Extreme nerve pain in my neck

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Extreme nerve pain in my neck

by malakoff on Sat Nov 07, 2009 04:15 PM

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Hi everyone - I am brand new to the CancerCompass, although I have been reading the message boards since the spring.

I had a TT in March 2009 and had endless complications after my surgery (bilateral pnuemonia, strep infection in the incision, cellulitis, hemmoraging of the muscles in my neck, a hole in my trachea, a burst artery at the edge of the incision).  All said, I was in the OR 4 times over a course of 3 weeks.  After a very lengthy recovery, I was getting ready for my wbs in July.  I went hypo (not fun) and after preparing for the I-131 was told that I was still at 14% and needed further surgery. 

In Oct 2009 I underwent a bilateral neck disection where they removed all of the lymph nodes in my neck and 2 slivary glands.  I am now 12 days post op.  For the first week I was very swollen and numb, so had very little sensation from my jawline to my collarbone.  Now, I am starting to feel more and I have shooting pains from my jaw down to my incision.  The skin around the incision also feels like it is on fire. 

Has anyone else out there had a bilateral neck disection where they have felt like their skin is burning?  Any suggestions on what I can do to take some of this pain away?  I am still taking Tylenol No 3 regularily, but it doesn't seem to help that much.

Thanks!!!

RE: Extreme nerve pain in my neck

by suzzsuzz on Wed Nov 11, 2009 06:04 PM

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good mornng. i had my thyroid removed in 1994 and a bilateral neck dissection becua it involved my lymph nodes. i remember a pain like a sunburn with the feelings/nerves are coming back. keep taking your pain meds to stay ahead of the pain. it will get better. have you put any vitamin E on the scar? that will help with the apperance of it. I just used oil that i got from the vitamin section....beware it stains your clothes though so make sure you are wearing something that you dont mind throwin away.

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