One patient with glioblastoma still alive nine years later
by Merja_P on Fri Jan 10, 2003 12:00 AM
by Dakotazdream on Tue Aug 03, 2004 12:00 AM
by Jalexboo on Tue Aug 03, 2004 12:00 AM
by Raj141 on Fri Nov 05, 2004 12:00 AM
by Daveb on Thu Mar 03, 2005 12:00 AM
by Jchris on Thu Aug 24, 2006 12:00 AM
by Negkj on Sun May 27, 2007 12:00 AM
On 3/3/2005 Daveb wrote:It's been a long time since your post, but this may interest you. I had a carotid body tumor excised 15 years ago. It nested in the bifucation of the carotid artery, and stuck out of my neck right next to my adam's apple. Mostly painless, but pushed uncomfortably on my windpipe when turning my head. Was told they were always benign. Fast forward to 2003. Routine chest x-ray reveals metastatic disease widespread throughout lungs and spine. After many more scans and biopsies and much discussion, the consensus is that this is a metastases of that carotid body tumor. So stay vigilant and research as much as you can about what your pathologist's report says.
Hi, red your post from several years ago. Just wondering if you are out there still and still going strong. If so would love to hear from you as my husband similar metastases and would like to hear about your treatment.
by jaysonk72 on Tue Jul 24, 2007 12:00 AM
This is definitely something you need to get checked out as soon as possible. My father had the same symptoms (lump, swallowing challenges, etc...), but waited a long time before getting it looked at. As we learned, the longer you wait, the more complicated things will inevitably be. I hope and pray that things will be okay, good luck to you.
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