Good news, I got clean Pet scan

Yeahhhhhh!!!!!! I received my recent pet scan report. It was beautiful!!!! It said this whole body pet scan demontrated no abnormality. That means I have a clean pet scan.

My eyes get wet. Only patients cancer stage IV had been through the same paths like me understand.  I had been dealing life and death issue everyday for the past two years. I was dx colon cancer recurrance to lung as stage IV in 9/2007. I had been through Folfox, Folfiri + avastin, I suffer all the side effects, lost all hair but they both worked little bit then stop working. I had a lung surgery in 9/2008 to remove a 4cm tumor. After surgery I have even more little spots appeared in both lungs. Drs. of MD Andersion pronunced that I was incureable. I was sent  home to do more chemo just to extend my life. This time I take Erbitux+ 5 fu.

I used to be a good patient, listen to whatever Dr and Onc said. They told me don't take anything, not even supplements. This time I guess I am dying, it doesn't matter to try somethings else. I google alternative treatment. I found budwig Flaxseed oil treatment. I took 3 tbs flaxseed oil+ 4 tbs cottage cheese + lots of berries ( strawberry, blue ot black berry) 4 times a week. I also took advice from Tre and Shemay, friends from this forum,  lots of supplement, like Vit D, E, B6, B12, Selenium 200mg, magmesium, calcium, asprin and Omega 3 every other day.    Oh.. yes.. cut down sugar, less rice, cake, bread, and all carbonhydrate stuff. more fruits and vegetables. For the past 9 months, I feel I have more energy, I can take a longer walk and do yoga. My many nodules getting lesser. I still have 1cm in right lung and 2 8-mm nodules in left lung. I  thought to have RFA to remove them. Now ...Hurrah I am not going to do RFA. The cancer cells are not active. I need to celebrate....... Cheer!!!!!

I can only imagine the rollercoaster ride you have been on.   With this good news, I am sure you want to shout it out loud for everyone to hear.  It just goes to show that even the doctors don't really know the future of their patients.  Everyone's treatment will affect them differently.  Keep taking care of yourself and stay active.  I wish you the best in keeping this out of your body for good!!

This is the great news that we all really want to hear. I'm so glad for you, Mimi7.

Are you still taking chemo? Are you taking all these supplements and asprin you mentioned here while you are doing chemo for these 9 months? My husband is still fighting his recurrent rectal cancer. He is undertaking chemo with Folfilri+Avstin right now. I'm concerning if the supplements will interrupts the chemo.

Another question is you said "I took 3 tbs flaxseed oil+ 4 tbs cottage cheese + lots of berries ( strawberry, blue ot black berry) 4 times a week." Is it 4 times a week or 4 times a day here?

Thanks,

Lucy

That is awesome news!! I cried reading it because I am dealing with a recurrance after thinking I was cured. I am also doing the budwig diet along with supplements and my CEA has dropped from 23 down to 3.9 after just three treatments. I have two more treatments before a CT scan. Then they will determine what to do next. Either RFA (if enough of the spots have gone away) or liver directed therapy. At any rate, it's nice to hear that you are doing well. It reaffirms everything I am doing! Keep going strong!!!!

So happy for you and your news,, horray ..celebrate each day you live and Give God Praise  for your life..

  Best Wishes....Rob

To Lucy, yes, I took all these supplements , asprin and Bidwig diet with chemo in the past 9 months. Before that I did not take any because My Dr. said no. However my first two lines of chemo folfox and folfiri+ Avastin work very little. So I was given Erbitux + 5 fu for 4 month , Erbitux only for 3 mon, then Erbitux + Xeloda. Erbitux is not quite a chemo. It is kinda antibiotic. SO I don't need to worry the interruption of chemo.

 I am not sure which one should credit more. I did feel better and more active after I take Bidwig Diet and all those supplements. I take 3tbs of Flax oil, 1 tbs ground flax seed mixed with 4 tbs cottage cheese. then top with lots of fruit and berries for breakfast 4 times a week. Suppose to eat everyday but I like to eat some oatsmeal, or cereals sometimes. Also suppose 6 tbs of cottage cheese, I took only 4 tbs because I don't like cottage cheese that much. People told me should eat 4 times a day but I cannot stand it. I need to eat somthings else to balance nutrition, or I will be too full.

My cea is 1.5 now. I like to keep up this way all time. I plan to keep on the Budwig diet and all good supplements. May be I need to drop the Erbitux but keep xeloda for maintanence.

God is good, all the times. May all of you who suffer cancer beast get a clean Ct or Pet scan report soon.

Mimi

Hi Mimi, congratulations on your scan and CEA result!

Did I get it right, you changed your diet at the same time when you started on Erbitux? Please do not dismiss the effect of Erbitux together with chemo either! Erbitux together with Camptosar and Xeloda has been very efficient for my husband since last spring after Avastin + Xeloda alone did not keep the cancer under control. Erbitux is not an antibiotic but a new generation cancer medication, a monoclonal antibody, like Avastin. They target the cancer cells in a more accurate manner than chemotherapy, and together with chemo they have done miracles for many patients of metastatic colorectal cancers.

All the best, Mousey

Great News God Bless.

Karen

Hi Mousey,  thank you to clarify the Erbitux is not antibiotic but antibody. Yes, I should thank Erbitux+ 5 fu or + xeloda. I wonder if this new generation cancer drug is so good, why not put it in the first line and give the new patient a test on KRASS Mutation to see if it fit. I wasted a year doing the Folfox and Folfiri, suffered all the side effects, lost all hair and only found out it did not work. My fingers, toes,  and shoulder still numbed with funny feeling.

 I did not take any supplement or did any special in my first year chemo since the dr. said no. I felt very weak, tired and busy to deal with diaherea and volmit all the times. I asked my Onc should I don't take sugar, red meat or anything. He said eat anything you like, doesn't matter.  In later years, the more I research, the longer I stay on cancer forum, the more I found that my Onc is not always right. I start to take more supplements, change my diet, get use the bidwig diet, and cut down sugar, then I felt much better, I have more energy and bear no more diaherea. My bowl movement is getting regular. That is a big relieve though.

My Onc now wants me to keep on erbitux + Xeloda. He said it is standard to do erbitux for a year, even we know the cancer cells are not active. I'm kinda worry to lose my insurance. I saw the bills, a dose of erbitux is over $3450 and two weeks supply of Xeloda is $2700. Who is making big money on cancer disease?

How long is your husband taking Erbitux? How is he doing now.? Is he in remission? Please share with us his experience.

Thanks

Mimi

I

Hi Mimi, Thanks for your replying. Keep up the good work and keep fighting. I hope you don't mind I ask more questions. What brand of the supplements do you take? Do you take Vit C as well? Do you take high dose of supplements or just standard dose? What dosage of xeloda are you on (like how many dosage per lb of a person's weight)? When my husband finished his second line chemo this past April, I was thining of xeloda. But his doctor seemed not like it. He suggested him on Avastin alone. Now he had to do chemo again. I'm trying to gather as much info as I can to see what we should do next step. Thanks a lot. Lucy