I am sorry to hear you have colon cancer. I do know two people that have had colon cancer, one did not have treatment and died quickly after. My mom was diagnosed with reoccuring colon cancer in her liver. She no longer had colon cancer in her colon but three years later, it was in her liver. My advise to you is to get chemo. No, I have not gone through it, but my mom has and the only thing that is truly bothering her is the neuropathy, but unless you have a mets tumor you most likely will not her this because it was caused from oxiplatin. My mom continued to go to work throughout her chemo. She is a fighter and has had an amazing quality of life.
I completely understand when you say you want QUALity of life, not quantity. My uncle died of a brain tumor two years ago, glioblastoma. He did not want treatment and lived an amazing life for 4 months after diagnosis. He said it was the most difficult decision ever, but he wanted to spend every moment enjoying life.
His cancer was very different than my moms. She has the chance to fight and she is fighting. Is it a piece of cake? No, judging from her fatigue its not but is it tolerable absolutely. I am so proud of my mom, she is 54 years old and still full of life.
She had 6 months of the 5folfox (?) and then started radiation 4 weeks ago. She remains strong, takes her vitamins, eats healthy organiz foods and takes green tea, EGCG, pills. Many people believe in a wide variety of things but when it comes down to it you have to do what your heart tells you. I wanted my uncle to fight but it was HIS decision and that was the hardest to accept but he lived a happy life (died one month after his 50th birthday) and was able to tell his family he loved them.
As far as CEA levels go, don't count on them. They can or can not be accurate. What do the PET scans show?
Also, three years ago they told me mom she had stage 1 colon cancer, after surgery they said they 'got it all.' What they failed to mention is that 65% of people have it reoccur in their lungs or liver within three years. I wish my mom would have been offered chemo. Would it have helped? I don't know but I think it would have been worth the chance.
Do your research...not just on the internet also. Look for credible sources such as medical journals.
Talk with your doc and please get more than one opinion even if you are comfortable, it does not hurt anyone.
When it comes down to it, you have much more life to live and you deserve every moment life has to offer. I wish the best for you.
Jaime