Looking For People With Stage Four Lymphoma

Hello, my name is Cyndi and I was told in Sept. 1999 that I have Lymphoma. I'm looking for someone who has been thru some of the new treatments they have out. One of the treatments I am interested in is Zevalin. Sometimes I feel like no one is out there. I have follicular small cleaved cell lymphoma, stage four. Just looking for someone to talk to that has the same type of cancer.

Hello Cyndi, I know you posted this message a while back. I was wondering how you are doing and what kind of treatment you received? My husband was diagnosed with Non Hodgkins Stage 4 Follicular Lymphoma. He went through 6 months of CHOP Chemotherapy and then Interferon. He was in remission for 14 months and now has relapsed. I am just devastated. He just got results back from a neck biopsy they removed 5 lymph nodes and it shows Stage 1 Lymphoma. He goes in for a Bone Marrow Biopsy next Tuesday and they are maybe looking towards a bone marrow transplant. I hope you are doing well and would like to know how you are doing. God Bless You

Hi Cyndi and Eda,
I was diagnosed with follicular lymphoma stage 4 january of 2002, went through 7 cycles of the RCHOP treatments and at the present in remission. I was 39 when I was diagnosed.
You aren't alone out there Cyndi, I am a member of another wonderful discussion board that's located at this address http://www.leukemia-lymphoma.org. Just click on discussion board and it will take you to the postings, there's a lot of people there from all over that have the same disease and we share lots, fears, treatment stories and we are all one big happy family. You would be welcomed with open arms, so if you read this and have time come and join us. You too Eda, the more the merrier...
Take care and remember you aren't alone out there.
Sonja

Hi Cyndi K.
My name is Sandy, I was also diagnosed with stage 4 small cell follicular lymphoma in Sept. 2000. I was sent home to heal up from the surgery, then was sent to an oncoligst. Before I went to see him I started a regiment of taking liquid minerals and vitamins. I also found a product called MGN-3. I took all of this stuff to build up my immune system, which is VERY important for anyone with cancer. When I had my CT scan in Dec. of 2000 my nodes had all shrunk and continued to shrink to this day. I now see doc. every 6 months and have scan once a year. Worth a try?????

Hi Sandi
My Mother has been diagnosed with NHL. Her cancer is follicular. The cancer is in her lymph nodes in her neck, chest, and under arm. It has also been found in her bone marrow which moves it to stage 4. We have seen a doctor and his recomindation is to watch & wait with a scan every 2 months. If cancer progresses they will start her treatment with Rituxin. I want to keep her imune system as healthy as possible and thought of vitamins. What liquid minerals and vitamins are you taking? My mother is 67 and she really has no symptoms of her cancer except fatigue in the afternoons. They did find 3 blood clots and is taking a blood thinner. I would appreciate any info on the minerals and vitamins.
Thank you.

Hi Cyndi, just was dx. with stage 4 follicular lymphoma. Never heard of it and am interested in hearg more about it. Im 53 yrs old and well would just like to share with someone in same boat. God Bless Carla

Hi Lynd adams, Im 53 yrs old and was recently Dx. with follicular lymphoma stage 4. Ity is a wait and see type situation. Much like you mothers. Would like to share . Please contact me . God Bless you and yours. Carla

Hi Eda B, hope your husbanmd is better by now. Was recently Dx. with stage 4 follicular lymphoma. Im 53 trs old and would like to chat with someone in similar situation. God Bless Carla

Hi SandySue, I was recently Dx. with follicular lyphoma stage 4. Would appreciate more information on the vitamins you said helped. God Bless Carla

Hi Lynn, As I was reading your message I felt as if I was the one
writing it. My mother has the same diagnosis as your mother with
the exception of the underarm. My mom is 65 and has also been
recommended to watch and wait. I was wondering how your
mother is doing, since I noticed this message is more than a year
old. I too want to keep her immune system as healthy as
possible. Any advice you can give me I would truly appreciate it.