bad rectal pain after colostomy reversal

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RE: bad rectal pain after colostomy reversal

by missann on Tue Oct 18, 2011 12:57 AM

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i have a sister in law that has FAP .she had surgery 2 years ago to remove her colon. Her doctors left 4 inches of her colon in to be reatached at a later time. She started discharging blood and a foul smell. She doesnt have insurance so she waited a week before going to er. Finally decided to go to the er she has test done and they came back to her room and  told us she has 2 tumors and they are cancer.The tumors are so large that it has her kidney shut off.they are going back in on thursday to remove the tumors.I can not  find any information on here .has anyone heard of someone with this same problem?

RE: bad rectal pain after colostomy reversal

by Smcghee333 on Sun Mar 11, 2012 03:33 PM

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I feel your pain, i am also in the process of twisting my surgeon's arm to put my bag back on.  I am constantly in the bathroom, my buttock stay raw because of all the wiping!  I was diagnosed w/Satge 3 Colorectal Cancer, August 2010.  I had a ileostomy take down, May 6, 2011 and its been difficult every since my bag has been off.  I go to the bathroom 15-20 times a day.  My Surgeon put me on lomitol and Imodium A-D to slow down my digestive system.  The medicine causes my stool to lock-up for 2-3 days and my back and stomach to hurt when I cannot realease my bowels until the medicine wears off; than its back to square one (contantly on the toilet)........ But,all my worries are over this week as I will be preparing for Colostomy reversal surgery!!! (Yeah)!!! 

I Pray you will also, get the help you need!

RE: bad rectal pain after colostomy reversal

by idontcare on Sun Mar 11, 2012 11:02 PM

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i one month ago had my reversal i am having problems having a bowel movement doctor stated rectum like a small straw alot of pain with each movement  i had rectal cancer but no chemo or radiation but now     very small  rectum doctor    said  can stretch will i then be able to hold stool

RE: bad rectal pain after colostomy reversal

by AlexW on Mon Apr 30, 2012 07:34 AM

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On May 14, 2010 5:14 PM justkay wrote:

About 2 years ago I had a colostomy reversal. It was an end colostomy and I had half my rectun removed. The doctors joined me back together using stitches and surgical staples.

I have to be careful what I eat and should avoid foods with skins and indigestible or stringy flesh coz they can really bung me up. The scar tissue in my rectum has thickened and hardened and I have slight radiation burns to the inside of my rectum I now wish I had kept the bag as I go through phases when I get constipated and then get fecal impaction which leads to excruciating rectal pain.

I take all sorts of things to keep me regular such as Fybogel, Movicol, enemas, suppositories and have just got some pain killing ointment.

 

I have discussed all this with my consultant and said I am thinking I would like my bag back! But he is not too keen on doing this. He was not too keen on reversing it in the first place so he will probably change his mind this time too if I ask often enough! He says I would have to be reall really bad to want to have the colostomy bag put back. I do feel really really bad! I dont want to spend the rest of my life living in the toilet! I feel my life revolves around toilets.

Has anyone else had a colostomy/ileostomy reversal and then wishes they hadnt?

I had an ileostomy reversal just over two years ago and my story seems to be similar to yours. I go through cycles of constipation then Diarrhea and all sorts of pain spread across my buttocks that stirs up the damage done to my tail bone by radiation treatment and a leakage i had from the join of the colon to what remains of my rectum (approx 2cm) I know that pain you describe very well. My Surgeon is also reluctant to do a reversal and give me back a bag. But my life style has been so impacted i can only work from home and can only leave the house on my good days.

My best regards go to you and i hope you find a solution soon. 

RE: bad rectal pain after colostomy reversal

by patches3 on Wed May 23, 2012 06:35 AM

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I had a reversal done Feb. 2012 after having to wear a colostomy bag for 6 mths. due to a ruptured large intestine.  They had to remove 1/2 of the intestine due to diverticulitis.  My personal opinion is that the reversal was much more painful than the initial colostomy, but its been 3 1/2 mths. since reversal and I am almost completely healed.  I was in the hospital for 5 days after reversal.  They would not release me or give me anything to eat until I passed gas and had a bowel movement.  After 4 days I finally started to hear my stomach rumbling and was able to finally have a bowel movement.  At first, you are gonna "leak" a little bit, but eventually after about 7-10 days I was able to almost toltally control my bowels.  What you need to watch out for after your rev. is you might think your gonna pass gas, but you might actually poop!  So be careful, I can honestly say that I have only done that a few times and I am now able to tell the difference.  Be patient, everything will work out for you.  It just takes time and knowledge.  It was worth it!  Good Luck and feel free to ask me any questions.  Linda

RE: bad rectal pain after colostomy reversal

by jcolicchio on Fri May 25, 2012 03:19 PM

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d a chunk of colon and almost my entire rectum removed in Ocrtober, 2010. Had a temporary ileostomy reversed in January 2011. Then (joy) I had repetetive bouts of C-Diff. That's gone, TG, but I still have to see my surgeon because the scarring keeps shrinking my colon and I have to have it stretched. (My guess is this is basically the same procedure as was used in the Middle Ages.)I

I've experienced many of the symptoms described above and I also have considered going back to the bag. I have a relatively minort incontinence problem but it's the amount of time in the bathroom and the daily pain that get me down.

RE: bad rectal pain after colostomy reversal

by Grama on Tue Jun 26, 2012 09:41 PM

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On May 23, 2012 6:35 AM patches3 wrote:

I had a reversal done Feb. 2012 after having to wear a colostomy bag for 6 mths. due to a ruptured large intestine.  They had to remove 1/2 of the intestine due to diverticulitis.  My personal opinion is that the reversal was much more painful than the initial colostomy, but its been 3 1/2 mths. since reversal and I am almost completely healed.  I was in the hospital for 5 days after reversal.  They would not release me or give me anything to eat until I passed gas and had a bowel movement.  After 4 days I finally started to hear my stomach rumbling and was able to finally have a bowel movement.  At first, you are gonna "leak" a little bit, but eventually after about 7-10 days I was able to almost toltally control my bowels.  What you need to watch out for after your rev. is you might think your gonna pass gas, but you might actually poop!  So be careful, I can honestly say that I have only done that a few times and I am now able to tell the difference.  Be patient, everything will work out for you.  It just takes time and knowledge.  It was worth it!  Good Luck and feel free to ask me any questions.  Linda

Dear Linda,just got home from hospital last week,I spent about 25 day's and finally had to have a conostomy bag put on and part of my colen and rectum had to be removed.I had a follow up visit yesterday and my Dr.thinks I can have the reversal in 3 to 6 months.I am having a very hard time living with this bag and adjusting,I have no energy and my bottom or rectum area is very sore,I am taking all kinds of stuff to make my bowels move but my bag stays constipated and I have to dig to yuk out to get relief. just wanted to know is this normal?Your story gives me hope,thanks for posting...

Linda in Tennessee 

RE: bad rectal pain after colostomy reversal

by vulcanlady on Sun Jul 08, 2012 10:33 PM

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My husband had a reversal 4 weeks ago, and has already made the statement that if he has diarrhea (severely) like this all the time, he would rather have his bag back.  Hasn't left the house since he came home from the hospital.  He will see his surgeon this Wednesday and I am hoping he will be able to do something to give him relief.  

My prayers are with you.

 

 

RE: bad rectal pain after colostomy reversal

by jules3564 on Fri Jan 18, 2013 12:19 AM

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On May 19, 2010 7:16 AM AlexW wrote:

On May 14, 2010 5:14 PM justkay wrote:

About 2 years ago I had a colostomy reversal. It was an end colostomy and I had half my rectun removed. The doctors joined me back together using stitches and surgical staples.

I have to be careful what I eat and should avoid foods with skins and indigestible or stringy flesh coz they can really bung me up. The scar tissue in my rectum has thickened and hardened and I have slight radiation burns to the inside of my rectum I now wish I had kept the bag as I go through phases when I get constipated and then get fecal impaction which leads to excruciating rectal pain.

I take all sorts of things to keep me regular such as Fybogel, Movicol, enemas, suppositories and have just got some pain killing ointment.

 

I have discussed all this with my consultant and said I am thinking I would like my bag back! But he is not too keen on doing this. He was not too keen on reversing it in the first place so he will probably change his mind this time too if I ask often enough! He says I would have to be reall really bad to want to have the colostomy bag put back. I do feel really really bad! I dont want to spend the rest of my life living in the toilet! I feel my life revolves around toilets.

Has anyone else had a colostomy/ileostomy reversal and then wishes they hadnt?

Yeah i am only six months down the track after my reversal but i'm stuck at home, lost my job, have to take Oxycontin and gaberpentin to control pain issues.  I have to really be careful with what i eat, i suffer real agony passing even small stools other side effects such as release of wind without control and the resulting smell have my family staying their distance at times. I'm going to give it another six months and if there is no significant improvement i want my bag back. At least i had some quality of life with the bag and had more control than i have now.

Good Luck Alex

My husband had a reversal of iliostomy bag before thanksgiving of 2012. He has had bad diarrhea since and nothing he eats keeps it away. Most of the time its just water and he screams bloody murder. He has no life at all. Hes constantly on toilet. He takes prescribed meds, straight opium, colostid (supposed to slow down digestive system), Loritabs(for pain), Flomax( to pee). And every anti-diarrhea meds over the counter, metamucil and tums for the acid that comes out of him and nothing works. He only has a short time left on short term disability thru his work and we live in the country and i cant find a job. Imonly a volunteer EMT and dont make hardly any money. We cant afford him to lose his job and hes begging for his bag back. At least he had a life with the bag. Wish the Dr. would have warned him before hand. Dr. told him hed be off work for only 2 to 3 weeks and its january already and no end in sight. Cant stand to hear him cry and scream anymore!  

RE: bad rectal pain after colostomy reversal

by jules3564 on Fri Jan 18, 2013 12:22 AM

Quote | Reply

On Jan 18, 2013 12:19 AM jules3564 wrote:

On May 19, 2010 7:16 AM AlexW wrote:

On May 14, 2010 5:14 PM justkay wrote:

About 2 years ago I had a colostomy reversal. It was an end colostomy and I had half my rectun removed. The doctors joined me back together using stitches and surgical staples.

I have to be careful what I eat and should avoid foods with skins and indigestible or stringy flesh coz they can really bung me up. The scar tissue in my rectum has thickened and hardened and I have slight radiation burns to the inside of my rectum I now wish I had kept the bag as I go through phases when I get constipated and then get fecal impaction which leads to excruciating rectal pain.

I take all sorts of things to keep me regular such as Fybogel, Movicol, enemas, suppositories and have just got some pain killing ointment.

 

I have discussed all this with my consultant and said I am thinking I would like my bag back! But he is not too keen on doing this. He was not too keen on reversing it in the first place so he will probably change his mind this time too if I ask often enough! He says I would have to be reall really bad to want to have the colostomy bag put back. I do feel really really bad! I dont want to spend the rest of my life living in the toilet! I feel my life revolves around toilets.

Has anyone else had a colostomy/ileostomy reversal and then wishes they hadnt?

Yeah i am only six months down the track after my reversal but i'm stuck at home, lost my job, have to take Oxycontin and gaberpentin to control pain issues.  I have to really be careful with what i eat, i suffer real agony passing even small stools other side effects such as release of wind without control and the resulting smell have my family staying their distance at times. I'm going to give it another six months and if there is no significant improvement i want my bag back. At least i had some quality of life with the bag and had more control than i have now.

Good Luck Alex

My husband had a reversal of iliostomy bag before thanksgiving of 2012. He has had bad diarrhea since and nothing he eats keeps it away. Most of the time its just water and he screams bloody murder. He has no life at all. Hes constantly on toilet. He takes prescribed meds, straight opium, colostid (supposed to slow down digestive system), Loritabs(for pain), Flomax( to pee). And every anti-diarrhea meds over the counter, metamucil and tums for the acid that comes out of him and nothing works. He only has a short time left on short term disability thru his work and we live in the country and i cant find a job. Imonly a volunteer EMT and dont make hardly any money. We cant afford him to lose his job and hes begging for his bag back. At least he had a life with the bag. Wish the Dr. would have warned him before hand. Dr. told him hed be off work for only 2 to 3 weeks and its january already and no end in sight. Cant stand to hear him cry and scream anymore!  

By the way he had colonrectal cancer and had chemo and radiation. Julie

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