Small trial suggests the scans might help, but experts aren't so sure
by sherlaud on Sat May 01, 2010 01:34 AM
I just had a chemo port placed under the skin up close to my collarbone. It is very painful, red, bruised and bumps out quite a ways from the skin - you can definitely "see" it!! I realize this is just the 2nd day, but has anyone ever had a port like this, or any strange reaction?? All I can think of is this has to stay in for 4 months - it sure better get "better" then it is now!! Does it hurt when the IV line for the chemo is put into the port??? Sure could use some input on these "ports"!! Thanks.........
by joeys_mom on Sat May 01, 2010 01:48 AM
Hi I am sabine.. i also had a port put in ..and you can see it ..well at least that is what i think.. but nothing like red or bumps ..you might want to have that checked out with the doctor.. because i had a friend they had to remove her port because it got all infected... i don;t know how it feels with the chemo because I am doing only hormon therapy right now.. because i have estrogen recepter positve breast cancer.. ..but my son had one too and he did not complain about it ..it did not hurt him I remember he said it was just kind of cold going in..i have to have my port flushed every 4 weeks and it does nnot hure..'but please have the port checked out it can get really infected..
by tongrenhealer on Sat May 01, 2010 02:30 AM
My husband has a port. It should get better, but it's like a surgical procedure to put one in so it takes a few days before it becomes less painful. His bumps out some, and always has. Some people have something they rub on them ahead of time that numbs it, but husband says it's just like a little poke. Much easier than having iv's threaded all the time, easier on the blood vessels, easier on the psyche. The people that work on you are generally pretty experienced. I've seen nurses who could access his port so fast I missed it blinking. You'll get used to it once it heals, and probably appreciate it.
by gjam4957 on Sun May 02, 2010 10:10 PM
On May 01, 2010 1:34 AM sherlaud wrote: I just had a chemo port placed under the skin up close to my collarbone. It is very painful, red, bruised and bumps out quite a ways from the skin - you can definitely "see" it!! I realize this is just the 2nd day, but has anyone ever had a port like this, or any strange reaction?? All I can think of is this has to stay in for 4 months - it sure better get "better" then it is now!! Does it hurt when the IV line for the chemo is put into the port??? Sure could use some input on these "ports"!! Thanks.........
On May 01, 2010 1:34 AM sherlaud wrote:
Hi. I had a port inserted about 6 weeks ago, and due to complications with my diagnosis I only started chemo for breast cancer 12 days ago. All ports protrude under the skin. This is normal. My scar was red and bumpy for about a month but is settling now. The site itself was quite painful for about 7 - 10 days but is also good now and only a bit sensitive when bumped or rubbed (bra straps are a bit of a problem!). Accessing the port for treatment is just a quick prick, nothing to be concerned about, and much much much better than having an IV in your arm or hand. All the best.. Gail
by nancyo on Sat May 08, 2010 03:05 PM
My husband had a port put in a couple of months ago. It was an easy surgery and all went well for 2 rounds of chemo. Last week he was scheduled for a CT and we noticed a spot that looked infected. Sure enough, it was and had to be removed yesterday. Because of his type of chemo, they will put another in in a couple of weeks. My advice is to keep a good watch on it. It is going to be red, but if it changes at all or if you get a fever or shakey, call your doctor. It is so much easier than an IV each time, and if you ask they will freeze or numb the spot and you won't feel them access it at all. Good luck, stay positive.
by jmbooker on Mon May 17, 2010 06:27 PM
Hi, mom mother has a chemo port in place, she's being treated for breast cancer. She had complications with the first port (very painful and protruded), so it had to be removed. The fluid around the port appeared "cloudy" according to her surgeon, so he tested it for infection and fortunately the test were negative. She had her second one inserted a week ago and her second chemo treatment on Fri. This port seems to be fine, she is experiencing side effects of stomach cramps and nausea from the chemo.
Hope this helps and my advice would be to be proactive if you think something is not right with your port. No one knows your body as well as you do.
by kathiejo on Sun May 23, 2010 09:59 PM
Accessing the port isn't as bad as you might be thinking, but they can give you a numbing cream to put on it an hour or two before your trmt. I had the first one without it and noticed a real difference on the following sticks
You could really see mine too and the seat belt rubbed on it while driving - I got one of those devices where you can make the belt a little looser and it made a big difference.
Thoughts and prayers to you as you begin chemo - with all the meds they give you, it too won't be as bad as you might imagine.
by SondraB on Mon May 24, 2010 08:18 AM
I am new to this site, but I still have my port in, had to take Herceptin everyweek for a year after the chemo drugs. It takes some getting used to, it will settle in and be less of an albatros LOL :). The swelling and pain will go away and you will barly know it's there unless you touch it of course. But it does not hurt when they access it, no more than a prick in the finger. It will take some getting used to at night, especially if you like to sleep on your side. My Doctor also will not do lab draws from it, even though some do. That way it is less chance of an infection. But if your veins are bad, they may do them thru the port. I've seen the alturnatives, You made a wise choice having the port put in :)
Hope this helps :) Sondra
by SondraB on Mon May 24, 2010 08:20 AM
Sorry...I'm so new to this site, I didn't relize your question was over a month ago. So you already know everything I said. :)
by ebonyjwriter on Thu Jun 10, 2010 03:42 PM
It is the kind of port I have and yes it is a nuisance but it doesn't hurt all the time. Takes some getting used to but after a while the only time you'll notice it is when you're getting dressed. Now the needle prick was a little painful, more than getting blood drawn, but more like getting a shot. I didn't get any weird side effects just some initial bruising. Mine has been in for 7 months. I have to keep it in until after I finish radiation which means - even though there is no more chemo I still have to go have it flushed once per month.
It's like getting a shot. Not bad at all. One friend of mine said after a while she forgot hers was there, well I NEVER forget, but it doesn't hurt. I can even feel it when I move sometimes but it's more annoying to look at and know it's there than anything. It took about a month for it to start to fade into the background but it never went away. You'll be fine.
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