Study finds infection, other complications more likely for patients with difficult lives
by MEEMERZ on Sun Jan 31, 2010 08:56 PM
Donna - please keep me posted. You are probably about our age - by the ages of your sons. This is such a tough road. My husband has head and neck and I am actually thankful (can you believe I am saying that) compared to GBM. Everything changes for all of us - so much more so for those caregivers and patients of GMB. My Rob is lying here asleep on the couch for the past two hours. Soooo unlike him - he obviously isn't feeling well today - or he would be "up and piddlying" as he says. God Bless you and everyone else on this site. Please be safe!
Cheryl Oklahoma City
by mbg53 on Mon Feb 01, 2010 11:51 AM
So very, very sorry for your pain. It's heartbreaking and so often itt seems as if there's no where to turn. My 11 plus year relationship is coming to a crashing halt. My fault, I know. I'm angry, don't feel emotionally supported. As a woman, of course, my anger is manifested in words, not actions. I don't get the kind of support I read about you wonderful caretakers giving at great sacrifice to your own health and wellbeing every moment of the day. You must love him so much, but try not to let him break you. I know==easy to say, huh? My thoughts are with you.
by CJs_grandma on Mon Feb 01, 2010 02:58 PM
Dear Donna - I look at this site every day - probably 4-5 times daily. My husband Michael has liver cancer, bone cancer, etc., however, I look at most cancers. Anyway, what I wanted to offer is how sorry I am that you, your husband and your dog have to go through this. It must have been absolutely terrifying and I wanted to let you know that I'm sending lots and lots of prayers your way.
by Houston_Wife on Mon Feb 01, 2010 06:32 PM
I can't tell you how sad I am that this is happening to you, and to some degree to all of us. My husband too has changed. I talked with him about removing the guns from the house and he agreed with me. So very quietly I gave them to a friend. When John discovered they were gone he was furious and said that he had agreed to have them removed at a later time. Our son who is a police officer told me that if he ask about them then it was the right thing to have done. Still, it was very frightening. We have been married 40 years and when he tells me that he thinks that I hate him and am trying to get rid of him it hurts. I have had John put on Ceriquil, ( antipsychotic med) and it has help tremendously. John took Temador for 18 months and did not have the reaction that your husband had, his problems stemed from the decadron. Once we decreased the dosage he became much calmer.
I don't know how you can live with that kind of fear, speak with his NO and suggest different meds. I don't think the ativan will do the job, he probably needs something stronger.
May God bless and keep you both.
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