MD Anderson Spindle Cell Sarcoma`

Has anyone had any experience at MD anderson  with this. My very good friend has just been told she has this and I am looking for some information- anything. she has been referred to MD Anderson and will hopefully be going soon.

Thank you for any help.

Do you know who her doctor is?

My father was diagnosed with Spindle Cell Sarcoma in July of 2008. He has been treated at MD Anderson for the past year. I can honestly say that I don't feel that he has had the best treatment possible. Had I known then what I know now things may be different. He was diagnosed with a 5cm sarcoma in his right trapizius muscle and we were told that they would take it out and he would have to have chemo after. Then they changed their mind and said lets try to shrink it before surgery with chemo. After two rounds it had grown so then they went straight to radiation. 25 rounds and had excellent results. His last radiation treatment was November 21, 2008 and they had scheduled surgery for Feb. 4, 2009. They ran scans of everything on the 2nd of February then on the third after seeing 3 Dr.s that day the very last doctor said they were stopping surgery it had metastised to the lungs. Put him back on chemo then after 4 rounds said the nodules in the lungs had shrunk and so had the main tumor. So he was put on a break from May 09 till July 09. Has scans again and they were growing. Took 2 more rounds of chemo and had repeated scans. The chemo had done nothing. So to make a long story short they have given him to July 2010. They have told us so many different stories. If I had it to do all over again I would demand they take the tumor out immediately. These tumors are very aggressive and they knew that but I didn't know that then.

I may be out of line, but I would not recommend MD Anderson for any type of cancer.  I was diagnosed with pancreatic cancer in January 2009 and from then until the end of July, MDA just kept doing the same CT's over and over with the same results--NOTHING.  They would not do any other type of tests, no PET, no biopsies, etc.  I have gone to CTCA and that was the best move I have ever made.  I personally believe MDAnderson has a BIG reputation, but they have lost their caring ability.  Run to another cancer center ASAP!

Cathy

Dr. Ludwig is the dr. she has been given. She has not been yet though. She is going right after Thanksgiving. Do you know of him or her?

On Nov 15, 2009 5:56 AM catcando wrote:

I may be out of line, but I would not recommend MD Anderson for any type of cancer.  I was diagnosed with pancreatic cancer in January 2009 and from then until the end of July, MDA just kept doing the same CT's over and over with the same results--NOTHING.  They would not do any other type of tests, no PET, no biopsies, etc.  I have gone to CTCA and that was the best move I have ever made.  I personally believe MDAnderson has a BIG reputation, but they have lost their caring ability.  Run to another cancer center ASAP!

Cathy

Cathy,

I am so happy for you at CTCA. That is wonderful. My dad was diagnosed with PC in Dec 2009 and passed away in March after being at MD Anderson. I liked the people but it was frustrating. I am just thrilled to hear that you like what you decided. I dont know that we would have done anything differently as my Dad was so very weak and we live in San Antonio, Texas.

Do you mind me asking who your dr. was over there? If you dont want to post would you email

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?

I am very big into the research and have looked at CTCA. It looks amazing. I am hoping & praying for complete recovery for you Cathy!

love, Josie

My dad's doctor was Dr. Ludwig and I wouldn't want my dog to see him.