhelmed and the more you'll be able to press his doctors for the right treatment. I've dealt with doctors who have had all kinds of opinions regarding my wife's sarcoma. Thanks to my sudden knowledge of this disease, I know what to say (and demand of) whom. My wife prefers to let the doctors take care of her and tell her what she needs to know. In the background, I am the one telling the doctors. I wish you and your husband my best.