Stage IV Bile Duct CA with mets to the Liver

I am so sorry to hear about your brother. I can only imagine how difficult the last month has been for you and your family. My husband is doing pretty well right now and we just got a good CT scan. His tumor shrunk somewhat and there was no new growth so we are really hopeful that the treatments will continue to work. With all of the sad stories out there, though, it's hard not to think about the worst too. Our prayers are with you and your family.

My wife has been diagnosed with stage IV gallbladder cancer. It started with a tumor on her ovary. Surgery was on 4/27/2005. She is on 5FU and Leucovoran with a CT scheduled for 7/27.

I have come to a place where I live one day at a time. So far it is easy because she is still healthy. I will keep you all in my prayers.

Rick

My prayers are with you and your wife. My Dad was diagnosed 3-22-05 with cholangiocarcinoma.
We recently were told he now has mets to the liver. He is receiving Gemcitabine and Carboplatin. His white count has dropped dramatically. He is not eating and losing weight.
He is still driving and functioning independantly. I am inquiring about intrahepatic
chemotherapy. God bless you and your family.This
is an awful disease. I am a nurse and did not know of this. I hear it is quite rare.

hi suzie,
i just read your message and was wondering what information you have recieved so far about cholangiocarcinoma. my mom was diagnosed with it a few weeks ago. unfortunatley its in its last stage...stage 4. i know there are clinical trials for this. can you please send me whatever info you have.
God Bless You and your family, good luck!!
i will be praying for you.

Paulina

Hello Susan,

My father had a good CT scan too. His tumor has
shrunk too, with no new growth. However, he
is very weak and sick all of the time. He seems
to be getting lots of infections. He's not
eating or sleeping well at all. My mother is
exhausted and not sure what's making him so ill,
the cancer, or the chemo. Or both? Has your
husband experienced any of these other
symptoms? How long has he had the cancer? Has
his cancer spread to the liver too?

This is my first posting and I would really like to know of anyone out there that has lived longer than one year with this specific type of cancer. My husband is having chemo-infusions, which is a very rare procedure. His doctor is Christian DeWald and we are in Phoenix, AZ. This doctor is close to our home, but appears to be one of the only doctors in the country doing this. My husband's tumor has responded to this procedure and appears somewhat smaller and the liver has not gotten any worse. His tumor numbers are also down, but he does appear to still be getting weaker and sicker by the day. He currently has an infection and they are delaying the next chemo-infusion. I have done a great deal of research on this and his treatment appears to be working in some, so anyone out there that is still alive and kicking please let me know. As you know, it is hard to keep their hopes up.
Peggy

My dad has just been diagnosed with this cancer. The only way we knew he was sick is his skin turned yellow. The day before we went to the dr. he had been unloading concrete. It is two weeks later and he can barely walk. If what I have read is right I believe he is in stage 1b. The tumor has blocked both sides of the bile duct but has not spread outside the duct. Any info is appreciated. He is 66 years old and a very strong man.