Endometrial Cancer

I would like to hear from anyone who may have ideas - re: coral calcuim and post surgical endometrial cancer/radiation treatments, but now spot in lungs, abour 1 year after the surgery. Sounds like metastasizing.

Hello. I have had endometrial stromal sarcoma (high grade). Briefly, my history is: HGESS, 5/2000 TAH/BSO, 28 rad tx., 160 mgs. Megace; metastatic lesion to spine at L2 1/2001 followed by 23 rad tx.; met to rt lung 1/2001 removed by VATS; met to left lung; VATS 12/17/02. If you are interested in supplements, I can tell you what I take. I can also suggest you look at our ESS website on yahoo. These woman all have ESS or some version of it. It is extremely rare and not really like most endometrial cancers. However, you may find some useful information. In fact, I did a posting there today listing what my nutritionist recommended in the way of supplements. You may want to sign on to: http://groups.yahoo.com. Then choose: Endometrialstromalsarcoma. I just had surgery to remove another lung lesion. If you want more information, you can write to my email address and I'll try to help if I can. My best to you. Bea

I finally found my way back to this website. I am now undergoing chemo...after having had a nodule removed from my right lung...and then told after next CT Scan, can do no more surgery...

How are you doing? I am soon to have my fourth round of chemo. The dr says then we will stop, as it isn't very effective, and will cause the cancer cells to become resistant, instead of "doing them in". Then, it is "wait until it does me in". Not a very good outlook, I am told. How do you cope, and where are you in your treatment? Gini

Hi~  I have just finished my 8th round of chemo, and have 3 more to go, before we stop and wait for symptoms to show up again.  I cope by keeping a positive outlook, I know it can be very hard.  You need to just enjoy the time you have now and realize that miracles happen everyday, you could be next!  I have my first grandchild due in July and am looking forward to that.  Write any time, if you have a specific question just ask.  I have recurring endometrial cancer and it came back in two tumors that grew , my liver, spleen and throughout my abdomen.  peace Carrie

 

On 4/28/2007 Freebird wrote:

Hi~  I have just finished my 8th round of chemo, and have 3 more to go, before we stop and wait for symptoms to show up again.  I cope by keeping a positive outlook, I know it can be very hard.  You need to just enjoy the time you have now and realize that miracles happen everyday, you could be next!  I have my first grandchild due in July and am looking forward to that.  Write any time, if you have a specific question just ask.  I have recurring endometrial cancer and it came back in two tumors that grew , my liver, spleen and throughout my abdomen.  peace Carrie

I was diagnosed in April '07 with  inoperable recurrent endometrial tumors in each lung, and under my diaphragm.  The tumors are pretty big.  I can't believe I went that long without knowing.  My problem is that I am overweight so no one thought my fatigue was due to cancer.

I also have a nerf ball size tumor above my pelvic bone.  It was hurting...went to the doc, and he said "Back issues"...only did ct when he took xray when I told him my chest hurt...when he saw the tumors on my lungs,  he rushed a ct and found the huge tumor above my pelvic bone.  A lot of my "fat" is just tumors, because you can see how misshapen my abdomen is.

I am angry that I received such poor care because I was dismissed as just being another overweight hypochondriac.  I was diagnosed with PCOS in 2000, but that didn't make the drs any more vigilant.  Now my oncologist gives me less than a year, maybe.  

I cope with thinking everyone has to die sooner or later.  There are people much younger than I (47) dying.  I am Christian, so that helps.  Yet, I can't help but feel I have been cheated. 

 

I, too an angry that I did not get proper treatment because I am fat.  I am a size 24 and my doctor was more interested in me exercising than in treating my pain.  He first thought I just had painful periods and wanted to implant an IUD!  Then he put me on Lupron for 7 months...then I got really sick and could hardly even turn over in bed with excruciating stomach pain.  He said that was muscular.  Then when  I couldn't easily have a BM and told him it wasn't that I was constipated, it seemed as though there was an obstruction, he told me to lose wieght.  I went to a gastroenterologist and he told me to eat more fiber.  Two weeks after that, I got disgusted and went to the ER knowing I'd get a CT scan...and alas, they found a 4 mm mass in my pelvis exactly where I had been telling them I had pain.  There is so much bad medicine out there and if you just happen to be a fat woman, well, it's even far worse.  I too am a Christian and will pray for you.  REMEMBER, GOD WILL NOT GIVE US MORE THAN WE CAN HANDLE...(of course, I often tell Him that He thinks too much of me :)  Most importantly read God's healing scripture and Dodie Osteen's testimony - they sent her home without hope with metastatic liver cancer and didn't even offer any chemo, etc.  25 years later, JESUS CHRIST HEALED HER without the aid of any doctor or medicine.  BE ENCOURAGED AND READ HER STORY....READ HER HEALING SCRIPTURES DAILY.  http://needforthings.com/healing/index.php?option=com_conten

Love and blessings, Chris

On 6/10/2007 Pkl485 wrote:

 

On 4/28/2007 Freebird wrote:

Hi~  I have just finished my 8th round of chemo, and have 3 more to go, before we stop and wait for symptoms to show up again.  I cope by keeping a positive outlook, I know it can be very hard.  You need to just enjoy the time you have now and realize that miracles happen everyday, you could be next!  I have my first grandchild due in July and am looking forward to that.  Write any time, if you have a specific question just ask.  I have recurring endometrial cancer and it came back in two tumors that grew , my liver, spleen and throughout my abdomen.  peace Carrie

I was diagnosed in April '07 with  inoperable recurrent endometrial tumors in each lung, and under my diaphragm.  The tumors are pretty big.  I can't believe I went that long without knowing.  My problem is that I am overweight so no one thought my fatigue was due to cancer.

I also have a nerf ball size tumor above my pelvic bone.  It was hurting...went to the doc, and he said "Back issues"...only did ct when he took xray when I told him my chest hurt...when he saw the tumors on my lungs,  he rushed a ct and found the huge tumor above my pelvic bone.  A lot of my "fat" is just tumors, because you can see how misshapen my abdomen is.

I am angry that I received such poor care because I was dismissed as just being another overweight hypochondriac.  I was diagnosed with PCOS in 2000, but that didn't make the drs any more vigilant.  Now my oncologist gives me less than a year, maybe.  

I cope with thinking everyone has to die sooner or later.  There are people much younger than I (47) dying.  I am Christian, so that helps.  Yet, I can't help but feel I have been cheated. 

 

 

 

On 7/7/2007 Mommycopper wrote:

I, too an angry that I did not get proper treatment because I am fat.  I am a size 24 and my doctor was more interested in me exercising than in treating my pain.  He first thought I just had painful periods and wanted to implant an IUD!  Then he put me on Lupron for 7 months...then I got really sick and could hardly even turn over in bed with excruciating stomach pain.  He said that was muscular.  Then when  I couldn't easily have a BM and told him it wasn't that I was constipated, it seemed as though there was an obstruction, he told me to lose wieght.  I went to a gastroenterologist and he told me to eat more fiber.  Two weeks after that, I got disgusted and went to the ER knowing I'd get a CT scan...and alas, they found a 4 mm mass in my pelvis exactly where I had been telling them I had pain.  There is so much bad medicine out there and if you just happen to be a fat woman, well, it's even far worse.  I too am a Christian and will pray for you.  REMEMBER, GOD WILL NOT GIVE US MORE THAN WE CAN HANDLE...(of course, I often tell Him that He thinks too much of me :)  Most importantly read God's healing scripture and Dodie Osteen's testimony - they sent her home without hope with metastatic liver cancer and didn't even offer any chemo, etc.  25 years later, JESUS CHRIST HEALED HER without the aid of any doctor or medicine.  BE ENCOURAGED AND READ HER STORY....READ HER HEALING SCRIPTURES DAILY.  http://needforthings.com/healing/index.php?option=com_conten

Love and blessings, Chris

On 6/10/2007 Pkl485 wrote:

 

On 4/28/2007 Freebird wrote:

Hi~  I have just finished my 8th round of chemo, and have 3 more to go, before we stop and wait for symptoms to show up again.  I cope by keeping a positive outlook, I know it can be very hard.  You need to just enjoy the time you have now and realize that miracles happen everyday, you could be next!  I have my first grandchild due in July and am looking forward to that.  Write any time, if you have a specific question just ask.  I have recurring endometrial cancer and it came back in two tumors that grew , my liver, spleen and throughout my abdomen.  peace Carrie

I was diagnosed in April '07 with  inoperable recurrent endometrial tumors in each lung, and under my diaphragm.  The tumors are pretty big.  I can't believe I went that long without knowing.  My problem is that I am overweight so no one thought my fatigue was due to cancer.

I also have a nerf ball size tumor above my pelvic bone.  It was hurting...went to the doc, and he said "Back issues"...only did ct when he took xray when I told him my chest hurt...when he saw the tumors on my lungs,  he rushed a ct and found the huge tumor above my pelvic bone.  A lot of my "fat" is just tumors, because you can see how misshapen my abdomen is.

I am angry that I received such poor care because I was dismissed as just being another overweight hypochondriac.  I was diagnosed with PCOS in 2000, but that didn't make the drs any more vigilant.  Now my oncologist gives me less than a year, maybe.  

I cope with thinking everyone has to die sooner or later.  There are people much younger than I (47) dying.  I am Christian, so that helps.  Yet, I can't help but feel I have been cheated. 

 

 

The situation has improved a lot.  The oncologist is surprised at the bounce back I have made.  I feel better than I have in 2 years.  He says the tumors are already responding to treatment, and shrinking.  I have hardly any pain at all.

He has gone to giving me 6 months to a year, to saying that he thinks I can live with a treatable disease, as if it is a chronic illness.  I'll take that anyday over being dead in a few months.

I claimed God's healing, also.  He will take me when He is ready, but I think I will have some time to go before the cancer gets me.  The doctor is excited about my health being so much improved.  They were looking for me to die in the hospital, at the most, to make it 6 weeks.  he said even my bones were shutting down.

Thanks for the encouraging words.

 

.

his may sound crazy but just try it,  Take massive doses of melatonin nightly.  Let me know what happens.