But little research is done on male treatments, expert says
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by xanshope on Tue Aug 05, 2008 12:00 AM
Hi, I'm new here. I had my whipple Jan. 10th 07. It's almost been 20 months and I'm not getting better. I'm still on pain meds and within the last few weeks my pain is getting worse. I also have dumping sydrome, short bowel, ileostomy. Cramping, pressure, bloating. My docs tried me on enzymes which for me made it all worse. Fatigue!!! I'm so frustrated anymore. I was told within a year I'd be better feeling like better than before. I am far from this. I don't understand why I'm feeling worse not better. Within the last 2 weeks I've almost ended up in the ER for gut pain, I just don't understand what is happening. Wondering if anyone else is having this problem. I think my GI doc is getting just as frustrated as I am if that's possible.
by lynchburg on Sun Aug 24, 2008 12:00 AM
My companion of 20 plus years has been diagnosed with tumors (mass) at the top of his pancreas. The doctors at University of Va. are pushing the whipple surgery. I am concerned - especially after readiing the dismal results of this surgery. His statistics are: 80 years old, has pace maker, is diabetic, & has rheumatoid arthritis. He was diagnosed over a year ago. He has some stomach pain. They wanted to do surgery then, but he wanted to wait to see progression. This past year has been good for him -- we took a trip to Mexico, he cuts his grass & also mine. Drives daily, plays cards weekly with friends. Right now he is having a good life & at his age, I feel he shouldn't do this surgery. The medical doctor (this is a research, teaching hospital) & he is also director of pancreatic services, tells me now to ask him questions, about the surgery & he is going to set up appt. with us to talk to surgeon & he can answer questions. I am so confused. I can't advise him what to do & I'm so sad to know his outcome with surgery could be worse than just doing nothing --knowing he will probably die from this. They can't say if it's malignant until they operate, but all of the doctors say it is almost always malignant
Any Advice would be so appreciated..
by Whipple_Survivor on Fri Sep 19, 2008 12:00 AM
I'm new to this site but after reading your story it sounds if the Lord was watching over you. I also had a whipple surgery in 1994, thankfully my was not cancer. After 14 years past the surgery I still have had a few hospital stays, what was left of my pancreous is very scared, so it sometimes it doesn't take much to set it off. Concerning you lack of energy, I was told by a oncologist that I work with that after doing a whipple procedure your insides are rerouted and you can't get iron into your system. I get to where I don't have any energy, headaches, and just can't go. I have had 4 iron infusions due to being anemic, and getting ready to most likely do another one. I hope that you find out whats going on and it will get better
by GA_Woody on Mon Oct 13, 2008 12:00 AM
by Quill on Mon Feb 09, 2009 12:00 AM
On 10/13/2008 G.A. Woody wrote:xanshope, If i didn't know better I would think my mother wrote this letter. My mother has stage one pancreatic cancer and had the whipple procedure on April 25 of this year. Despite a great prognosis she has gone from 139 lbs. all the way to 97 lbs. Finally back up to a whopping 103 lbs. She is sick every day with horrible stomach cramps,and constant bowel problems. As with you her GI is at his wits end and is now sending her back to the surgeon who performed the operation. Her chemo was suspended because she got to weak and thin. We just don't know what the answer is. Her appetite has greatly improved despite the stomach problems , however she never seems to gain weight. The frustration is debilitating on the family, and at times she feels like giving up. Your situations sound remarkably similar, if you gain any new knowledge could you please pass it on to me, and I will do the same.
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