my Husband Has Angiosarcoma Cancer

I am so sorry to hear about your husband. The same thing happened to mine. He passed away on July 8. I wish I had replied to your email earlier. We were told at MDA on May 16 that there were no more treatments we could try and our Dr. arranged for hospice. They came out two days later and set up things like oxyzen, hospital bed, etc but he didn't need any of that until the end of June when his kidneys and lungs started shutting down. He did take a lot of pain medicine but mostly it was because the tumor completely filled his abdomen and it was so swelled I was afraid it would burst. Also for the last month he could only eat one or two bites of food because there was no place for it to go so he lost a lot of weight. I would also like to talk to you about this and I wish MDA would have wanted to try to learn more about the disease but it is so rare they want to spend their money on cancers that are "more popular".

I am so sorry to hear about your husband too. I read your reply and thought I had typed it cause of the similarities! We were told that MD Anderson would not take my husband because he was unable to physically walk in the facility. We did go to Missouri and saw a specialist, but the cancer was so far gone they could not do much. We had the oxygen, hospital bed and hospice too. I was amazed at how bad he got there towards the end. He was so sick. I am like you, why do they not find something to get rid of this cancer! My husband was 32 years old and was not ready to die. He had so much to live for. I would love to talk to you further about this. I do not know if we can post email addresses up here, but I will and would love to talk to you somehow. Maybe we might both be able to help each other with the pain.

OK Here's my email address---I will be out of town today and tomorrow.
--- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----

Well that didnt work. Let me see if this will work. Please visit my husbands website at caringbridge.org when it asks for the site name type in robertrussell, all together. Send me your email address through that so maybe we can speak that way.

Thanks

OK I did as you suggested. My note is dated 8-12

my hubsand angiosarcoma cancer   they found it three and half years ago and nothing else so far as show up so far but i still worry all the time about him . it  is like a dream but the dream is true . it is hard his mother died with cancer but we don't know what kind 20 yrs ago.

I have was diagnosed with angiosarcoma in my pelvis in October 2007. it was removed and so far I have no metastasis.

 

I can so relate to being scared. I want to be okay, but sometimes I wake up in the middle of the night, and all I can hear is this little voice going, "cancer, cancer, cancer..."

 Most of the time I do pretty good though. I try to stay busy and distract myself as much as I can.

 I am finishing radiation this week, then Disney World and on to chemo!