Bartholin Gland cancer

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Bartholin Gland cancer

by Mpeterson56 on Wed Mar 17, 2010 11:26 AM

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Hi. I just had a biopsy yesterday. My gyn removed part of a very hard, fibrous cyst from my right vaginal lip. She was only able to remove part of it, as it was very difficult to get it to come out. If more needs to come out, I will have to be put under. She seemed genuinely stumped. I go for my results next Tuesday, but started searching on-line. This is where I found out about Bartholin Gland Cancer. Did anyone who has been diagnosed with this cancer, have the same type of growth??? I should add that I am a DES baby.   

RE: Bartholin Gland cancer

by Teddys_Mom on Fri Apr 16, 2010 07:42 PM

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I never even knew we had bartholin glands when I was diagnosed with cancer in the left one in Dec. 2006. I did not have a cyst, I was bleeding (had a hysterectomy years ago) and they could not find the cause. Anyway, in all the reading I've done it seems that bartholin gland cysts are quite common. Who knew? Hopefully, yours is a cyst and you won't have anymore problems with it. I wish you luck!

RE: Bartholin Gland cancer

by TaraE. on Thu Sep 30, 2010 05:02 AM

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I am new to all this about 4 years ago the left side of my vagina got really swollen & hard it was extremly painfull I was to scared to go to the doctor & to this day I still have not gone I have had this happen to me every year sometimes twice a year I am gonna go to the doctor tomorrow but I am so scared to find out I may have cancer! I was so embarassed to tell anyone I had a large growth in that area. does anyone know how to relieve the pain? I am nervous to go to the doctor tomorrow Im only 32 & this has been going on sinse I was 28 never knew about this really just freaking out now!!!

RE: Bartholin Gland cancer

by funbeadgirl on Thu Sep 30, 2010 02:31 PM

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Please don't be afraid or embarrased to go to the doctor. Chances are the swelling is not cancer, but some other vulvar issue that needs to be addressed. Vulvar cancer is very rare but it should be checked out. All of us women need to stand up and not be afraid to say the correct words when we refer to our bodies. I had vulvar cancer last year so I know how you feel,I would try to explain to someone what type of cancer I had but when they don't even know the word for that part of the body it is hard, so I decided to educate everyone that asked. You are so young, please, please take care of yourself and BE A STRONG WOMAN! Please post again so we can know how you are doing.

RE: Bartholin Gland cancer

by sueticknor on Sat Apr 16, 2011 10:55 PM

Quote | Reply

On Apr 16, 2010 7:42 PM Teddys_Mom wrote:

I never even knew we had bartholin glands when I was diagnosed with cancer in the left one in Dec. 2006. I did not have a cyst, I was bleeding (had a hysterectomy years ago) and they could not find the cause. Anyway, in all the reading I've done it seems that bartholin gland cysts are quite common. Who knew? Hopefully, yours is a cyst and you won't have anymore problems with it. I wish you luck!

I, too never knew I had Bartholin Glands until I started having reoccurring cysts.  I was undergoing treatment for first 2nd stage and then 3rd grade cervical cancer.  After 3 LEEP surgeries, my cervical cancer was no longer detected, but I had a much larger problem.   The Bartholin Gland cysts  had been drained 3 times, and a Word cathater surgically inserted, but was once again solid and not draining.  My gynocologist ( the kindest,and most competent gyno I had ever had)  told me that he thought my cyst had become a solid tumor.  He referred me to the top gynocologist oncologist in our area.  After numerous scans it was determined that I had a 7cm x 9cm solid Bartholin Gland tumor.  I was scheduled for a surgical biopsy and woke with a power port in my chest for chemotherapy which let me know that it was malignant.  I had done some research, but had been unable to find much information.  What I did find was that my cancer was extemely rare and would require surgical removal either before or after radiation and chemo.  After a few weeks of waiting for a treatment plan to be developed, I was told that my tumor was too large to be removed at that time, and that it had involved several organs.  I was scheduled for radiation 5 days a week for 5 weeks, which turned into 5 additional treatments for a total of 30.  At the same time, I received chemotherapy (cistplastin) every Wednesday.  I was told that they were eventually going to remove the shrunken tumor, along with my vagina, uterous, ovaries, bladder, urethra, anus, rectum, and possibly part of my colon.  I would then have an evacuation system put in place to remove the waste from my body.  During the second or third week of treatments, the tumor had started to shrink, and the surgery was again discussed.  I had decided at the beginning that I was going to use my tremendous faith in God to get me through this according to his will.  I prayed for guidance and knowledge for my doctors, and for me to have the strength to live with God's decision.  I became amazingly calm and optimistic about the outcome.  Everyone I came in contact with marvelled at my positive attitude.  It seemed I was already being mourned as either being dead or "doomed"  to living my life without many of my organs.  I was very sick during this time and for long afterwards.  I lost 30 lbs. during the six weeks.  I also suffered from"chemo brain" and severe radiation burns inside and out.  Long story, short that was April 2009 that I completed treatment.  My burns were so bad I had the appearance of a large purple eggplant!  My Inside organs (the ones that were supposed to be removed but never were) also were extrememly damaged by the radiation and chemotherapy.  In July 2010, another surgical biopsy was done with no active cancer being found...I was pronounced in remission.  In September a PET scan idicated active cancer cells.  Since then my life has become a painful, frightfilled nightmare that I can't wake up from.  I have become totally disabled and physically and emotionally unable to deal with life on life terms.  I am 53 years old, and seldom leave my home except for various doctors appointments and therapy sessions.  I have not waivered in my overwhelming faith in God.  I do believe however that his will and guidance for my doctors was intercepted by "free will".  I am written up in my chart as a "phenomonum".  My gyno surgeon has now gone to some University/teaching hospital to write about a rare cancer that he successfully put into remission without performing invasive surgery or resection.  I still pray and put my life in God's hands, somtimes many, many times a day.  God did not turn his back on me however.  I have a 7 month old grandson born to 2 opiate addicted parents who now lives with me and my husband.  My husband is so in love with and involved with Skylar that he is not a burden to me.   Instead, he is the blessing I was given in exchange for what the cancer and the doctors took away from me.  I have not found any info where a malignant Bartholin Gland tumor was not removed as part of treatment.  Most days I struggle and I don't feel "phenomonal".  Mostly I feel damaged and old along with being so blessed.  Has anyone heard about a Bartholin cancer being successfully cured without resection?  I currently have active cancer cells in the pelvic/groin area, but my doctors have been unable to isolate them.  In the meantime I have developed lymphedema due to late onset radiation damage which has now been declared chronic and progressive.  I almost died from septic Erysepilas in January and now have to worry about any little infection due my lymph system not working correctly.  I have become anemic for the first time in my life.  I have had 2 children, lived a very active and busy life, have undergone Interferon treatment to which I also responded phenomonally.   Thank you Teddy's mom for finding me and extending yourself to me.  Survivors of vulvar cancer groups don't understand because I had not found one person who had ever heard of, much less dealt with my cancer.  I am sorry if I have rambled and seem less than grateful for my continued survival...I just feel so alone with my experiences and current state of being...no one can imagine what a Bartholin Gland cancer patient goes through except someone who has been there...

RE: Bartholin Gland cancer

by Teddys_Mom on Tue Aug 02, 2011 09:22 PM

Quote | Reply

On Apr 16, 2011 10:55 PM sueticknor wrote:

On Apr 16, 2010 7:42 PM Teddys_Mom wrote:

I never even knew we had bartholin glands when I was diagnosed with cancer in the left one in Dec. 2006. I did not have a cyst, I was bleeding (had a hysterectomy years ago) and they could not find the cause. Anyway, in all the reading I've done it seems that bartholin gland cysts are quite common. Who knew? Hopefully, yours is a cyst and you won't have anymore problems with it. I wish you luck!

I, too never knew I had Bartholin Glands until I started having reoccurring cysts.  I was undergoing treatment for first 2nd stage and then 3rd grade cervical cancer.  After 3 LEEP surgeries, my cervical cancer was no longer detected, but I had a much larger problem.   The Bartholin Gland cysts  had been drained 3 times, and a Word cathater surgically inserted, but was once again solid and not draining.  My gynocologist ( the kindest,and most competent gyno I had ever had)  told me that he thought my cyst had become a solid tumor.  He referred me to the top gynocologist oncologist in our area.  After numerous scans it was determined that I had a 7cm x 9cm solid Bartholin Gland tumor.  I was scheduled for a surgical biopsy and woke with a power port in my chest for chemotherapy which let me know that it was malignant.  I had done some research, but had been unable to find much information.  What I did find was that my cancer was extemely rare and would require surgical removal either before or after radiation and chemo.  After a few weeks of waiting for a treatment plan to be developed, I was told that my tumor was too large to be removed at that time, and that it had involved several organs.  I was scheduled for radiation 5 days a week for 5 weeks, which turned into 5 additional treatments for a total of 30.  At the same time, I received chemotherapy (cistplastin) every Wednesday.  I was told that they were eventually going to remove the shrunken tumor, along with my vagina, uterous, ovaries, bladder, urethra, anus, rectum, and possibly part of my colon.  I would then have an evacuation system put in place to remove the waste from my body.  During the second or third week of treatments, the tumor had started to shrink, and the surgery was again discussed.  I had decided at the beginning that I was going to use my tremendous faith in God to get me through this according to his will.  I prayed for guidance and knowledge for my doctors, and for me to have the strength to live with God's decision.  I became amazingly calm and optimistic about the outcome.  Everyone I came in contact with marvelled at my positive attitude.  It seemed I was already being mourned as either being dead or "doomed"  to living my life without many of my organs.  I was very sick during this time and for long afterwards.  I lost 30 lbs. during the six weeks.  I also suffered from"chemo brain" and severe radiation burns inside and out.  Long story, short that was April 2009 that I completed treatment.  My burns were so bad I had the appearance of a large purple eggplant!  My Inside organs (the ones that were supposed to be removed but never were) also were extrememly damaged by the radiation and chemotherapy.  In July 2010, another surgical biopsy was done with no active cancer being found...I was pronounced in remission.  In September a PET scan idicated active cancer cells.  Since then my life has become a painful, frightfilled nightmare that I can't wake up from.  I have become totally disabled and physically and emotionally unable to deal with life on life terms.  I am 53 years old, and seldom leave my home except for various doctors appointments and therapy sessions.  I have not waivered in my overwhelming faith in God.  I do believe however that his will and guidance for my doctors was intercepted by "free will".  I am written up in my chart as a "phenomonum".  My gyno surgeon has now gone to some University/teaching hospital to write about a rare cancer that he successfully put into remission without performing invasive surgery or resection.  I still pray and put my life in God's hands, somtimes many, many times a day.  God did not turn his back on me however.  I have a 7 month old grandson born to 2 opiate addicted parents who now lives with me and my husband.  My husband is so in love with and involved with Skylar that he is not a burden to me.   Instead, he is the blessing I was given in exchange for what the cancer and the doctors took away from me.  I have not found any info where a malignant Bartholin Gland tumor was not removed as part of treatment.  Most days I struggle and I don't feel "phenomonal".  Mostly I feel damaged and old along with being so blessed.  Has anyone heard about a Bartholin cancer being successfully cured without resection?  I currently have active cancer cells in the pelvic/groin area, but my doctors have been unable to isolate them.  In the meantime I have developed lymphedema due to late onset radiation damage which has now been declared chronic and progressive.  I almost died from septic Erysepilas in January and now have to worry about any little infection due my lymph system not working correctly.  I have become anemic for the first time in my life.  I have had 2 children, lived a very active and busy life, have undergone Interferon treatment to which I also responded phenomonally.   Thank you Teddy's mom for finding me and extending yourself to me.  Survivors of vulvar cancer groups don't understand because I had not found one person who had ever heard of, much less dealt with my cancer.  I am sorry if I have rambled and seem less than grateful for my continued survival...I just feel so alone with my experiences and current state of being...no one can imagine what a Bartholin Gland cancer patient goes through except someone who has been there...

Sue,

I am so sorry to hear about what you are going through. I can only imagine. Your case is so much more severe than mine but I do relate to your state of mind as I still at times struggle with the look and feel of my private parts since surgery and radiation. I don't think that will ever go away completely. I am happy to hear that your faith in God remains strong. He has guided and continues to guide me along this path of healing and need of acceptance of my life as it is now. I will pray that God gives you peace. Enjoy your grandson as I have so enjoyed my grandchildren. They always manage to bring a smile to my face and place joy in my heart. Take care.

RE: Bartholin Gland cancer

by Maddyw on Wed Apr 04, 2012 10:44 PM

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I was given this site some time back but only just wandered in.

So very good to be able to read others stories.

Mine started over 5 yrs ago when I noticed a tiny lump.  I had the attitude that it will go away and did nothing about it.  I am never one to go to drs so could see no point for that.  Time passed and I lost my only daughter suddenly to a heart attack.  This left me with her 3 sml boys to care for and certainly no time for me.  The lump grew significantly and 1 yr ago today was diagnosed with Bartholins Gland Tumour.  It was 5.3cm in length x 3.1cm. This guy (Snr Lecturer at one of Aust Best Unis) informed me that I would not last 6 mths without treatment/intervention.  Death had never phased me but I now had the kids to consider.

As previous poster surgery would be drastic leaving me with 2 evacuations bags so it was decided to try radiation & chemo.  This was started within 10 days.  Radiation was 36 doses x daily and 6 x chemo weekly.  I was admitted to hosp as I was too ill to cope with me let alone the boys.  Many times during the course of this I doubted I could continue.  My weight dropped 12kg and I looked like a walking grey ghost.  The radiation burns left me an absolute mess in and out.  My genital area needed to be dressed every 4 hrs even after returning home until the new skin grew.  After a PET scan this week and visit with dr I have been told that there is no sign of the tumour.  Of cause it will be many years before I get a clearance this news was great.

Wishing all well.

Cheers

RE: Bartholin Gland cancer

by Teddys_Mom on Mon Apr 23, 2012 09:06 PM

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I very much hope that you are improving daily. I am just now reaching my 5 year anniversary where I will be released from my gyn/onc and considered totally cured. My appt. with her is May 16th. There were times I didn't think I could take one more day with the thought of recurrence hanging over me. But, here I am almost to the finish line. My faith, my family, my friends have gotten me through these last 5 years. You have been through so much, I am so sorry about the loss of your daughter. It is said that God never gives you more than you can handle, but sometimes that is very hard to believe.

I will pray that you receive the same support I had, and that your 3 small grandsons will help sustain you. Please try to keep in touch and let us know how you are doing.

CeCe

RE: Bartholin Gland cancer

by datta.tuli on Wed Jun 13, 2012 06:10 AM

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On Sep 30, 2010 5:02 AM TaraE. wrote:

I am new to all this about 4 years ago the left side of my vagina got really swollen & hard it was extremly painfull I was to scared to go to the doctor & to this day I still have not gone I have had this happen to me every year sometimes twice a year I am gonna go to the doctor tomorrow but I am so scared to find out I may have cancer! I was so embarassed to tell anyone I had a large growth in that area. does anyone know how to relieve the pain? I am nervous to go to the doctor tomorrow Im only 32 & this has been going on sinse I was 28 never knew about this really just freaking out now!!!

When you first notice mild tenderness or a small lump, use warm towel compresses to help to drain the gland and cyst and to prevent infection....i suffered from this for 1 yr. nw i practice this...its helpful.

RE: Bartholin Gland cancer

by jeankchome on Thu Oct 18, 2012 11:10 PM

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Your story is amazing.  I was recently diagnosed with Bartholin Cancer and of the Lymph Nodes.  First thing the specialist wanted to do was a Radical Vulvectomy, I looked it up anc cancelled the surgery.  I am scared to death what the next doctor is going to tell me when I go to get a second opinion.  The surgery sounds like a nightmare and I can not find that alot of people with this cancer had such a radical surgery.  Hope you are better.

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