cancer cells in spinal fluid

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RE: cancer cells in spinal fluid

by twilliams on Thu Oct 21, 2010 01:13 PM

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Hello

Well once they put the tube in Greg's pain went away. Which was a good thing. All our family flew to Michigan to be with him we stayed right at the hospital. He was so sweet and never got angry which I heard some people do. The Dr had the long talk with us telling us it was just a matter of time. So I guess when they say prepare the house it means get everyone together to be with your family member let her know you will all be ok. I don't think Greg really knew it was his time and he really couldnt fight any longer. So we had to let him know it was ok and that we would take care of his children. When Greg left the hospital and went home he passed 3 days later. July 12 . I had a dream about him last night and it's crazy when ever I dream about Greg I have a head ache all day. Greg was only 48 and it's just not fair but whan we see his daughter we see our Greg. They look so much a like. Sometimes she said it's hard to look in the mirror.

RE: cancer cells in spinal fluid

by Roselvr on Thu Oct 21, 2010 01:21 PM

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On Oct 21, 2010 3:36 AM montalv wrote:

Hello One of my family members is going exactly through the same that Greg went through. It’s been 14 months since 1st diagnosed. Tumor was extracted from the brain and after a 2nd reoccurrence, after a year, she is now in Avastin. She’s back in the hospital and basically Drs. have told her that cancer cells may be present in the CSF, they haven’t puncture for testing as getting her of the Avastin could short her lifetime. She lately has deteriorated, she still quite lucid but complains as well of being very tired she cant walk more than 50 meters without getting exhausted. We were told to prepare the house for her, but nothing specific has been said to us. I was wondering if you can tell me what to expect in the next months, how prepared we have to have the house? They are still giving her Avastin. I don’t want to make you remember the bad times this cause you but if you can add details of what should we expect it would be appreciated so I can prepare my family. Thanks a lot for your help.

I'm sorry; I'd guess that by prepare; they are looking at a hospital bed & commode as well as making sure affairs are in order? How about home hospice?

My dad had AML Leukemia; those were the 1st symptoms of it with not being able to walk. Have they said anything about the cancer being in the bones / marrow?

It could also be because of heart & lung function being gone from chemo. Towards the end; my dads was at 28%; it was a rapid decline from there.

~Hugs

RE: cancer cells in spinal fluid

by Roselvr on Thu Oct 21, 2010 01:26 PM

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On Oct 21, 2010 1:13 PM twilliams wrote:

Hello

Well once they put the tube in Greg's pain went away. Which was a good thing. All our family flew to Michigan to be with him we stayed right at the hospital. He was so sweet and never got angry which I heard some people do. The Dr had the long talk with us telling us it was just a matter of time. So I guess when they say prepare the house it means get everyone together to be with your family member let her know you will all be ok. I don't think Greg really knew it was his time and he really couldnt fight any longer. So we had to let him know it was ok and that we would take care of his children. When Greg left the hospital and went home he passed 3 days later. July 12 . I had a dream about him last night and it's crazy when ever I dream about Greg I have a head ache all day. Greg was only 48 and it's just not fair but whan we see his daughter we see our Greg. They look so much a like. Sometimes she said it's hard to look in the mirror.

I'm very sorry for your (and your family's) loss.

I can relate to your niece about looking in the mirror - my son can too as we both look like my dad. I even have his ears - my long hair covers them; I'll pass a mirror & see my ear sticking out & think of dad. I do things like him; some times it bring a memory of him doing the same thing.

~Hugs

 

RE: cancer cells in spinal fluid

by twilliams on Thu Oct 21, 2010 01:34 PM

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Hospice came in broght a bed and  it was in the living room . They made sure he was comfortable . My sister in law is a nurse and knew someone in hospice but the hospital staff should help you with that.

RE: cancer cells in spinal fluid

by Roselvr on Thu Oct 21, 2010 05:01 PM

Quote | Reply

On Oct 21, 2010 1:34 PM twilliams wrote:

Hospice came in broght a bed and  it was in the living room . They made sure he was comfortable . My sister in law is a nurse and knew someone in hospice but the hospital staff should help you with that.

You can also google hospice with your zip code - it should come up.

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