One patient with glioblastoma still alive nine years later
by lovliving on Sun May 02, 2010 11:30 AM
Well its hard to believe but 15 months have passed since my surgery from stage 3 EC. My scan was clean ( thank God ) He has blessed me in so many ways since my dx. I pray for all of you on this site daily. I think its good to post the positive and give hope that you can beat this cancer and live life again. Bill
by andy2009 on Sun May 02, 2010 02:21 PM
hi lovliving - congrats on a clean scan. you keep having clean scans and i will be right behind you. yeah it is good to be alive.
by pipernickel on Sun May 02, 2010 03:55 PM
I am so glad to hear your good news.
by MariaL on Sun May 02, 2010 05:20 PM
Congratulations on your 15-month clean scan. My husband is now at 25 months post surgery for Stage 3 EC. I couldn't agree with you more that its good to post the positive. When my husband was first diagnosed back in March 2008, I made it a point to find and read through all of the positive posts on this message board to ease my fear.
by cjmac49 on Sun May 02, 2010 05:27 PM
Great news. Keep going. Many more scans NED.
by tongrenhealer on Sun May 02, 2010 05:30 PM
When things are going well, people often don't want to be reminded of the cancer fight. They go back to living their busy lives and leave the boards behind. It is important for the people fighting to hear the positive stories to maintain hope in the battle. Thanks for sharing your good news.
Pat doesn't read the boards, but we talk about it and he knows who people are and what they are facing at any given point in time. I often feel nervous when people come out from surgery and start back to life as if nothing has happened. He reminded me yesterday that our oncologist told him near the beginning that the people who she sees making it are the ones who really make changes in their lives once they are well. Of course there are always exceptions, but I thought I would pass that on since I had all but forgotten her saying it.
by andy2009 on Sun May 02, 2010 06:50 PM
hi tongrenhealer - what "changes in their lives" is Pat's oncologists thinking about? some things we can't help it like being prop up on a wedge pillow or eating less but more often, or having to take medication, what other changes are we talking about?
by Phil_A on Sun May 02, 2010 07:28 PM
Bill congatulations on your clean scan and I wish you the best in staying NED. I agree with tongrenhealer that changes are made by everyone dealing with EC and I take it one day at a time. I know that EC recurrance is high by all stats that are available but one must keep a positive attitude like I told a close friend named Evelyn when she started her journey in this dreaded disease that took her. I feel eating well, good checkup, medications and faith are all we can do and god will do the rest. Again, Bill go out and enjoy you great results. Phil A.
by drn56 on Sun May 02, 2010 08:10 PM
I also was diagnosed as Stage 3 and am currently 29 months post surgery. I had a clean scan also a couple of weeks ago and am glad to hear of your good news too. My oncologist was very encouraging at this point and I feel like maybe everything will turn out ok, but I will keep praying just to be on the safe side.
by paysongeorgi on Sun May 02, 2010 09:55 PM
Glad to hear the good news. Always glad to hear the good news!!!!
Hoping for clean scans from now on out!
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