Bartholin Gland cancer

24 Posts | Page(s): Prev 1 2 3  Next 

RE: Bartholin Gland cancer

by trouble3906 on Sun May 12, 2013 05:34 PM

Quote | Reply

On Jun 13, 2012 6:10 AM datta.tuli wrote:

On Sep 30, 2010 5:02 AM TaraE. wrote:

I am new to all this about 4 years ago the left side of my vagina got really swollen & hard it was extremly painfull I was to scared to go to the doctor & to this day I still have not gone I have had this happen to me every year sometimes twice a year I am gonna go to the doctor tomorrow but I am so scared to find out I may have cancer! I was so embarassed to tell anyone I had a large growth in that area. does anyone know how to relieve the pain? I am nervous to go to the doctor tomorrow Im only 32 & this has been going on sinse I was 28 never knew about this really just freaking out now!!!

When you first notice mild tenderness or a small lump, use warm towel compresses to help to drain the gland and cyst and to prevent infection....i suffered from this for 1 yr. nw i practice this...its helpful.

I also have this gland disorder.So very painful,..i found Ice was a way to numb it to get relief for a bit.It didnt last long but enough i could get a little sleep.Im not one to go without panties but i had to with this just a sheet to cover me,and an ice pack on the cyst..im getting ready to go for my 1st visit to obgyn..any advice would be appreciated.Im on blood thinners so im sure that to will be an issue..   thank and good luck

Libby

RE: Bartholin Gland cancer

by sandysdee on Mon May 13, 2013 06:09 PM

Quote | Reply

Hi

I'm new on here ...

I'm 53 and have a mis-shapen mass that reaches from the labia to the anus on the left side.  GP examined it very gingerly and diagnosed a Bartholin cyst; I wasn't happy so went to consultant privately.  He thinks it is a cyst that has 'indurated' (gone hard!); put me on antibiotics and when I see him next week, will biopsy if it's not resolved.

Can anyone tell me, was your 'lump' an odd shape / misshapen / hard, or was it a regular round cyst?

I'd love to hear from anyone else who has this problem, as, given my age, it's worrying me - it doesn't feel right!

Thanks

RE: Bartholin Gland cancer

by funbeadgirl on Tue May 14, 2013 03:53 AM

Quote | Reply

Sorry for your discomfort and worry about this cyst. I had a typical cyst, that just never went away, it became large, swollen, tender and somewhat hard. I used warm compresses to soothe it, and it did come to a head and it popped open one day, it bleed a lot, and had a rather large core of hard pus came out. Then foolishly I let it go, but it never healed up, I let it go for many months because I was 'busy'. Well let me tell you, it was cancer, a very rare vulvar cancer and now I really am 'busy' with doctor appointments, 8 surgeries, and many treatments. It has comsummed 4 and half years of my life.

Do not let this go, have it biopsied right away. Anything that is irregular in shape, color, etc. or that doesn't heal is a warning sign from your body. It probably is not cancer but if you have a biopsy it will put your mind to rest.

I was 55 when I was diagnosed and am 60 now, it has been hard but I have gotten through it well and feel pretty good. Hindsight is 20/20. I wish you the best. Take care of yourself.

RE: Bartholin Gland cancer

by sandysdee on Tue May 14, 2013 08:27 AM

Quote | Reply

Hi funbeadgirl

Thank you so much for your reply and I'm so sorry to hear what you're going through.  How is it going and what do your doctors say?

Yes, I am worried - this is hard and feels fixed to the bone/muscle underneath - it's about the size of my index finger.  Given that I'm postmenopausal I am more worried than my doctors seem to be.  I know googling can worry you silly, but these 3 things together don't sound good at all.

You're right, I will push the consultant to do a biopsy - and thank you for your advice.

I will let you know how I get on.

Again, thanks ever so much for replying.

RE: Bartholin Gland cancer

by jeankchome on Wed May 15, 2013 12:39 AM

Quote | Reply

On May 13, 2013 6:09 PM sandysdee wrote:

Hi

I'm new on here ...

I'm 53 and have a mis-shapen mass that reaches from the labia to the anus on the left side.  GP examined it very gingerly and diagnosed a Bartholin cyst; I wasn't happy so went to consultant privately.  He thinks it is a cyst that has 'indurated' (gone hard!); put me on antibiotics and when I see him next week, will biopsy if it's not resolved.

Can anyone tell me, was your 'lump' an odd shape / misshapen / hard, or was it a regular round cyst?

I'd love to hear from anyone else who has this problem, as, given my age, it's worrying me - it doesn't feel right!

Thanks

DO NOT MESS AROUND, get it checked out more thoroughly.  They were not worried about my swollen bartholin gland and took their time getting me in for surgery to get a drain in it.  After the surgery they discovered it was cancer.  Usually they are a cyst and will pop eventually, bartholin gland cancer is incredibly rare and usually only effects women over 65.  I am only 44 and I have had many surgeries, radiation and chemotherapy so it does occur in younger women.  Mine was really hard, would leak nasty stuff and I had infection after infection.  I was really lucky they told me and it was not attached to the anus and that when they did my surgery they would be able to save my anus and urethra.  It was not round, mine was more egg shape (oval) and had spread to the lymph nodes which I could feel were large and hard in the groin area. I had those removed too.   I hope you get it checked out soon, don't mess around and good luck and let everyone on here know how your test turns out.

RE: Bartholin Gland cancer

by jeankchome on Wed May 15, 2013 12:46 AM

Quote | Reply

On May 12, 2013 5:34 PM trouble3906 wrote:

On Jun 13, 2012 6:10 AM datta.tuli "" target="_blank" rel="nofollow">http://datta.tuli " target="_blank" rel="nofollow">datta.tuli wrote:

On Sep 30, 2010 5:02 AM TaraE. wrote:

I am new to all this about 4 years ago the left side of my vagina got really swollen & hard it was extremly painfull I was to scared to go to the doctor & to this day I still have not gone I have had this happen to me every year sometimes twice a year I am gonna go to the doctor tomorrow but I am so scared to find out I may have cancer! I was so embarassed to tell anyone I had a large growth in that area. does anyone know how to relieve the pain? I am nervous to go to the doctor tomorrow Im only 32 & this has been going on sinse I was 28 never knew about this really just freaking out now!!!

When you first notice mild tenderness or a small lump, use warm towel compresses to help to drain the gland and cyst and to prevent infection....i suffered from this for 1 yr. nw i practice this...its helpful.

I also have this gland disorder.So "" target="_blank" rel="nofollow">http://disorder.So " target="_blank" rel="nofollow">disorder.So very painful,..i found Ice was a way to numb it to get relief for a bit.It "" target="_blank" rel="nofollow">http://bit.It " target="_blank" rel="nofollow">bit.It didnt last long but enough i could get a little sleep.Im "" target="_blank" rel="nofollow">http://sleep.Im " target="_blank" rel="nofollow">sleep.Im not one to go without panties but i had to with this just a sheet to cover me,and an ice pack on the cyst..im getting ready to go for my 1st visit to obgyn..any advice would be appreciated.Im "" target="_blank" rel="nofollow">http://appreciated.Im " target="_blank" rel="nofollow">appreciated.Im on blood thinners so im sure that to will be an issue..   thank and good luck

Libby

Don't take any risks and get it check out.  I have had bartholin gland cancer.  It is very rare and usually only effects women over 65 years of age.  Chances of yours being cancer is really slim.  Of all the many, many doctors I have seen my Gynecologist Oncologist has been practicing for over 30 years and I was only her 4th case, my other oncologist also practicing for over 30 years I was only his 2nd case.  They can put a special drain in it called a word catheter to drain it.  Good luck and get it checked out and get a biopsy to be sure.

RE: Bartholin Gland cancer

by sandysdee on Wed May 15, 2013 10:15 AM

Quote | Reply

On May 15, 2013 12:39 AM jeankchome wrote:

On May 13, 2013 6:09 PM sandysdee wrote:

Hi

I'm new on here ...

I'm 53 and have a mis-shapen mass that reaches from the labia to the anus on the left side.  GP examined it very gingerly and diagnosed a Bartholin cyst; I wasn't happy so went to consultant privately.  He thinks it is a cyst that has 'indurated' (gone hard!); put me on antibiotics and when I see him next week, will biopsy if it's not resolved.

Can anyone tell me, was your 'lump' an odd shape / misshapen / hard, or was it a regular round cyst?

I'd love to hear from anyone else who has this problem, as, given my age, it's worrying me - it doesn't feel right!

Thanks

DO NOT MESS AROUND, get it checked out more thoroughly.  They were not worried about my swollen bartholin gland and took their time getting me in for surgery to get a drain in it.  After the surgery they discovered it was cancer.  Usually they are a cyst and will pop eventually, bartholin gland cancer is incredibly rare and usually only effects women over 65.  I am only 44 and I have had many surgeries, radiation and chemotherapy so it does occur in younger women.  Mine was really hard, would leak nasty stuff and I had infection after infection.  I was really lucky they told me and it was not attached to the anus and that when they did my surgery they would be able to save my anus and urethra.  It was not round, mine was more egg shape (oval) and had spread to the lymph nodes which I could feel were large and hard in the groin area. I had those removed too.   I hope you get it checked out soon, don't mess around and good luck and let everyone on here know how your test turns out.

Hi Jeankchome

Thank you so much for your reply, I do appreciate it after what you've been through.

It really does help to hear from others as, although I am due to see the consultant next week, it helps to clarify what I need to ask him.

This isn't a round cyst (which I would have worried less about), it's sort of cigar-shaped, hard, and seems to be attached.

Again, thank you so much for replying - and I certainly will post when I've seen the consultant.

RE: Bartholin Gland cancer

by funbeadgirl on Fri May 17, 2013 03:36 PM

Quote | Reply

I am so glad you are going to push for a biopsy, if that doctor won't do it, then go to another doctor for a second opinion, it really is in your best interest and you have every right to ask for that. A good doctor would welcome a second opinion, the way I look at it is that I am a consumer buying a service, and the doctors are selling a service, in any other aspect of life if you are not happy you go to someone else. It will relieve your anxiety and if there is something serious wrong, well, then the sooner the better to get started!

I am doing fine, I am having another surgery on my leg in June , they are doing a bone graft because the bone hasn't healed from original surgery in 2011 and I am basically walking around on a broken leg, good thing I have a rod in my femur! FOr now I just take it easy, I have constant pain and am not able to do too much.

My oncologist says I can live with the cancer, I am considered stage 4, incurable, but it doesn't mean I am dieing, it just means that they are no longer trying to 'cure' me, they know that I will have more recurrences, now they will try to manage them the best they can. When I finished chemo last year, I had PET scan 6 months later and I already had another tumor in another bone, so it was not good news. I could not have surgery because it was too risky and I wasn't recovered from the leg surgery I had to have 4 weeks after chemo to put the rod in my leg. My first metastes was in my femur and they removed that tumor in 2011, I had radiation and then the chemo, my poor body just hasn't been able to really recover from any of it.

If I only focus on my health I get very sad, so I focus on the fact that I am still here and can enjoy life, even though I have limitations. I have it much better than some people do...I count my blessings. AND I have a new grandbaby coming at the end of October! I don't waste time thinking about what was, I think about what is.

Please let us know how things go for you, I hope you are able to get this resolved without too much trauma to your body.

Don't forget to enjoy the life you have!

RE: Bartholin Gland cancer

by flashgorski on Sat Jan 11, 2014 02:48 AM

Quote | Reply

On Oct 18, 2012 11:10 PM jeankchome wrote:

Your story is amazing.  I was recently diagnosed with Bartholin Cancer and of the Lymph Nodes.  First thing the specialist wanted to do was a Radical Vulvectomy, I looked it up anc cancelled the surgery.  I am scared to death what the next doctor is going to tell me when I go to get a second opinion.  The surgery sounds like a nightmare and I can not find that alot of people with this cancer had such a radical surgery.  Hope you are better.

Did you ever get that surgery?

RE: Bartholin Gland cancer

by funbeadgirl on Sat Jan 11, 2014 03:17 AM

Quote | Reply
I did have my third leg surgery June 25th 2013, it was a success and I now have new bone growth, it will take a year or more for it to fill in completely, but it am walking very well now. Unfortunately in October I had another recurrence and had another surgery, and now another PET scan coming up in February, so I have a little scanxiety until I get results. But all in all I am doing very well and very grateful for the life I have. As far as the radical vulvectomy..I had a partial radical vulvectomy at my original diagnosis, I did not find it to be horribly difficult to endure. It was hard at first, of course uncomfortable, and there have been long term psychological issues I have dealt with, but I am still here and able to enjoy my grandchildren. If you trust your doctor, you would be fine. Ask many questions and tell them how you feel and the fear you feel. Vulvectomy is usually done to remove cancerous tissue and get clear margins so it doesn't spread to surrounding tissue. I have been through a lot, 12 surgeries, radiation twice,six cycles of chemo, and the countless stabs of needles and scans, MRI and all that goes along with living with cancer. I would do it all over again the same way. I hope you are doing well, remember to be strong and stand firm in the face of whatever you have in front of you.
24 Posts | Page(s): Prev 1 2 3  Next 
Subscribe to this message board discussion

Latest Messages

View More

CancerCompass Survey

If you were considering traveling for cancer treatment, which headline would you find more interesting?

Get $75 for taking a research survey

We care about your feedback. Let us know how we can improve your CancerCompass experience.