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Astrocytoma tumor in the brain

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Subject: Astrocytoma
Date: 10/07/2004
Becky how are you doing. I hope your mom is doing good. My cancer was (see how I said was) by my left ear. The docters said if I could look in my left ear that the main tumor was about one half inch in.I know it is tough to get the bad news but you can not give up. Keep you and your mother thinking positive. I know just as well as any other cancer victom that you are on barold time. You just have to make the best of it and keep thinking positive. I can not remember the hospital in California but there is a Dr Black and a Dr Yu that are looking for people with brain cancer to get into exparimental treatments. Well I am tired and ready for bed so until net time keep the faith and god bless you and your mother. I hope when I hear from you that it is good news. Ed from Bullhead.
Patient
Patient
Alliesmommy
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Subject: Information
Date: 10/20/2004
I am a 23y/o female and was diagnosed with a brain tumor a month ago. Biopsy revealed a Grade 2 diffuse fibrillary Astrocytoma. The neurosurgeon discourages surgical removal until I become more symptomatic and discourages radiation unless it progresses into a higher grade tumor. Any information out there? I would appreciate any input at this point and I am here if anyone needs to talk.

Thanks and good luck to all
Subject: Hi
Date: 11/07/2004
We found out that my dad was sick just last September. We were all shaken when we discovered that he's got cancer. It was last month when his doctor told us my dad's got cancer. High grade astrocytoma...I don't know exactly what it is but we know it's something really serious. It's weird how these kinds of things come by but one truth I'm holding...there's no trial that God will give us if He knows we can't handle it. Even if your husband's doctor told you he's got a year to live, don't lose hope. God has a reason. I'm even advising you to to hold on and don't lose hope. God is the only one who knows our destiny. Only He can tell when we are to die. And if even what the doctor told you is right, don't lose faith. He was just being reborn in another life...where eternal happiness exists. Hope we could be friends...
Subject: Cancer
Date: 11/17/2004
Hi, You are so right to believe that God does have your day. When he needs you to do something for him his calling is not to be up to you. The only thing you can do is live life to the fullest and be greatful for everyday you are here. He has a day and time when it is your time to come forth and to do something that he has for you to do. But in the mean time sick or heathty enjoy and thank the lord for every time you wake up and enjoy another day of living. I know I do. I was diagnosed with astroytoma stage 3 two and one half years ago. The doctors gave me 6 months to a year. Well I did not give up. I have written letters earlier in this chat room and if you go back and read the messages to the other people you will see what I have been doing to beat it. My last MRI 2 months ago gave me the best news I could ever had herd. I am cancer free. I beat the killer. I hope with all my heart that no matter what the doctors say........DO NOT GIVE UP. Like you said GOD has your number, well enjoy it to the fullest because he might change his mund for some reason or another. TO ALL KEEP FIGHTING AND GOD BLESS Ed from BHC, AZ going on 3v years and I beat the crap. BYE
Subject: Mohawk
Date: 08/05/2005
Almost afraid to ask...can you give any results?
Subject: Mohawk
Date: 08/07/2005
To Garland, My mohawk did not have any medical effect on my cancer, which was aniplactic astocytoma stage 3 brain cancer, but it did give me humor and help to think positive to fight it. I was in the treatment of chemo and radiation when I started to lose my hair on my left side of my head when I came up with the idea to have some fun with my battle. So I went to hair cutters and told the girl to mohawk mt hair. Well she new what I was going through and she cut my hair and she says you want to have a little more fun and I said sure. She then gets some hair color and made it red, green, orange, blue and yellow. Well my wife and I liked so much we went to a beauty store and got the dye and the colors in which my wife did my hair about every month and a half. You could not believe the response I got from people when I went to stores shopping. Some were good and a few people were just rudd. But I would just reply to there remarks about my situation and I would just imparis them when I would ask them if they knew what astocytome stage 3 was and they would just run out of the store. I know do it every year on my aniversery just to show that I am still fighting it. SO if you are going through the same think and want to bust your moral try it. If you want to see the pictures email me and I will try to send them. I hope this answers your question. I was givien 6 to 12 months to live and I just celibrated my 3rd year. Never give up hope. Thank you for your time ed from bullhead, arizona.
Subject: Mohawk
Date: 08/07/2005
Ed...thanx for the reply...I was almost afraid to ask because I didn't know if you would still be around!

How has your quality of life been for those 3 years?

I'm semi-miserable most of the time on the steroids and I'm all puffy and swelled and not very comfortable. can't seem to get a good nights sleep. I've made it past the 3-6 months "they" gave me and I just finished my 3rd round of chemo/temodar without a hitch.

Gene P.
Subject: to Garland From ed
Date: 08/13/2005
Well I am glad you replied. I am doing just fine. Like I said I am thankfull for each day I am here. I noticed that you are taking Temedar. I to took that for 2 and one half years. I had a battle with it but the doctor put me onanzemet 100 mg per day and they helped me with the temedar.I tried the first anti puke pill and it did not do anything for me. Well I went to the doctor and told him if he could not get anything better I wanted to get pot to smoke while taking temedar. He put me on anzemet and it really helped. There were some days I had trouble with but not like the first stuff he had me take. So if your anti puck pill is not working tell them.My life really has not changed except they said I will never return to work but I find enough to keep me active. I pretty much living my life like I was before I was diagnosed except if I feel something funny going on in my head I keep watch on it just in case. My older sister who was diagnosed with astrocytoma stage 4 went through surgure 12 years ago. She went into remission for about 2 months after the surgury but it came back so agressively that there was nothing they could do. The doctors called it fingers which just spread so fast that there is nothing they can do except just giving her medication to help with her final days. well that was 12 years ago and at that time they did not have the teck they have now.Like I said you have to have faith in your medication and your doctors plus have a positive additude. Keep in touch and god bless you. keep fighting. ed from bullhead
Subject: Grade 4 Astrocytoma
Date: 08/29/2005
Hi, my name is Sandra and my husband's name is Robert. My husband was diagnosed with a grade 3 astrocytoma in June 03. He had an emergency surgery and was on radiation and chemo. He did very well for 14 months while on Temodar, but when he when back to the doctor for a repeat mri, they found that the tumor had grown significantly and is now a grade 4. He just had his 2nd operation in July 05 and is now doing chemo while awaiting this new trial. I am so glad that I have had this chance to read your wonderful story. Keep your positive attitude! You and your family are in my prayers. Sandra(Rob's wife)
Subject: Astocytoma
Date: 02/25/2006
Hey Ed from Bullhead! What a awesome person you must be. Thank you for all of the encouragement. I just found this site this wkend. Mr brother (59) was dioagnosed in December with stage 3 astrocytoma. He just finished chemo and is completing the 35 days of radiation (has two more to go). It's been a nightmare as he just collapsed with a seizure end of Oct. He was physically and mentally exhausted and ready to bail out. But the past two days, thanks be to God, I consider incredible blessings. He's not as depressed, stopped to see friends on his way back from radiation , and even made it to church!!!
We are so hopeful and grateful for the glimmer of hope. We pray a lot and will continue to do so. If you don't mind, I'll add your intentions and those of this group to my prayers.
Thank You!
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