One patient with glioblastoma still alive nine years later
by mazz444 on Wed Jul 07, 2010 12:56 PM
Hey - My last chemo was 6/18 and I go see the doc again at the end of this month. I would think by now I would be feeling so much better without chemo, but I'm still kind of dragging and my stomach still gets upset. Does anyone know how long it takes to begin to feel "normal" again? I was kind of counting on a break before I have to deal with the SCT. Thanks!
by Lizabeth1999 on Wed Jul 07, 2010 01:03 PM
We have been told that it can a year to overcome the fatigue (and sensitivity to sun) that comes with chemo. I can't answer about the funny stomach because my husband didn't have many issues in that regard. We have also been told that it can 12-24 months to get over the fatigue associated with radiation. And let's face it, having cancer itself uses a lot of energy. Listen to your body......you are not even a month out from chemo......it may take a while, but each should get a little bit better.
by frankd1100 on Wed Jul 07, 2010 02:16 PM
Mazz, I love your spirit!
It takes a while to get back to "normal" but I'll bet you get there faster than most.....
by Chris1959 on Wed Jul 07, 2010 02:32 PM
I finished treatment on Feb. 4th. Just started feeling better a month ago. Consider myself very blessed. I feel good. Still have a ways to go but getting better by the week. Everyone is different in there recovery times. Good Luck,
by wvdavidleroy on Wed Jul 07, 2010 03:04 PM
i have the feeling that i will really never be back to normal, but for me, Fat damn chance of that anyhow, i stay pretty weak, i went thru 9 months of it, i just need to learn to slow down, i try and do things and overdo it, and pay dearly for a few days, but i think it is best i do stuff and pay the piper, just my view. i am about a wuss these days though, i been off of it 5 months, 6 month cycle, off 3 months, 3 more cycles of less dosages and milder stuff, ears still ring, still get winded easily, and comes and goes with eating, i am on a eating binge at the present, last month, did not interest me, is times, here and there, i feel like my old self again. guess it takes time huh? being impatient has nearly killed me twice, thank god for the pain pills
by mmsurvivor on Wed Jul 07, 2010 03:16 PM
On Jul 07, 2010 3:04 PM wvdavidleroy wrote: i have the feeling that i will really never be back to normal, but for me, Fat damn chance of that anyhow, i stay pretty weak, i went thru 9 months of it, i just need to learn to slow down, i try and do things and overdo it, and pay dearly for a few days, but i think it is best i do stuff and pay the piper, just my view. i am about a wuss these days though, i been off of it 5 months, 6 month cycle, off 3 months, 3 more cycles of less dosages and milder stuff, ears still ring, still get winded easily, and comes and goes with eating, i am on a eating binge at the present, last month, did not interest me, is times, here and there, i feel like my old self again. guess it takes time huh? being impatient has nearly killed me twice, thank god for the pain pills
On Jul 07, 2010 3:04 PM wvdavidleroy wrote:
Hello my friend: All major drugs take a long time to really get out of your system. In just having surgery it can take 2-3 months to get the anesthetic affects out of your system. Having cancer and especially painful MM is not easy. If you search the CC archives you will see lots of tips on adding natural supplements and positive meditation to help with your journey. While having a break from chemo you should cleanse your body, boost your liver and do mild exercise. Just changing your diet and using a few basic supplements like Vit B, Cod liver oil caps, Tumeric, and a good digestive enzyme with each meal this can help you feel better. I still stomach problems post cancer and I only had radiation no chemo. This is something that goes with the territory of cancer. Try some of these simple steps. The docs rarely go into this side of things but it will help. Try to eat salad if you can, light vegies, stay off red meat, away from fast food, and sodas. To settle your stomach put the juice of a fresh lemon in a half a glass of water, no sugar. it helps.
I trust you will do better but try and walk each day and do some exercise. Take care MMS
by wvdavidleroy on Wed Jul 07, 2010 03:51 PM
i have cleaned up debris , tryed to get my house just livable again. yeah, i had two operations, then the chemo, chemo nurses told me it really takes a long time, i push the envelope, might not no more, bout killed myself, learning, but really, i do feel like my old self from time to time. so i guess if all stays well, hope hope hope, things will get better
by wvdavidleroy on Wed Jul 07, 2010 04:03 PM
just read this whole deal, i am a goof, hey, exercise, i got flooded all to hell in May, i have gotten plaenty of dan exercise. more than i cared, i was raised in the Military, my brother had cancer and MD, i would get on his ass even, GET UP!!! <<< left the GTF up out, you just can't quit, man i didn't, friends helped me and took care of me during the first few months of chemo, after driving 140 mile round trip for a white cell booster shot at the clinic one day, puked the 70 miles back down there, nearly blacking out, moved home then. i dealt with it myself, you just can't quit, and if taking supplements helps some people, good, mine is lots of smoked food, spices, lots of spices, beer when i can stand it, and pot, and a good dose of cocaine, seldom. but i do. why everyone argues and disagrees here, everyone is different, and some just piss me off, the fricking wusses
by mazz444 on Wed Jul 07, 2010 06:23 PM
Thanks everyone for the responses. . . .I'm just impatient I guess!! :) I'm going on a "I'm done with chemo" cruise in August, and hopefully will feel good enough to enjoy sitting around doing nothing and having people wait on me! :)
by rogerworldie on Wed Jul 07, 2010 10:28 PM
For stomach upset drop the anti biotics and anti virals and take Culturelle from Wal mart or Target. The product re-establishes the flora of the GI tract and brings the flora back to better then normal. See:
Before and After Treatment of Chemo
If you are like me after your treatment with chemo your stomach and Gastro Intestinal Tract (GI) is uncomfortable to say the least.
A major effect of complications after chemo is the inflamed tissue due to the fact that the mucus membrane lining is sloughed off the GI, as the doctors put it. The mucus membrane protects us from foreign bacteria and virus, once sloughed off there is no protection and inflammation immediately is the result leaving this tissue susceptible to invasion of bacteria and viruses.
Your oncologist will prescribe antibiotics and anti viral drugs as a prophylactic to guard against foreign bugs. If you take these drugs there will be side effects which in part will be the difficulty of becoming resistant to these drugs thus making it necessary to take stronger antibiotics and anti viral meds when actually needed.
There is a study (enclosed) which shows that the mucus can be reestablished very quickly using a human friendly bacteria known as Lactobacillus Ramosus GG (LBR).
Recently I have had another series of chemo with the resulting mucus sloughing problem, I did not use the prescribed prophylactic drugs but used the LBR. Within 10 hours of taking the LBR cultivated into a yogurt my GI settled down and within 24 hours my normal regularity returned. It has been one week now and all discomfort has vanished.
The LBR should be taken one week before chemo and five weeks after chemo.
You cannot take the antibiotics and LBR together as the antibiotic will cancel the effect of the LBR.
If you are interested in using LBR you will need a large dosage of the product in its capsule form. You may wish to cultivate the LBR by making it into a tasty yogurt. If you wish to do this it will be less costly then taking large amounts of the commercially prepared LBR and in my case I feel yogurt is more effective.
You may purchase a yogurt maker and use the instructions provided with the maker, your “Starter” will be the LBR one capsule per 8 oz. container, cut open the capsule and mix it into the warm milk. I use organic reduced fat Horizon brand milk (no hormones, antibiotics) along with one heaping teaspoon of Meyenberrg brand powdered goat milk per 8 oz cup which gives a creamy and tasty effect. Do not add any sugars, fruits etc.
The source for the LBR is, get this, Wal Mart! It is sold under the name Culturelle Probiotic
company telephone # 1-800-722-3476 if you cannot find it there.
As a side bar I have never had any nausua associated with chemotherapy, nor diarrhea or any of the other side effects other then low blood counts, fatigue and hair loss. Therefore I cannot attest to the efficacy of LBR in relieving nausua but I would like to know if any of you who have had nausea and diarrhea after chemo and who are taking the LBR find that these side effects of chemo have ceased or at least been effected in positive way after using LBR.
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