icy feeling running all through the body

has any body with grade 4 astrocytoma(glioblastoma multiforme)had this cold feeling all through there body . thats whats going on in my husbands body it freaks him out this ice cold feeling all through and then he gets a bad taste in his mouth .. email and let me no .

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tyou ...

My father is cold all the time and the bad taste has been with him ever since Rad+chemo.  He says the taste has gotton better not 100%. Hope this helps

thxs for the reply but this is like about once or twice a day feels like there ice running thriugh him only last about 30 secs to a minute and not evey day either he said its the weirdest feeling gets goosebumps and all then they go away as fast as they come ...

Perhaps the tumor or the scar tissue from the radiation is affecting his nervous system? the part of the brain that controls sensory perception of hot and cold? Anything like this is bothersome but probably not a cause for huge worry. When Andy had an audible clicking in his tumor area, no one seemed to care much. And it went away.

Brains! Can't live with 'em, can't live without 'em. Sorry, a little BTH. (Brain tumor humor.)

Sarah

mother of Andy 27 dx gbm/pnet 1/09

Could be a minor seizure?  The icy feeling and the bad taste could be the aura signalling the seizure.  Mention it to the neurooncologist because they want to know about seizure activity.

Take care,

Peace,

JMB

S - my hubby steve had a gbm and is ALWAYS freezing.  This is (they believe) b/c the pituitary is fried during radiation and fails to signal the hypothalamus.  Steve had his hormone levels checked and needed testosterone supplements.  His temp ranges from 94 - 97, and we're in the process of learning how to get and keep him warm.  We've been told to deal with it for now.  Apparently that is a common side effect of cranial radiation - some moments he's more cold than others and cannot tolerate any wind on his body or face.  Ahhh the ravages of treatment.  For more of our story, check out steve's caring bridge site.  Stop in and say hi!

http://www.caringbridge.org/visit/stevecalloway

all love and prayers,

janni (wife of steve gbm dx 11/07)

On Nov 06, 2009 6:02 PM jannibc wrote:

S - my hubby steve had a gbm and is ALWAYS freezing.  This is (they believe) b/c the pituitary is fried during radiation and fails to signal the hypothalamus.  Steve had his hormone levels checked and needed testosterone supplements.  His temp ranges from 94 - 97, and we're in the process of learning how to get and keep him warm.  We've been told to deal with it for now.  Apparently that is a common side effect of cranial radiation - some moments he's more cold than others and cannot tolerate any wind on his body or face.  Ahhh the ravages of treatment.  For more of our story, check out steve's caring bridge site.  Stop in and say hi!

http://www.caringbridge.org/visit/stevecalloway "" target="_blank" rel="nofollow">http://www.caringbridge.org/visit/stevecalloway " target="_blank" rel="nofollow">http://www.caringbridge.org/visit/stevecalloway

all love and prayers,

janni (wife of steve gbm dx 11/07)

Janni,

You are so great and helpful to everyone on these sites.

I am glad you are my friend!

Holly