Under-tongue ulcers from rubbing against teeth?

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Under-tongue ulcers from rubbing against teeth?

by lovingspouse4 on Mon May 31, 2010 02:40 AM

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Hi All,

Anyone have/had painful ulerations under the tongue that show no sign of healing? Hub had BOT SCC dx 9/09, 3 chemo, 40 rads ended 3/5/10. Obviously the ulcerated areas are caused by his still swollen tongue rubbing against teeth because they are directly opposite those teeth ~ way back in his mouth.

ENT advised going to our dentist and asking for a "dental splint" that will allow the swollen tongue to slide without rubbing over those teeth. I asked for a recommendation for a dentist familiar with mouth radiation/chem issues. He said regular dentist should be able to handle this. Is he right?

He's tried a sports mouthguard to no avail ~ seemed like a good idea.

Anyone have success with a "dental splint" or diet or ANYTHING? I know mouth sores are common, but for how long?

Thanks for any help.

diane

RE: Under-tongue ulcers from rubbing against teeth?

by Julesalso on Mon May 31, 2010 07:50 AM

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Hi Diane

That sounds very uncomfortable for your husband.  Apologies but i cant give you any advise and hope that someone on the board can jump in with something for you.

I was told by my dentist that i have been seeing that most dentists should be familiar and they need to know re radiation to the mouth.  They also stated that I am better of continuing to see them because they are more experienced in this particular area.  So i will continue to get my checkups through them and any cleaning will be done locally.  :)

Julie

RE: Under-tongue ulcers from rubbing against teeth?

by Oudave83 on Mon May 31, 2010 02:33 PM

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On May 31, 2010 2:40 AM lovingspouse4 wrote:

Hi All,

Anyone have/had painful ulerations under the tongue that show no sign of healing? Hub had BOT SCC dx 9/09, 3 chemo, 40 rads ended 3/5/10. Obviously the ulcerated areas are caused by his still swollen tongue rubbing against teeth because they are directly opposite those teeth ~ way back in his mouth.

ENT advised going to our dentist and asking for a "dental splint" that will allow the swollen tongue to slide without rubbing over those teeth. I asked for a recommendation for a dentist familiar with mouth radiation/chem issues. He said regular dentist should be able to handle this. Is he right?

He's tried a sports mouthguard to no avail ~ seemed like a good idea.

Anyone have success with a "dental splint" or diet or ANYTHING? I know mouth sores are common, but for how long?

Thanks for any help.

diane

Hey Di

Happy memorial day 2010-I think good oral surgeons firstly and great dentists secondly can help us head and neckers and these ulcers that won't heal.....splint sounds great...that and I always took Carafate and swished it in my mouth 3 times a day for 1-2 minutes..it is a stomach ulcer medication but we improvised.

......ya gotta experiment with great dentists and oral surgeons and take chances and keep trying..these radiaiton ulcers I assume take  a  long time to heal-that was my personal experience...don't give up..watch for thrush and infection...Enjoy this day of remembrance for we are forever free men and women, even when battling th Big Bully with a small c....

 

Dave

RE: Under-tongue ulcers from rubbing against teeth?

by MEEMERZ on Tue Jun 01, 2010 03:56 AM

Quote | Reply

Diane - Dave is right - just try any and everything you have!  Rob has a really sore spot today under the right side of his tongue.  It looks awful!  He seems to get his mouth cleared up for a few days and then here is comes again.  Hopefully someday he will have a painfree mouth!  Carafate sounds great!  We have that and have not swished it but plan to tell Rob in the a.m.  He is snoozing right now.  : )

God Bless you!

Cheryl   OKC

RE: Under-tongue ulcers from rubbing against teeth?

by Georgenone on Tue Jun 01, 2010 06:21 AM

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Mouth guards and dental splints sound good but will not do much more than cause a sore in a different spot. I cannot comment on Carafate, I know nothing about it. Mouth pain is somewhat a way of life. I've had it more than 2 years with no prospect for an end to it. There are a wide variety of oral rinses that may or may not be of help. Beware of those containing alcohol. Some produce extreme pain!!! Doctor can give you Lidocaine Viscous 2% oral solution, for pain or you can try any of the common sore throat sprays with Lidocaine. They will not end the pain but either will help.

RE: Under-tongue ulcers from rubbing against teeth?

by mulls427 on Tue Jun 01, 2010 01:26 PM

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George is giving good advice. I am 5yrs out and still dealing with mouth pain. The 2% lidocane vicious works well for short term relief. Also a new oral gell from Biotene that I just tried and found soothing especially for the middle of the night wake ups etc. I do not and have not had any problems with ulcers but still have the pain. It's like the nerve endings still need to heal and I am SCC BOT dx 6/05. It has been very frustrating. The Doctors shrug their shoulders and really don't know what to say even the pain specialist. I even tried a course of Accupuncture which was a very pleasant treatment. I do believe it did help the saliva run somewhat better but not enough to matter. We just have to keep searching and praying for more permanent relief. All in all I guess a small price to pay to beat the "Bully with the small c". I have to admit my RO told me he was going to "hurt" me. lolololol:)). Hope I've helped!

Mike "mulls"

RE: Under-tongue ulcers from rubbing against teeth?

by Oudave83 on Tue Jun 01, 2010 01:31 PM

Quote | Reply

Hey Di,

Hope all these great posts give ya a strategy or enough to get ya going in the right direction-keep the faith, have hope and heart as always, and continued love, kindness and graciousness in your heart-and stay persistenttttttttttttttt as always!!!!!!!!!!!!!!!!!!!!!!!!!!!!  We love you guys,

Dave 

RE: Under-tongue ulcers from rubbing against teeth?

by lovingspouse4 on Thu Jun 03, 2010 02:13 AM

Quote | Reply

On May 31, 2010 2:33 PM Oudave83 wrote:

On May 31, 2010 2:40 AM lovingspouse4 wrote:

Hi All,

Anyone have/had painful ulerations under the tongue that show no sign of healing? Hub had BOT SCC dx 9/09, 3 chemo, 40 rads ended 3/5/10. Obviously the ulcerated areas are caused by his still swollen tongue rubbing against teeth because they are directly opposite those teeth ~ way back in his mouth.

ENT advised going to our dentist and asking for a "dental splint" that will allow the swollen tongue to slide without rubbing over those teeth. I asked for a recommendation for a dentist familiar with mouth radiation/chem issues. He said regular dentist should be able to handle this. Is he right?

He's tried a sports mouthguard to no avail ~ seemed like a good idea.

Anyone have success with a "dental splint" or diet or ANYTHING? I know mouth sores are common, but for how long?

Thanks for any help.

diane

Hey Di

Happy memorial day 2010-I think good oral surgeons firstly and great dentists secondly can help us head and neckers and these ulcers that won't heal.....splint sounds great...that and I always took Carafate and swished it in my mouth 3 times a day for 1-2 minutes..it is a stomach ulcer medication but we improvised.

......ya gotta experiment with great dentists and oral surgeons and take chances and keep trying..these radiaiton ulcers I assume take  a  long time to heal-that was my personal experience...don't give up..watch for thrush and infection...Enjoy this day of remembrance for we are forever free men and women, even when battling th Big Bully with a small c....

 

Dave

Thanks, Dave, for your recommendation of the Carafate. Is that prescription only or otc? We're going to our dentist tomorrow. I spoke with him today about the problem and he admitted he hasn't dealt with the exact problem, but would talk to a few oral surgeons and get some suggestions from them. When I asked if we should be going to an oral surgeon, he said that  the oral surgeons would be like our ENT who diagnose the problem, order a remedy, but ask the regular dentist to design/make what would possibly fix the problem. He seemed to understand exactly what is needed though.

Bart just got over thrush, thank God! Our son came over with some powder from GNC to make a shake with over 1000 cal/ 12 oz. Lots of protein and muscle-building ??, which is what Bart needs. That's a lot better than the Boost Plus at 360 per 8 oz. and anything our kids suggest he is open to.

I know these mouth/tongue ulcers are difficult to cure, and thanks for all the advice.

diane 

RE: Under-tongue ulcers from rubbing against teeth?

by lovingspouse4 on Thu Jun 03, 2010 02:24 AM

Quote | Reply

On Jun 01, 2010 6:21 AM Georgenone wrote:

Mouth guards and dental splints sound good but will not do much more than cause a sore in a different spot. I cannot comment on Carafate, I know nothing about it. Mouth pain is somewhat a way of life. I've had it more than 2 years with no prospect for an end to it. There are a wide variety of oral rinses that may or may not be of help. Beware of those containing alcohol. Some produce extreme pain!!! Doctor can give you Lidocaine Viscous 2% oral solution, for pain or you can try any of the common sore throat sprays with Lidocaine. They will not end the pain but either will help.

Thanks George,

Bart's been living on the Lidocaine solution for months now. One of the problems with eating by mouth is that everything tastes horrible. How long does that last?

Did you have personal experience with dental splints? I'd never even heard of them before. Our dentist said he'd check to see if the teeth involved have any rough spots that can be smoothed down also.

It's discouraging to hear that you're still being bothered by pain 2 years out, and Mike is 5 years out and still dealing with pain ~ bummer!

As someone said, dealing with this pain is better than dealing with the cancer again. So, this too shall pass, and we'll be grateful, no matter how long it takes.

diane

 

RE: Under-tongue ulcers from rubbing against teeth?

by brenda40 on Thu Jun 03, 2010 02:30 AM

Quote | Reply

On Jun 03, 2010 2:13 AM lovingspouse4 wrote:

On May 31, 2010 2:33 PM Oudave83 wrote:

On May 31, 2010 2:40 AM lovingspouse4 wrote:

Hi All,

Anyone have/had painful ulerations under the tongue that show no sign of healing? Hub had BOT SCC dx 9/09, 3 chemo, 40 rads ended 3/5/10. Obviously the ulcerated areas are caused by his still swollen tongue rubbing against teeth because they are directly opposite those teeth ~ way back in his mouth.

ENT advised going to our dentist and asking for a "dental splint" that will allow the swollen tongue to slide without rubbing over those teeth. I asked for a recommendation for a dentist familiar with mouth radiation/chem issues. He said regular dentist should be able to handle this. Is he right?

He's tried a sports mouthguard to no avail ~ seemed like a good idea.

Anyone have success with a "dental splint" or diet or ANYTHING? I know mouth sores are common, but for how long?

Thanks for any help.

diane

Hey Di

Happy memorial day 2010-I think good oral surgeons firstly and great dentists secondly can help us head and neckers and these ulcers that won't heal.....splint sounds great...that and I always took Carafate and swished it in my mouth 3 times a day for 1-2 minutes..it is a stomach ulcer medication but we improvised.

......ya gotta experiment with great dentists and oral surgeons and take chances and keep trying..these radiaiton ulcers I assume take  a  long time to heal-that was my personal experience...don't give up..watch for thrush and infection...Enjoy this day of remembrance for we are forever free men and women, even when battling th Big Bully with a small c....

 

Dave

Thanks, Dave, for your recommendation of the Carafate. Is that prescription only or otc? We're going to our dentist tomorrow. I spoke with him today about the problem and he admitted he hasn't dealt with the exact problem, but would talk to a few oral surgeons and get some suggestions from them. When I asked if we should be going to an oral surgeon, he said that  the oral surgeons would be like our ENT who diagnose the problem, order a remedy, but ask the regular dentist to design/make what would possibly fix the problem. He seemed to understand exactly what is needed though.

Bart just got over thrush, thank God! Our son came over with some powder from GNC to make a shake with over 1000 cal/ 12 oz. Lots of protein and muscle-building ??, which is what Bart needs. That's a lot better than the Boost Plus at 360 per 8 oz. and anything our kids suggest he is open to.

I know these mouth/tongue ulcers are difficult to cure, and thanks for all the advice.

diane 

My husband had severe mouth ulcers during and after radiation (H&N).  We used magic mouthwash for temporary relief as well as a new product, Caphosol.  Its a rinse that is in my opinion, a fancy salt water, but it really worked. It is by RX only & is worth a try!   Worked well for my husband.  Good Luck

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