One patient with glioblastoma still alive nine years later
by montanabill on Wed Jul 07, 2010 10:37 PM
I cannot begin to tell you how helpful this chat line is! I have been in chemo for 4 1/2 months-five days on with 10 days off then one day one with 10 days off. I've been getting really frustrated recently because I can't go back to my normal workouts on the bikes as quickly as I would like (2-3 days after a chemo session) and feeling a great deal more fatigue etc. What I gather from the thread is that what I'm going through is pretty normal? I really hate not running but haven't been able to start starting chemo. Thank goodness for the bike! Thanks also for all the wonderful input on this thread.
by rogerworldie on Wed Jul 07, 2010 11:24 PM
Yes the fatigue is the pits! It is due to low hemoglobin numbers, low hemo = low oxygen uptake = the pits.
I have tried the following cocktail of nutrient supplements and offer it here. The supplement list is from Bill Peepols at Cancer Protocol.com . and is located at the end of this message.
I have been taking these religiously as outlined for three years, daily, and I cannot say if my energy levels increased.
What I feel is the bodies response to these supplements is positive which is a far cry from the overall feeling when I do not take them. Blaad out if you will.
I also use Culturelle as a probiotic and a Chinese medicinal mushroom tea daily.
When I do chemo, (last was 1 year ago ) I have it mixed with 5% Dextrose instead of saline solution and fast for a day before treatment.
My Hemoglobin is now normal since I am no longer accepting the chemo as a stand alone therapy. The hemo has had time to balance out to normal = no fatigue whatsoever, however I am still a bit lazy.
by deezin on Thu Jul 08, 2010 12:50 AM
On Jul 07, 2010 12:56 PM mazz444 wrote: Hey - My last chemo was 6/18 and I go see the doc again at the end of this month. I would think by now I would be feeling so much better without chemo, but I'm still kind of dragging and my stomach still gets upset. Does anyone know how long it takes to begin to feel "normal" again? I was kind of counting on a break before I have to deal with the SCT. Thanks!
On Jul 07, 2010 12:56 PM mazz444 wrote:
Hey - My last chemo was 6/18 and I go see the doc again at the end of this month. I would think by now I would be feeling so much better without chemo, but I'm still kind of dragging and my stomach still gets upset. Does anyone know how long it takes to begin to feel "normal" again? I was kind of counting on a break before I have to deal with the SCT. Thanks!
My last chemo was June 23rd. and I also am still feeling very fatigue & nauseas. I had my follow-up yesterday and my dr. said to give it 1 more month and I should feel normal, Then I start radiation and the 5 yr. pill which has side effects hoping I don't get. I was also hoping for some normal time. Hang in there !!!
by mazz444 on Thu Jul 08, 2010 12:57 AM
Wow Roger . . .you are a wealth of information!! Thanks! :)
by mmsurvivor on Thu Jul 08, 2010 02:48 AM
Roger your info on the Gi Tract is great and everyone should be doing something similar. This helps the absorption of other foods and supplements. It will help the body but one still must add other components to keep healthy after heavy chemo and radiation. Remember we are all different and what one person can handle another may not so we are not here to judge but to listen and exchange ideas. Be Well MMS
by adrea111 on Thu Jul 08, 2010 04:32 AM
The (East) Indian woman use tumeric to cleanse their bodies internally and externally before marriage, so it is a body cleanser. I use it for it's anti-inflammatory properties. I sure feel it, when I don't take it. I take a teaspoon mixed in water everyday.
by bootsy on Thu Jul 08, 2010 11:09 PM
I was very ill when I would have my chemo. It took me about two weeks before I felt normal again. I would eat like crazy durring the third week to try and gain the weight I lost durring the two weeks. Are you taking emend, adavan or any other med for nausea? It also made me feel better to go back to where I had my chemo and get hydration and they would add anti nausea meds also. That made me feel so much better. Be strong, I tried to think how lucky I was that I did not have to shave my legs.
by Donalf on Fri Jul 09, 2010 07:23 AM
I had Chemo, Radiation and SCT 9 years ago, took me a long time to recover and get some normality back into my life, I still have to listen to my body because if I overdue it physically then I will suffer pain for a few days. I'm enjoying my game of golf, going to the football matches and playing with my grandchildren. Life is good thank God.
by livehappy on Sun Jul 11, 2010 08:41 PM
This has been very informative for me! I finished Chemo about 2 years ago and although i am back to my normal routine of work, exercises and living, I often feel very tired for no apparent reason. Now I am can go for about a month feeling just as I did prior to chemo. However, from time to time I still experience fatigue and I have gastric issues. I stay way from red meat and I try to eat healthy. It really helps. Exercise is my escape and sanity! All the best and keep on living!
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