my Mom Has Lung Cancer That Has Spread to Her Spine.

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my Mom Has Lung Cancer That Has Spread to Her Spine.

by Saber92973 on Fri Mar 31, 2006 12:00 AM

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My mom is 64 and was recently diagnosed with stage four lung cancer. The cancer is in her lungs, spine, liver and spleen. The only symptom my mom had was one day she had a sharp pain in her mid to lower back. The pain got worse and she went to the ER where they told her she had a severe compression fracture of the L1 vertebrae. As she was getting ready to leave the nurse comes out and says "By the way we saw a lesion on your lung you need to go to your PCP and have him order a CAT scan for your back and lung." Funny thing is how can you mistake a baseball size mass with what the nurse referred to as a lesion? My mom was made to sit in the clinic waiting room just to get these terrible results even though she had a broken back and was crying and wailing in pain. The office staff came out to the waiting room and told her to basically shut up because she was bothering the other patients. I have never seen such lack of compassion in my life. My mom was admitted into the hospital that night and released the next day. They refused to do anything to stabilize her back at all. She was on every kind of strong narcotics you can imagine and was still in pain. She was never recommended to see a oncologist, only a pulmonologist and that appointment wasn't for TWO WEEKS!! They didn't care that she was bed ridden or that we live on the second story and I didn't know how I was going to get her to these appointments. A week after being released from hospital number one I finally talked her into letting me call a ambulance to have her taken to a different hospital. Thank GOD, these doctors at hospital number two couldn't believe she was ever released from the first hospital. They did surgery to fix her back within two days, even though she has cancer in her spine they still wanted to give her pain relief and give her back her mobility in hopes that she would rally the strength to fight the cancer. Her back is so much better now and it is so good to see her out of pain after four months of constantly being in severe pain. Her prognosis isn't good though, with chemo and radiation they are giving her less than a year and without any treatment she will die within weeks. She had her first round of chemo finished today but she made it very clear to me that if it makes her too sick she will not do anymore and let nature take its course. The problem is now, she is still unable to get around good because she was bed ridden for so long she is very week. The doctors want to send her home and I insisted that they give her some rehab first so she can get around and also to give her back time to heal some more because it is basically still broke, they could only stabilize it and the surgeon who did her back surgery agreed with me and is FIGHTING to get her into rehab, he is a WONDERFULLY SWEET man and my mother is blessed to have him on her side. I just really don't know what to do when she does come home, I live with her and I am more than willing to keep being her caregiver but I have two small children who are sick alot and I am so AFRAID they will give her something as simple as a common cold and because of her immune system being so weak it could literally kill her. They also told me that if my son who is four was due for any immunizations that I needed to ask if they were giving him "live" vaccines because if they did he can't be in the same house with my mom for atleast two to four WEEKS! I have no idea what to do about that, because he is due for shots soon. Also...we have several animals...four cats and two dogs and I was wondering are chemo patients supposed to be around animals, you know since they aren't supposed to be around germs. It may sound stupid but I honestly don't know. Thanks for taking the time to read this! God Bless! Sandy

Mom With Lung and Spine Cancer

by laura_c_2 on Sun Apr 02, 2006 12:00 AM

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Be with your mom as much as you can and tell her how much you love her. My mom died last week after a 4 year battle of lung cancer that has met to the brain. We always said through the process that you have to be your own doctor. No one is going to care about your mom's treatment but you and her. My proyers are with you and your mom. PS if your mom likes animals keep them if not give them to someone else right now. Laura

Thank You For The Reply

by Saber92973 on Mon Apr 03, 2006 12:00 AM

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Laura, So sorry to hear about your mom, sounds like she fought a long hard battle. I kind of have a double whammy right now because not only is my mom sick with cancer but my best friend of over 20 years has metastic melanoma and they are only giving her weeks to live. She has fought for a year but they have done all they can. In the end it has spread to her lung, spine, kidneys, ovaries, intestions, brain and liver. Thank you again for the kind words. Sandy

RE: my Mom Has Lung Cancer That Has Spread to Her Spine.

by Tjamen on Mon Apr 09, 2007 12:00 AM

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Sandy:

I am so sorry for what you are going through.  My mother also has lung cancer that has spread to the spine, liver, rib and few other places.  It often feels like the doctors don't have an urgency for treatment. In December of 2005, I took my mom (65 yrs old) to the emergency room because she was having difficulty breathing - she had been treated for COPD for years.  They did a chest x-ray to rule out pneumonia.  It was then that they discovered a 3/4'' tumor. My mom has been such a fighter.  She went through radiation and then we found out cancer spread to spine.  She then went through Chemo.  I was very surprised - Chemo was not has harsh as we all had expected - I guess they have come a long way with the drugs.  Mom expreienced very minor side effects - about 3 days after treatment, she would become very constipated and then a few days of the opposite.  But after that nothing other than fatigue and loss of hair.  It took her several months to build up her strength. We then found out cancer had spread to the parts of her body.

 Since early February, Mom has been suffering from pain in her tummy and lower back.  It is now severe pain and nothing seems to help - she has had Extra Strength Vicodin and morphine - which do nothing for her.  I am very frustrated because the doctors wanted to insist it was only an ulcer.  We kept insisting that it must be her liver since it also has cancer. They ran a CAT scan and they said that the "lisions" in her liver were to small and that the liver has no pain - that only the outer lining of the liver feels pain.   I also don't understand how they can say a 3/4' tumor is small when it is not suppose to be there.  They scoped her stomach and found nothing.  They did an MRI and decided that there is swelling around the three "lisions" on her spine.  I guess they think if they call them lisions instead of tumors we feel better?  Tommorrow my mom starts two weeks of radiation in hope of some relief from the pain.  It just breaks my heart to have to watch mom suffer so.

I live about an hour away from my mom and make several weekly trips to help her with shopping (she has also been on oxygen since Dec 2005), doctors visits, and take her to church each Sunday.  Prior to this I would see my mom once a month or so.  I feel very blessed to have had the chance to get to be with my mom through this and to learn what a beautiful person she really is.  I know how you feel about protecting her from being exposed to germs.  But now I have to think about what makes my mom's life as full as it can be for the short time she has left - I cannot seem to get her doctor's to give us any timeframe - but I know from watching her, she is going downhill.  My niece was recently here from Kansas with her 19 mo old (Toby) - my mom's only Great Grandchild.  Toby came down with a very bad stomach virus while here - had to make a trip to emergency room.  I tried to convince Mom not to get too close  - but there was no way she would not spend time with him.  I finally decided it would do her spirit more good to be with him.  God is good - Mom did not catch the virus.  I am sure your children bring your mom great joy.  I have used face masks when I have had a cold and needed to be in the car with Mom - we would both wear them.  They are not so comfortable but provide some protection.  My mom has actully had less colds and respritory infections since she has been going through treatment.

I hope that the chemo is helping your mom and that it is not too rough on her.  If you or your mom belong to a church - you should contact the church for support and assistance for you and your mom - help with meals, child care or even shopping.  It is amazing how many people really do want to help.  My mom is very active in her church and that is the only way I would have gotten through this since my sister and her family live in Kansas. 

Again, I want to say I am so sorry for what you are going through - justing reading you message this morning made me feel less alone.  I spend a lot of time scared, frustrated and feeling all alone.  Thanks for being there.  Wanda

RE: my Mom Has Lung Cancer That Has Spread to Her Spine.

by PaulaG on Thu Oct 16, 2008 12:00 AM

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On 4/9/2007 Tjamen wrote:

Sandy:

I am so sorry for what you are going through.  My mother also has lung cancer that has spread to the spine, liver, rib and few other places.  It often feels like the doctors don't have an urgency for treatment. In December of 2005, I took my mom (65 yrs old) to the emergency room because she was having difficulty breathing - she had been treated for COPD for years.  They did a chest x-ray to rule out pneumonia.  It was then that they discovered a 3/4'' tumor. My mom has been such a fighter.  She went through radiation and then we found out cancer spread to spine.  She then went through Chemo.  I was very surprised - Chemo was not has harsh as we all had expected - I guess they have come a long way with the drugs.  Mom expreienced very minor side effects - about 3 days after treatment, she would become very constipated and then a few days of the opposite.  But after that nothing other than fatigue and loss of hair.  It took her several months to build up her strength. We then found out cancer had spread to the parts of her body.

 Since early February, Mom has been suffering from pain in her tummy and lower back.  It is now severe pain and nothing seems to help - she has had Extra Strength Vicodin and morphine - which do nothing for her.  I am very frustrated because the doctors wanted to insist it was only an ulcer.  We kept insisting that it must be her liver since it also has cancer. They ran a CAT scan and they said that the "lisions" in her liver were to small and that the liver has no pain - that only the outer lining of the liver feels pain.   I also don't understand how they can say a 3/4' tumor is small when it is not suppose to be there.  They scoped her stomach and found nothing.  They did an MRI and decided that there is swelling around the three "lisions" on her spine.  I guess they think if they call them lisions instead of tumors we feel better?  Tommorrow my mom starts two weeks of radiation in hope of some relief from the pain.  It just breaks my heart to have to watch mom suffer so.

I live about an hour away from my mom and make several weekly trips to help her with shopping (she has also been on oxygen since Dec 2005), doctors visits, and take her to church each Sunday.  Prior to this I would see my mom once a month or so.  I feel very blessed to have had the chance to get to be with my mom through this and to learn what a beautiful person she really is.  I know how you feel about protecting her from being exposed to germs.  But now I have to think about what makes my mom's life as full as it can be for the short time she has left - I cannot seem to get her doctor's to give us any timeframe - but I know from watching her, she is going downhill.  My niece was recently here from Kansas with her 19 mo old (Toby) - my mom's only Great Grandchild.  Toby came down with a very bad stomach virus while here - had to make a trip to emergency room.  I tried to convince Mom not to get too close  - but there was no way she would not spend time with him.  I finally decided it would do her spirit more good to be with him.  God is good - Mom did not catch the virus.  I am sure your children bring your mom great joy.  I have used face masks when I have had a cold and needed to be in the car with Mom - we would both wear them.  They are not so comfortable but provide some protection.  My mom has actully had less colds and respritory infections since she has been going through treatment.

I hope that the chemo is helping your mom and that it is not too rough on her.  If you or your mom belong to a church - you should contact the church for support and assistance for you and your mom - help with meals, child care or even shopping.  It is amazing how many people really do want to help.  My mom is very active in her church and that is the only way I would have gotten through this since my sister and her family live in Kansas. 

Again, I want to say I am so sorry for what you are going through - justing reading you message this morning made me feel less alone.  I spend a lot of time scared, frustrated and feeling all alone.  Thanks for being there.  Wanda


 

10/16/08 

Wanda,

I was reading information on the CC website and see that you Mom has lung cancer that spread to her spine.  I noticed the date on your email was over a year ago.  I hate to ask but is your mom still with you? 
The reason that I ask, my husband was diagnosed 14 months ago with 4th stage lung cancer.  He wasn't expected to live more than 2 months.  He have been so thankful to our heavenly father that he is still here.  But we did receive some bad news yesterday that the Dr believes it has moved to his spine.  He did receive 2 injections of cortisteroids which has really relieved the pain. We go to the oncologist on the 22nd to see where to go from this point.

Best regards,

Paulette

RE: Mom With Lung and Spine Cancer

by bigbois420 on Fri Jan 21, 2011 05:37 AM

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My Mom is 42, and was just diagnosed with stage 4 lung cancer. the doctors are really nice and seem like they care. but its hard to grasp. everything just seems so surreal. i cant believe that she has cancer. i just read that only 10 percent of the people that have stage 4 cancer make it five more years. FIVE YEARS.  SHE IS FOURTY TWO. I know this isnt a rant place but i dont know where else to say this.

RE: Mom With Lung and Spine Cancer

by thebyrdsfriend on Fri Jan 21, 2011 01:27 PM

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Oh, yes this is the place to rant.  You can vent, rant, cry, anything here that you need.  So sorry you have to be here, and so sorry for you mom.  I have stage IIIA lung cancer, and I also read all I can on the subject.  What you need to know is that all the stats we are reading were gathered over a period of 10 or more years.  So, that's a long time ago.  Stats are getting better all the time.  I pray your mom is getting treated by the best doctors around her, and that she stays strong enough to fight this terrrible disease.  And, dear, feel free to vent anytime you wish.

RE: Mom With Lung and Spine Cancer

by JanineMarie on Wed Jan 26, 2011 03:20 AM

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My emotions are in an uproar.  Just found out today my mom has stage 3 lung cancer.  She is so scared and I'm so scared for her.  I can't imagine not having her in my life, she has always been there for me and all I can do right now is be there for her.  All my childhood memories are just flooding my mind right now and all I can do is cry.  God bless all you fighters out there.

RE: Mom With Lung and Spine Cancer

by Paulr75tils on Wed Mar 30, 2011 04:42 PM

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My family and I found out that our dear mum had cancer of the lung back in November of last year! Since that dreadful diagnosis she has undertaken chemo which shrunk her tumor by a 1cm! this was great news but things had to be backtracked when one weekend she had a funny turn which resulted on the doctors finding a secondry lesion in her brain! Very quickly they performed radiation which only lasted one session and continued with the chemo. Two weeks ago my mum went to shut a window and her back went which has caused her extreme pain ever since! she had more scans yesterday and we shall get the results tomorrow! I have my concerns and reading up on things can only pray that it has not spread to her back! I totally understand everything everybody is going through on this site so just wanted to put my story across and to feel that I am not alone in coping with this! Thanks

RE: Mom With Lung and Spine Cancer

by towjoe42 on Mon Apr 04, 2011 04:59 AM

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Yes by all means Rant all you want. The only problem with doing it on this message board is that you have to be real carefull of what you say. If you are too critical of the American Medical Campl, if Big Brother who monitors all these postings does not like what you say on this message forum, he gets out his big ax and deletes your posting. There is no FREEDOM of speach on this message forum. Lets see what they do with this one?

 

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