Stage IV Bile Duct CA with mets to the Liver

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Bile Duct Cancer

by Susan_i on Fri Jun 24, 2005 12:00 AM

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I am so sorry to hear about your brother. I can only imagine how difficult the last month has been for you and your family. My husband is doing pretty well right now and we just got a good CT scan. His tumor shrunk somewhat and there was no new growth so we are really hopeful that the treatments will continue to work. With all of the sad stories out there, though, it's hard not to think about the worst too. Our prayers are with you and your family.

my Wife

by Wamba138 on Fri Jul 08, 2005 12:00 AM

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My wife has been diagnosed with stage IV gallbladder cancer. It started with a tumor on her ovary. Surgery was on 4/27/2005. She is on 5FU and Leucovoran with a CT scheduled for 7/27. I have come to a place where I live one day at a time. So far it is easy because she is still healthy. I will keep you all in my prayers. Rick

my Dad

by Kate4 on Wed Aug 03, 2005 12:00 AM

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My prayers are with you and your wife. My Dad was diagnosed 3-22-05 with cholangiocarcinoma. We recently were told he now has mets to the liver. He is receiving Gemcitabine and Carboplatin. His white count has dropped dramatically. He is not eating and losing weight. He is still driving and functioning independantly. I am inquiring about intrahepatic chemotherapy. God bless you and your family.This is an awful disease. I am a nurse and did not know of this. I hear it is quite rare.


by Polina on Sun Nov 27, 2005 12:00 AM

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hi suzie, i just read your message and was wondering what information you have recieved so far about cholangiocarcinoma. my mom was diagnosed with it a few weeks ago. unfortunatley its in its last stage...stage 4. i know there are clinical trials for this. can you please send me whatever info you have. God Bless You and your family, good luck!! i will be praying for you. Paulina

Similar Story as my Dad

by Sunshinemommy on Thu Jan 19, 2006 12:00 AM

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Hello Susan, My father had a good CT scan too. His tumor has shrunk too, with no new growth. However, he is very weak and sick all of the time. He seems to be getting lots of infections. He's not eating or sleeping well at all. My mother is exhausted and not sure what's making him so ill, the cancer, or the chemo. Or both? Has your husband experienced any of these other symptoms? How long has he had the cancer? Has his cancer spread to the liver too?

Periductal-infiltrating Cholangiocarcinoma

by Pegnys on Thu Jan 19, 2006 12:00 AM

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This is my first posting and I would really like to know of anyone out there that has lived longer than one year with this specific type of cancer. My husband is having chemo-infusions, which is a very rare procedure. His doctor is Christian DeWald and we are in Phoenix, AZ. This doctor is close to our home, but appears to be one of the only doctors in the country doing this. My husband's tumor has responded to this procedure and appears somewhat smaller and the liver has not gotten any worse. His tumor numbers are also down, but he does appear to still be getting weaker and sicker by the day. He currently has an infection and they are delaying the next chemo-infusion. I have done a great deal of research on this and his treatment appears to be working in some, so anyone out there that is still alive and kicking please let me know. As you know, it is hard to keep their hopes up. Peggy

Klatskin Tumor

by Jayscott on Sun Jul 09, 2006 12:00 AM

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My dad has just been diagnosed with this cancer. The only way we knew he was sick is his skin turned yellow. The day before we went to the dr. he had been unloading concrete. It is two weeks later and he can barely walk. If what I have read is right I believe he is in stage 1b. The tumor has blocked both sides of the bile duct but has not spread outside the duct. Any info is appreciated. He is 66 years old and a very strong man.

RE: Stage IV Bile Duct CA with mets to the Liver

by Anastasia_1 on Thu Jan 01, 2009 12:00 AM

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On 12/8/2002 Dawn O. wrote:

My 74 year old aunt was diagnosed with this cancer this past September. Surgery is not an option and her doctors do not feel that she should put herself through any treatment. She has been given 3 to 6 months to live. I am her caregiver along with her husband. I would like to hear from anyone who is familiar with this cancer. I really need some emotional support. My aunt is like a mother to me and I am really struggling with her diagnosis. She had an ileostomy done over 30 years ago and they feel this is why she was prone to this cancer. Other than that surgery, she has been healthy. This came on suddenly and the doctors thought that she had gallstones. By the time they finished all the testing she was already a stage IV. Please give me some advice. Sincerely, Dawn


Hello everyone,


My mom, 64 is in the final stages of colangio carcinoma. One year of chemo later. She can't eat anything with out pain and has been hospitalized for 3 days. I spend the nights with her in the hospital and it seems very sureal. I thought the shock stage was over and that I had come to real terms with the thought of her dying. But I feel numb again and not very emotional. I wonder how long it will be before she dies and am curious about the symptoms to come. She's on I.V now. Whats the next step? Will she just continue to eat this way until her system breaks down, can we have an I.V at home? I guess we'll find out soon. Has anyone felt, slightly robotic and numb, in care taking as if nothing out of the ordinary is going on? I can't tell if I've made peace with the fact that we're all here temporarily, like a dove that lands for a while and then takes flight again, or if I'm in shock and headed for a nervous breakdown when she dies. She just looks so healthy, I can't imagine that these are her final days. I really wonder how much longer she has and to what degree she will physically deteriorate. Any sharing of your experiences with these things will be much appreciated. I'm 36 years old and do have lots of support around me but would love to hear from others having gone through this. Thanks, blessings and peace.

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