One patient with glioblastoma still alive nine years later
by djohnson on Sun Mar 07, 2010 01:59 AM
Has anyone else noticed an increased sensitivity to spice in foods in your loved ones. My husband has found it difficult to eat anything with even the least bit of spice in it. He tried pizza tonight, no pepper in it, just a supreme pizza, and his tongue is burning and tears are rolling down his face. Some food makes his eyes water, his nose run and his tongue burn. I am the one who is usually sensitive to spices so if it is not spicy to me then it is really not spicy. I am trying to figure out what is in this food that could be setting off this reaction because he is having difficulty eating much. If anyone has any ideas I would like to hear them. He is currently on Avastin and Temodar.
by flfrog on Sun Mar 07, 2010 03:59 AM
My dad had this same issue when on temodar, he ate cup of noodle soup the weeks he took chemo and that helped.
by heart_and_soul on Sun Mar 07, 2010 04:32 AM
WOw, Andy is too... sensitive to spices. He can't believe it... he's always been x-macho about HOT food and now he can't take even the least bit. He'll be gasping in pain and drinking water and sweating with a tiny bit of cayenne, which I can hardly taste. Guess I'd better bring the heat down!
by djohnson on Sun Mar 07, 2010 05:01 AM
Is he on Temodar?
by moms_caregiver on Sun Mar 07, 2010 06:35 AM
by heart_and_soul on Sun Mar 07, 2010 12:02 PM
Andy is on Avastin and CCNU (aka Lomustine) He was on Temodar last winter with the radiation, and then on 5/23 rounds until October when the tumor had breakthrough progression.
by I_love_Gary on Sun Mar 07, 2010 01:57 PM
Gary has only ever been on the radiation and temodar, but he definitely had the sensitivity too. He found that he could not eat his favorite spaghetti sauce, he has needed the antacid for every meal in the past 3 years, and we laughed about the fact that he was thrilled with the meals in the hospital! He kept telling people how great the food was there and in hindsight I began to reallize, that was because it was so bland. When I am disappointed with a meal I prepare, he thinks its wonderful. To me some things taste boring, and to him they are just great. I guess their mouth is hypersensitive to everything.
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