One patient with glioblastoma still alive nine years later
by arnieab on Sun Feb 28, 2010 05:06 PM
Hi, I'm new to this site, just found it.
I have Thyroid Cancer and had my surgery in Dec. 2009.
I have to start my low iodine diet today and am about to go shopping, i'm looking for any information or foods that can make the next couple weeks a lot nicer for my eating habits.
I am a cancer survivor since 2000, having had a partial lung removal and a total laryngectomy.
Looking for help with my food choices...
Thank you in advance........................ arnie
by tink2002 on Mon Mar 01, 2010 02:23 AM
hi, Arnie and welcome! Please be sure to check out the thyca.org site. It is full of great information. Check especially the cook book. towards the beginning there is a page of things you can (and can't) eat. Here is an excerpt of the "good stuff"
• Fresh fruit—apples, grapes, bananas, melon, etc. Keep on hand and ready to eat.
• Apple sauce. Check label to be sure no salt.
• Raisins and other dried fruits.
• Raw carrot sticks (chopped and ready to eat).
• Unsalted peanut butter (great with apple slices, carrot sticks, crackers and rice cakes).
Unsalted peanut butter tends to be the “natural” type that separates so that the top is swimming in oil,
while the bottom is dry.
Dump the contents into a bowl and stir until the oil is evenly distributed. (Add non-iodized salt to taste,
if desired.) Spoon back into jar and refrigerate. Chilled, the product does not separate, yet it is still
easy to spread.
• Unsalted Matzo crackers (in the Kosher aisle).
• Unsalted rice cakes.
• Popcorn (homemade, with non-iodized salt).
• Unsalted nuts—pecans, walnuts, almonds, etc. (Shop for these in the baking supplies aisle, since
nuts in the snack foods aisle will probably be salted).
• Homemade bread or muffins (made with a low-iodine recipe) with honey or jelly (check label to be
sure no Red Dye #3 or E127 in the UK).
• Sodas, including colas, 7-Up, and Sprite (read labels, as caramel-colored sodas may have Red Dye
#3 or E127 in the UK).
• Sorbet (check label to be sure no salt, dairy, or Red Dye #3 or E127 in the UK).
DISCLAIMER—Do not assume that all items on this list are low iodine in every form or merchandise
try to be flexible and make stuff BEFORE you are starving. There is a chocolate cake recipe that got me through the last week of LID. Wishing you the best.....
by RebeccaMM on Mon Mar 01, 2010 10:32 PM
Today is day 14 on my first LI diet, I get my RAI on Wednesday (had TT for papillary in Dec).
In the last 2 weeks I have had more dried fruits and nuts than in the 5 years I think! Lots of salads and veggies. I was able to find unsalted tortilla chips and even potato chips and have also made a lot of popcorn at home. Costco has a nice dried cranberry/cherry/walnut/almond/pistacio (sp?) mix that isn't salted.
A couple of nights I had strawberry sorbet with banana, blueberries and cocoa powder on top. If you get sorbet, be careful to read the ingredients! I was surprised how varied they were (even though I was looking at the same flavor) and some did contain salt. I haven't seen anything that said you can't have cool whip (it is non-dairy and doesn't contain salt), so even though I usually avoid it, I had some of that on my little banana split (helped sweeten the cocoa powder too).
I have had a hard time the last two weeks, especially since I have to make "normal" food for my family, but I read a journal article that said people with on the LI diet had a 60-65% higher absorption rate of the RAI, and so that is about the only thing that has gotten me through when the cheese is calling me...
by Kazmo on Tue Mar 02, 2010 04:57 PM
Hi i started my LI today, i had TT 2006 had RAI a few weeks later. Now it has returned in my neck and poss lungs, so have to go for a high dose RAI to see if it will ablate these cells. Then possibly radical neck surgery. XX
by pengwenn on Tue Mar 02, 2010 10:12 PM
Hi there - let me just start by saying that its a long 3 week diet! lol Some items that I found invaluable were Balsamic Vinegar, fresh fruits, vegetables, fresh homemade bread with real jam/ jelly. I have made and canned bottles of Chicken stock and vegetable stock ahead of time so that I would only have to open a bottle to make a quick soup! Not sure where you live but if you can find it, Himalayan crystal salt, is acceptable as it is not iodized - a lil more expensive but cut any amount that is suggested to a 1/4 of the amount and it should be acceptable - its more flavourful then any other salt out there - and it is acceptable according to my endocrinologist - in small amounts! OH! make brownies and granola bars from LOW IODINE Cookbook - can be found online - makes life easier when you are snacky - go to your local bulk food store and make a trail mix of your own - with unsalted nuts, raisins papaya chunkc etc....
Hope this helps - oh, and in about a week, your muscles will really start to hurt so get some Tylenol while you are shopping!!
by RebeccaMM on Tue Mar 02, 2010 10:15 PM
What's up with the muscles hurting in a week? I haven't seen that anywhere before...???
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