BRCA screening has its limits in assessing dangers for women with a family history of disease, experts say
by sylvanmarcel on Tue Mar 16, 2010 08:47 PM
Hi all, after having been diagnosed with colon cancer in June last year and after many fights with Dr's I had decided to go the alternative route with a new oncologist after the initial chemo and radiation treatments. I've managed to beat cancer within half a year and am now only doing the regular blood tests. In the meantime I've written a report on my journey back to health which hopefully will help others. Just remember that your body is capable of healing itself when given the right tools. I can email the pdf document to anyone who would be interested. It is called 'Search For Health'. Love and health, Sylvan
by PattyJ on Tue Mar 16, 2010 11:09 PM
Congrats for being cancer free. I was diagnosed the year before last (also in June), and have been cancer free since my last surgery in November of 08. I finished chemo on April first last year. Can't believe it is just about a year since then.
Are you having CT scans at all? Or just the blood work?
Keep yourself healthy!
by sylvanmarcel on Wed Mar 17, 2010 05:16 AM
Hi Patty, thanks for your message. During my treatment I've had 4 CT scans and two PET/CT scans. The last PET/CT scan was in December which together with a visual check (flexible signoidoscopy) and blood results showed all clear. My blood results became progressively better since October last year and I do them every 2 to 3 months. Next to that CT scans will be done annually. PET/CT scans are better but I've opted against them going forward as they are cancer promotors and I would only use them if really required. Are you also having scans done regularly?
by ktburgh on Wed Mar 17, 2010 11:53 PM
My 37 year old husband was diagnosed with HNPCC, a hereditary form of colon cancer, last November. He had a sub-total colectomy and just completed one round of folfox with some really bad side effects. We will be meeting with his oncologist tomorrow to discuss decreasing his dose, etc. because they want him to definitely continue with the chemo. He was diagnosed as stage 2 but because his is hereditary and the tumor was a T3. We would like to look into some alternatives options and I would be very interested to hear about your journey. Could you please send me your "Search For Health?" Congratulations on your success! Kelly
by sylvanmarcel on Thu Mar 18, 2010 04:35 AM
Hi Kelly, thank you for your message and your husband's story. How long has he had treatment for? Let me know where to email the document to as I can not attach it to this reply.
Love and Health, Sylvan
--Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html--
by psouthfla on Thu Mar 18, 2010 02:45 PM
please let me know how long you been fighting this cancer,,and what stage were you? Also did it spread? all these factors when considering alternative methods of treatment, Thank you,
PS great news !! keep fighting,
by sylvanmarcel on Thu Mar 18, 2010 03:17 PM
Hi there, I had stage III colorectal cancer and was diagnosed at the end of June last year. I had my final all clear in December so it was a good 6 months 'in' and 'out'. Just had my follow up blood results yesterday and they were better than ever. I'm still continueing with my new diet and various body and mind work. I've put it all in my 56 page report that I've compiled together with a lot of info on foodstuffs. I promised myself to do that if I would get an all clear. What is your situation?
by psouthfla on Thu Mar 18, 2010 05:04 PM
2008 colon cancer, met to liver stage four , removed mass from colon, met/to liver, 8or 9 spots on liver could not do surgery because to many showed up. Been on all the treatments, CEA level went down 2.1 just had another Pet scan , and it all looked clear except for 2 very small spots on the liver, has not spread anywhere else, done very well with all the treatments, he goes for Erbutux once a week, every week, Saw Dr. and she was all smiles and said come here want to show you something, we saw the biggest smile on her face, She said you are all clear except for 2 small spots, I would like for you to see this Dr. and see if your ready or can do surgery to remove the 2 small spots on the liver, then I want you to see the Dr. who does RFA and what he thinks about doing this procedure on him. *they blast the spots with radiation. We are very careful with his diet and he walks everyday, She has 5 other people on this treatment 3 others had to be taken off treatment because they could not handle the treatment, My husband and this other man ( who has stage 4, mets to liver also, and he is going into his 9 yr.) Some people just do better then others, their DNA is different and they can handle the treatment. In the near future soon they will know what type of treatment to give people just by there DNA, not yet but in the future, His hair is coming back all and all he has done very well with all the treatment it also has to be combined with a good solid support from everywhere. Were positive and do what is expected, we know anything can change at anytime but you have to live everyday to the fullest . This month is 2yrs he has been in treatment chemo every week he had 3 weeks off last month, and he bounced right back to his old self again, back on again but after RFA maybe we can get off for long time, or who knows maybe NED this time.
by livingbyfaith on Thu Mar 18, 2010 06:17 PM
I received the report and would highly recommend it to everyone fighting cancer or a caregiver. Its wonderful. Thanks.
by Debra1 on Fri Mar 19, 2010 11:06 PM
I just found out recently that I am also cancer free. I was diagnosed with colon cancer stage 2B (went through the wall) in May of last year. I had 12 inches of colon removed and then 6 months of chemo. I was on 5fu and oxalyplatin. I the oxalyplatin was hard and I was very glad to be done with that. It landed me in the hospital a couple of times and really messed up my mouth in so many ways. The last few weeks of my chemo my cea number was climbing up gradually. My oncologist did not like the trend so I finished my chemo and then had a pet scan and another colonoscopy which both came back fine. My cea had gone up to 9. We waited 2 months and tested it again and it was back down to 3. He doesn't know why it had gone up but he said I was ok and to have my port removed which I just had done on Tuesday. I will go now every 3 months for blood tests and hope for the best.
I wish everyone good luck with their treatments. Debbie
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
Do you use smart phone apps?
Take our short survey on hospital smart phone apps.
We care about your feedback. Let us know how we can improve your CancerCompass experience.