has anyone lived as long as me with multiple myeloma

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RE: has anyone lived as long as me with multiple myeloma

by cancerkicker34 on Sun Mar 21, 2010 12:03 PM

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Thanks for sharing your story! I am 29 and about to go in for the first of two transplants in a couple of weeks. I have a 4 and 2 year old and baby on the way. Stories like yours provide a lot of hope. 

I like to collect these stories if you or anyone is interested in sharing your story. Thanks again for posting! 

http://mmfordummies.blogspot.com/2009/03/myeloma-mondays-arc

 

-Phil

RE: has anyone lived as long as me with multiple myeloma

by bobbymorreno on Tue Jun 01, 2010 07:52 PM

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Yes, I had, my doctor said it will cost me a lot of money if it will go chronical, but fortunately it was icute and fully reversible!

RE: has anyone lived as long as me with multiple myeloma

by bobbymorreno on Tue Jun 01, 2010 07:59 PM

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My name is Bobby and I'm 42. I've been diagnosed in September 2008. It started with terrible bone pains. No doctor could put the right diagnose, untill I started bleeding through my nose. In the next 3 days I had my diagnose Multipple Myeloma stage 4, a week later I been admited to the hospital and then ICU with kidney falure, with protein 167!!! Doctors were shocked. Every day were wors and wors. I started my therapy with Thalidomide and many more pils, I had to take around 100 pils a day. I lost about 25 kg. And when I started to get better and stronger, in March 2009, I've done Stem Cell Transplant, only to get back to the ICU with the terrible pneumonia. I went through pneumonia 3 times since diagnosed. 2 weeks in the ICU - very critical each day- I've survived! Since then, I've been in remission. A year later I gained my weight back, I'm very active, going to gym and I'm back to play soccer twice a week. I never thought I could ever make it.

RE: has anyone lived as long as me with multiple myeloma

by lutonian on Tue Jun 01, 2010 08:41 PM

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 just found out that my mum of 72 has bone marrow cancer her kidneys are working at only 10% and today found out at stage 3 this is all very hard for me , but my mum smiles and keeps positive , very brave .

I dont know what time scales we are looking at, you read different things all gets confusing and very upsetting hard with  children asking about their nan very upsetting ,but we have to stay strong .

any advice would help.

        

 

RE: has anyone lived as long as me with multiple myeloma

by mmsurvivor on Thu Jun 03, 2010 10:22 PM

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On Jun 01, 2010 7:59 PM bobbymorreno wrote:

My name is Bobby and I'm 42. I've been diagnosed in September 2008. It started with terrible bone pains. No doctor could put the right diagnose, untill I started bleeding through my nose. In the next 3 days I had my diagnose Multipple Myeloma stage 4, a week later I been admited to the hospital and then ICU with kidney falure, with protein 167!!! Doctors were shocked. Every day were wors and wors. I started my therapy with Thalidomide and many more pils, I had to take around 100 pils a day. I lost about 25 kg. And when I started to get better and stronger, in March 2009, I've done Stem Cell Transplant, only to get back to the ICU with the terrible pneumonia. I went through pneumonia 3 times since diagnosed. 2 weeks in the ICU - very critical each day- I've survived! Since then, I've been in remission. A year later I gained my weight back, I'm very active, going to gym and I'm back to play soccer twice a week. I never thought I could ever make it.

Congratulations on your success and may you keep up the good work.  You look young and healthy so stay that way!!!

MMS

RE: has anyone lived as long as me with multiple myeloma

by mmsurvivor on Thu Jun 03, 2010 10:22 PM

Quote | Reply

On Jun 01, 2010 7:59 PM bobbymorreno wrote:

My name is Bobby and I'm 42. I've been diagnosed in September 2008. It started with terrible bone pains. No doctor could put the right diagnose, untill I started bleeding through my nose. In the next 3 days I had my diagnose Multipple Myeloma stage 4, a week later I been admited to the hospital and then ICU with kidney falure, with protein 167!!! Doctors were shocked. Every day were wors and wors. I started my therapy with Thalidomide and many more pils, I had to take around 100 pils a day. I lost about 25 kg. And when I started to get better and stronger, in March 2009, I've done Stem Cell Transplant, only to get back to the ICU with the terrible pneumonia. I went through pneumonia 3 times since diagnosed. 2 weeks in the ICU - very critical each day- I've survived! Since then, I've been in remission. A year later I gained my weight back, I'm very active, going to gym and I'm back to play soccer twice a week. I never thought I could ever make it.

Congratulations on your success and may you keep up the good work.  You look young and healthy so stay that way!!!

MMS

RE: has anyone lived as long as me with multiple myeloma

by mmsurvivor on Thu Jun 03, 2010 10:25 PM

Quote | Reply

On Jun 01, 2010 8:41 PM lutonian wrote:

 just found out that my mum of 72 has bone marrow cancer her kidneys are working at only 10% and today found out at stage 3 this is all very hard for me , but my mum smiles and keeps positive , very brave .

I dont know what time scales we are looking at, you read different things all gets confusing and very upsetting hard with  children asking about their nan very upsetting ,but we have to stay strong .

any advice would help.

        

 

Sorry about Your mother.  The idea is to get the kidney's functioning.  Treat the disease and support her.  She is being brave for you so you can be brave for her.  So many new treatments today so do not despair.  Ask the doctor lots of questions, get a copy of test results and make sure you have an oncologist that is experienced in Multiple Myeloma treatment.  Do not be afraid to ask for references.  Take care MMS

RE: has anyone lived as long as me with multiple myeloma

by Debbie15207 on Thu Mar 08, 2012 09:23 PM

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There is no cure for MM however it is treatable and can be controlled over your lifetime. Bloodwork every month is important to keep track of it.treatm ents have come a long way and people are living long lives..the drs say they like to call it a disease rather than cancer but cancer it is..

GregMatthews GregMatthews
(Inactive)

RE: has anyone lived as long as me with multiple myeloma

by GregMatthews on Fri Mar 09, 2012 10:43 PM

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awesome story.

RE: has anyone lived as long as me with multiple myeloma

by reidar on Mon Apr 02, 2012 05:19 PM

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i was diagnosed in 2010 at 28yrs old. im 30 now and my son turns four years old tomorrow!!! ive had my car reposessed, gonna go bankrupt, divorced, but know theres people who have pasted ten years gives me hope!! thanksso much:) these posts help me stay strong

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