drug trials

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drug trials

by irishgirl105 on Tue Nov 03, 2009 01:12 PM

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I'm a stasge IV colon with liver mets.  I went to Duke for a second opinion. They agreed with beginning with the avastin, 5-FU,leucovorin,and oxaliplatin. I may have a spot in a trial.  Has anyone done any of these? I hear they are very time consuming, and we live 3 hours away.

RE: drug trials

by barbrob on Thu Nov 05, 2009 03:17 AM

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 HI , If I was you would  go for it as Avastin is a very good chemo, it attacks cancer cells and leaves good cells alone .

 Also check out on google... Linseed Oil and cancer

 Sugar and cancer.... Tumeric and cancer.... Asparagus and cancer.... also keep off processed foods and not to much red meat.. eat chicken, turkey, tuna, fish,  and plenty of fruit every day.... and veg .... also take a very good Vitimin and   1000mg of VIT C  and Complex B Vitimin as body cannott store vit c or b and we need it every day...

 Eat  mixed nuts  and Brazil nut 1 every day will give you Selenium and it will help fight cancer...

   Hope all this is a help.. God Bless You

  and keep going and do not give in ....

  God Bless You    Best Wishes    ...Rob

RE: drug trials

by mommasue on Thu Nov 05, 2009 06:55 AM

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Yes - I have had those chemos. It sounds like a good strong approach. I too am Stage IV and in treatment for the past 3 years and 9 months. When you are Stage IV I wouldn't dilly dally around. Yes those chemos are time consuming probably several hours. I also just completed a new therapy to the US called Y90 - radioactive beads (SIRT microspheres) that they put into your liver mets directly. I am very encouraged by how well I've been feeling and had a PET scan yesterday and will find out tomorrow how everything went. If they haven't done the genetic testing to see if you are a candidate for Eribitux have them do that as well. Get ready to fight - and survive!

RE: drug trials

by irishgirl105 on Thu Nov 05, 2009 12:59 PM

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Thanks for the encouragement, My first chemo will prob. start next week. I'm really nervous.  Please let me know how your PET can went. The drug trial was in addition to the regular chemo.   Best of luck to you

RE: drug trials

by barbrob on Thu Nov 05, 2009 07:30 PM

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HI.

  Chemo is not nice, but  every one is different in how they handle it, when you are getting chemo visualise the chemo killing the bad  cells. and keep praying ..God created you and knows all about your life, have you got a good support group?  family and friends? as this helps and also a very positive attitude goes along way in recovering also.

 A good diet and a good multi vit helps also. IF you need any help or advise please let us know, My wife battled colon cancer for 8 yrs...so I know  a lot about cancer, chemo and the body...

 Keep going, let us know how you get on ...

God Bless You ...Best Wishes ......Rob

 

 

RE: drug trials

by irishgirl105 on Thu Nov 05, 2009 09:16 PM

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Rob,

Thanks for your kind words.  I do have a great support system.  Husband, 3 kids, 4 sisters, and a brother who had been fighting lung ca for 2 years.  Also I have my 88 year old Mom who shouldn't have to watch 2 of her children go through this.  I brought her to live with me 2 years ago, but now don't think I'll be able to keep her here. My kids are taking it very hard, that is the worse pain I feel watching them.  My husband, and sister are relentless in the fight for  me.  She is on cancer compass also.  She goes by Maryjudy. God knows what He's doing, I just have to wait for the plan.  I guess it could have been worse, I could have died suddenly and not had the time to let the people in my life how important they are to me. Thanks again Rob.

RE: drug trials

by mrready on Fri Nov 06, 2009 03:39 PM

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Irishgirl,

You mentioned that Duke was 3 hours away.  Could you get treated with the same protocol closer to home?  I live in NH and the major cancer centers are all in Boston, but I get my treatment at one of their satellite offices in Southern NH that is less than 5 minutes from my house. 

All of the drugs that you mentioned are standard colon cancer treatments.  What is the clinical trial?  Is it just a different combination or are they adding a new drug?

Jack

RE: drug trials

by irishgirl105 on Fri Nov 06, 2009 08:55 PM

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Jack,

I will be receiving my treatments here, having them at Duke was if I got a slot in the trial, which I didn't. Same combo, just extra ones.  Are you tolerating yours ok? I'm really scared.

Judy

RE: drug trials

by aggiemom on Wed Nov 11, 2009 01:44 AM

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Hello, I had those same drugs beginning in Feb. of 08. They worked well for me for about 10 months. they shrunk the tumors in my liver, but eventually I had to switch to irinotecan  and vectibex. That combo worked well enough to enable me to have a liver resection. Still have 2 tumors they couldn't get but am hanging in there. Will have MRI next week to see if the radiosurgery and chemoembolization worked. Best of luck.

RE: drug trials

by irishgirl105 on Wed Nov 11, 2009 02:01 PM

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Best of luck to you. Ihad my first chemo yesterday. Was in the chair for 8 hours and now have the 5FU pump going. Not too bad yet, but I hear day 3 nad 4 are the worst. Keep me posted on your MRI and progress. The liver Mets are the worse.  My largest of the 6 is baseball size. Praying for that sucker to shrink shrink shrink.

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