Small Cell Cervical Cancer

Hello Norwegian

Cyber Knife is a form of radiation therapy.  It is more precise and does less damage to surrounding tissue.  They insert "seeds" into the affected area or tumor and then radiate just that area.  It has only been available in the Seattle area about a year.

Dear Vicky,

       Hello, my name is Matt R.. I'm writing you this letter in response to the letter I read on this website.

       This is the first email letter I have written to anyone about the situation that my family is going through, so if I sound a little unsure of my words it's only because I am.  

       I'm very sorry to hear about the passing of your daughter. She sounded very brave in the face of such challenges and I can only hope for the best for her son and the rest of your family.

      My wife, Kathleen(24), was diagnosed with small cell cerival cancer about nine months ago and we are still fighting for her life. This is a fight we know we will win.

       If you would like to write me back I would love to speak with you, if only to share experiences. Again, this is the first email I have written so I don't know if I have to include my address. If I do, here it is:

. If my lack of knowledge about the internet thing brings a smile to your face, then the fourteen hours it took me to type this was worth it.

         Best Wishes, Kathleen and Matt R. 

Try this.  I googled small cell cervical cancer and found this.  Good luck.

http://www.cancercompass.com/message-board/message/all,4853,

Hi,

I hope you grandmother is doing ok. When I first was diagnosed with small celled cervix with matastases, I was told that no one was surviving this illness. I was also told that I propably had a year to live my self, this was january 07, and I am still going strong...

 I have also found some articles about other survivers, and are holding on to this. I don`t have this article any more, but one of the survivers was a corean, I believe, who had metases and survived after chemo, operation and radiation.

 I was at the hospital last week, having an MRI, wich was clean, no metastases! But I will have to remove a cyst, that might contain suspect cells... I don`t know what this means, but hope that it is not my cancer.

 My hope is that someone will come up with a treatment for this illness, soon!

Is there someone out there who knows about anything coming up?

Give my regards to your Grandmother. 

Norwegian

What stage were you? I am so glad to hear you are doing so well!!!! I am Meredith's sister. You can see some of her post on here. We lost her on Nov. 24th 2007. I can not tell you how it breaks my heart for her not to be here, but I know she would be so happy for you!

Take care-

Kerri

I am so sorry to hear about your sister Meredith! I have read her story on this page and was hoping for some better news!

Thank you for your answer. I feel lucky so far! When the matastases was discovered jan. 07, the doctor told me that I was beyond stages... I believe that they had given up on me at that time, and I don`t believe that they had expected me to get this well. Unfortunatly they know this illness better than me, but I hope I will show them...

These days I am still waiting for a date for my operation, and I still don`t know if this is my cancer that is back. I hope not!

 Thank you for caring!

Mona

We're all rooting for you Mona.  I do hope you've got some good news for us all.  I've heard anecdotally that there are more success stories out there but that many cancer patients who beat it want to put the dreadful experience behind them.  As a result they don't always continue to post.  Personally, I like the thought of them all out there getting back on with their lives... I just hope that happens in my family.

Best of luck,

x

Hi, I am here and cancer free.  I was diagnosed with Small Cell Cervial in August 2006.  Stage 3b.  I was 10 months from my last pap which had been clear. I didn't have HPV. The info I could find had all the women having hysterectomies with very little survival rate.  I didn't have one.  I had 9 rounds of chemo(whatever I could handle) and during the course I also did 40 days of external radiation and then 4 treatments of internal radiation. It took 8 months.  I just zapped it the best I could!

They told me my prognosis was bleak.  If I could get rid of the tumor completely the first time around my chances would be better of survivng 6 to 18 months. 

I just went for my last PET CT in april of 2008 and I am still cancer free; now 13 months.  No signs.  None in my lungs, liver or brain.  I have to say that my doctors are much more optimistic since it has been more than a year and the small cell has not returned anywhere else in the body. 

I hope this message finds all the women battling this rare form of CC, healthy and well.  I read through this message board and I want everyone to know that just because they say you may not be able to beat this, they are wrong.  They told me my chances were "slim to none".  I never ever believed them.  I still don't, even if it returns.  I'll beat it.  So can you.  I want to put this behind me as well and the way I did that was to write a book.  It was published on the same day as my one year PET CT.  You have no expiration date.  That's between you and God.  He put these scientists here for us.  Use them wisely.

Three day ago my daughter was diagnosed with SCC. She is going in for a hysterectomy in a couple days. We haven't received the results for the staging yet, but are hoping for the best from what I've read. She's 21 and a very strong kid. Any recommendations for research while going through this tornado? She'll be coming to California and receiving treatment at UCLA and we're hoping this is our best option. Can anyone recommend anything?