Hashimoto's and Sjogren's Syndrome

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Hashimoto's and Sjogren's Syndrome

by atomicjoy on Tue Nov 17, 2009 12:42 AM

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Hi Everyone,

I was diagnosed with Breast Cancer in March 06, Hashimoto's and Papillary Thyca in March 09, TT May 09 and RAI in June 09.  My white blood cell count had been dropping and I went to a Hemotologist thinking the worst (Lymphoma).  I had more testing done and I tested positive for Sjogren's Syndrome which is an autoimmune disease that is linked to Hashimoto's.  Sjogren's Syndrome attacks the moisture producing glands in your body and produces dry eyes, dry mouth and attacks your salivary glands.  Has anyone else been diagnosed with Hashi's and Sjogren's?

Atomicjoy

RE: Hashimoto's and Sjogren's Syndrome

by Hopeful30 on Tue Nov 17, 2009 03:28 AM

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Hi Atomic Joy --  I have not been diagnosed with Sjogren's Syndrome, but I have the other two -- breast cancer in 2207 and thyca in 2009 -- I have also been having a some trouble with my salivary gland, but I think it is from the RAI treatment.....I hope I don't have yet another condition -- I have too many things to deal with already.

Good luck on your upcoming scan -- let us know how it goes.     Mine is still awhile out -- I am still trying to get my meds right -- currently upped to 150mcg Levoxyl, but don't get my blood test again until Feb. 1 --

 

RE: Hashimoto's and Sjogren's Syndrome

by Shemay on Tue Nov 17, 2009 04:34 AM

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On Nov 17, 2009 12:42 AM atomicjoy wrote:

Hi Everyone,

I was diagnosed with Breast Cancer in March 06, Hashimoto's and Papillary Thyca in March 09, TT May 09 and RAI in June 09.  My white blood cell count had been dropping and I went to a Hemotologist thinking the worst (Lymphoma).  I had more testing done and I tested positive for Sjogren's Syndrome which is an autoimmune disease that is linked to Hashimoto's.  Sjogren's Syndrome attacks the moisture producing glands in your body and produces dry eyes, dry mouth and attacks your salivary glands.  Has anyone else been diagnosed with Hashi's and Sjogren's?

Atomicjoy

 

Hi Atomicjoy
 
Low dose naltrexone is showing great efficacy in treating many autoimmune diseases.  If you do a Google search you will find many links with information that I really think would be helpful for your situation.
 
Autoimmune diseases have been linked with specific subtypes of non-Hodgkin’s lymphoma as well as Sjogren's syndrome. I was diagnosed with non Hodgkin's in early 2004 and this is a very important part of my maintenance treatment protocol.
Here are a few links which should get you started if you do decide to do some research on this. I believe there are about 60 videos on You Tube presented by professionals and patients as well.  
 
Noteworthy cases presented on the LDN website   http://www.lowdosenaltrexone.org/ldn_and_cancer.htm#Cases
Best wishes for a good outcome.
Sheila

RE: Hashimoto's and Sjogren's Syndrome

by TexPat on Tue Nov 17, 2009 04:16 PM

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Thank you for posting this thread. I, too, am being diagnosed for some of the same diseases.

I was a picture of health until April 2008. Perfect TSH every year my entire life.

TT 4/08  Pap. Cancer

RAI 5/08   150 dose

Very difficult to get me supressed. .225 MG levo. 4/09(1 year post TT) Then 25 MG Cytomel added and changed to .224 Sythroid. Did the trick !  Blood work perfect. TSH 0.01  and T4 and T3 middle of normal.

Now for the thread related issues. Dry mouth, dry eyes, salivary gland problems.  RAI?  Many body aches and joint degeneration. Had hip replacement 5/09 and need to do the knee. Muscle biopsy-negative.  Low White blood cell numbers.

Doctors treating me now: Endocrinologist(MD Anderson), Orthopedic Surgeon, Rhuematologist, and Pain Management.(Will address low white cell problem first week of Dec.)

(9/09)Tested positive for ant-SSb (possible Sjorgren's Syndrome) All other similiar test negative.

Drugs added to the arsenal: Lyrica,(8/09) Plaquenil,(9/09) and Ultram ER.(11/09)  I do feel so much better. Getting out and enjoying life.

I am happy to answer any personal messages.

 

 

 

RE: Hashimoto's and Sjogren's Syndrome

by Tavish on Wed Nov 18, 2009 01:04 AM

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Well can I join the club? I had breast cancer in 1999 and then dx'ed with Hashi's and papillary thyroid cancer in 2008. My oncologist thinks there may be a link, but said research is still going on. Hashi's is a non-issue now since I had a TT of course. THey do say that having Hashi's puts us in a higher risk category for other AI diseases, I can hardly wait for my next one.

RE: Hashimoto's and Sjogren's Syndrome

by atomicjoy on Thu Nov 19, 2009 02:19 AM

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Hi again Everyone,

Thank you all very much for your replies.  The information given here is always very helpful and the quick responses are great!!  

To Texpat - Are they any side effects with Plaquenil?  My Rheumatologist suggested this medication but I'm hesitant to take yet another medication.  It seems to me that you take a certain medication to clear up one problem and it gives you another.    So I've been dealing with the dryness with OTC products such as the Theratears line for dry eyes and Oasis for dry mouth, etc.  and for the joint pain, I have to do a Yoga DVD first thing in the morning or else I have alot of pain and stiffness.  And I too, used to be so healthy, now I'm so high maintenance with everything I have to do to control my cancers and autoimmune issues.  It gets depressing but at least I'm still here, cancer has knocked me down twice but has not knocked me out.  

Atomicjoy

RE: Hashimoto's and Sjogren's Syndrome

by TexPat on Fri Nov 20, 2009 10:49 PM

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You asked about any side effects I'm having with Plaquenil?

Rhuemy started me on it 3 months ago. I was not having any problems until I got Blood Tests results last week from PCP.  My white cell count is low. 2.8  He wants me to ask Rhuemy next week if Plaguenil could be the cause. Otherwise, no problem.

Rhuemy first started me on Lyrica five weeks ago. I love it! Made a big difference in the first week.  Doc said I could take 3 a day, but 2 work just fine.

I take a ton of PILLS.  Amazing!

Some are OTC ...Calcium, Vit. B Complex, Magnesium, Vit. D3

RE: Hashimoto's and Sjogren's Syndrome

by atomicjoy on Sat Nov 21, 2009 10:36 PM

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On Nov 20, 2009 10:49 PM TexPat wrote:

You asked about any side effects I'm having with Plaquenil?

Rhuemy started me on it 3 months ago. I was not having any problems until I got Blood Tests results last week from PCP.  My white cell count is low. 2.8  He wants me to ask Rhuemy next week if Plaguenil could be the cause. Otherwise, no problem.

Rhuemy first started me on Lyrica five weeks ago. I love it! Made a big difference in the first week.  Doc said I could take 3 a day, but 2 work just fine.

I take a ton of PILLS.  Amazing!

Some are OTC ...Calcium, Vit. B Complex, Magnesium, Vit. D3

Hi Texpat,

My white count is 2.9, that is what made me seek answers as to why?  That's when (after many blood tests) I was diagnosed with Sjogren's Syndrome and that is what I'm told is causing my WBC to be low.  I'm not taking any medication other than Levothyroxine for thyroid and Protonix for acid reflux (which is also caused by Sjogren's Syndrome.)  And I'd rather not take a lot of medication.  I'm trying to deal with it with OTC products for dry eye, dry mouth, dry nose, etc. and excercise and yoga for all the joint pain and stiffness.  I'd rather try to deal with it that way if I can because I'm just not crazy about introducing yet another drug into my system.  I'm glad it works for you, more power to ya.

Atomicjoy

RE: Hashimoto's and Sjogren's Syndrome

by michelledillon on Wed May 05, 2010 05:17 PM

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On Nov 17, 2009 12:42 AM atomicjoy wrote:

Hi Everyone,

I was diagnosed with Breast Cancer in March 06, Hashimoto's and Papillary Thyca in March 09, TT May 09 and RAI in June 09.  My white blood cell count had been dropping and I went to a Hemotologist thinking the worst (Lymphoma).  I had more testing done and I tested positive for Sjogren's Syndrome which is an autoimmune disease that is linked to Hashimoto's.  Sjogren's Syndrome attacks the moisture producing glands in your body and produces dry eyes, dry mouth and attacks your salivary glands.  Has anyone else been diagnosed with Hashi's and Sjogren's?

Atomicjoy

Hi!  I noticed this was originally posted in November so dont know if you will see this.  I have been diagnosed with Sjoegrens, Hashimotos, and papillary thyroid cancer.

RE: Hashimoto's and Sjogren's Syndrome

by atomicjoy on Sun May 09, 2010 09:13 PM

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On May 05, 2010 5:17 PM michelledillon wrote:

On Nov 17, 2009 12:42 AM atomicjoy wrote:

Hi Everyone,

I was diagnosed with Breast Cancer in March 06, Hashimoto's and Papillary Thyca in March 09, TT May 09 and RAI in June 09.  My white blood cell count had been dropping and I went to a Hemotologist thinking the worst (Lymphoma).  I had more testing done and I tested positive for Sjogren's Syndrome which is an autoimmune disease that is linked to Hashimoto's.  Sjogren's Syndrome attacks the moisture producing glands in your body and produces dry eyes, dry mouth and attacks your salivary glands.  Has anyone else been diagnosed with Hashi's and Sjogren's?

Atomicjoy

Hi!  I noticed this was originally posted in November so dont know if you will see this.  I have been diagnosed with Sjoegrens, Hashimotos, and papillary thyroid cancer.

Hi Michelledillon,

How are you doing?   So far, I've been doing very well with my Thyca (diagnosed in March 09).  I had my first clean scan in November and hoping for my second on Tuesday, May 11, 2010.  Wish me luck.  How are you doing with your Sjogren's Syndrome?  My joint pain is really a problem, I read that Sjogren's can cause Arthritis and joint pain and stiffness.  This is exactly what I have beside dryness of the mouth, eyes, nose, etc. but the joint paint is the worst.  I thought it was from Hashimoto's and would go away when my Thyroid was removed but it didn't.  I'm taking Meloxicam which takes the edge off the pain but doesn't get rid of it completely.  Let me know how you're doing.  Thanks.

Atomicjoy

 

 

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