Rare form of brain cancer - Malignant mixed Glioneuronal Neoplasm

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RE: Rare form of brain cancer - Malignant mixed Glioneuronal Neoplasm

by Mallory on Tue Apr 17, 2012 01:40 AM

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On Nov 18, 2011 5:45 PM kturbeville wrote:

On Sep 11, 2010 5:53 AM stacie7 wrote:

my 11 year old son was diagnosed at age 7 with a malignant glioneuronal. he also had surgery that has left him with weekness in his left leg, 6 weeks of radiation and chemo (temodar). we have mri's every 3 months. In jan of 2010 they found a 2nd tumor, this one we did not have surgery, only radiation. the mri's we have had since jan have all come back clear of tumors. we also have never been given a prognosis nor been able to find much information on his type of cancer. our son does an amazing job in school and does not show any learning problems. although his short term memory does come and go.

How is your son? I hope well.  My daughter age 15 was just diagnosed with this. It is her brain and spot on spine.  They say she will start radiation and chemo.  Where was your some treated?

So your son got his first tumor at age 7 then got his second at 11 and his tumor was mixed glioneuronal?

RE: Rare form of brain cancer - Malignant mixed Glioneuronal Neoplasm

by myboys2 on Fri Apr 20, 2012 08:55 PM

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I might suggest you post on the acor site and also look in the rare cancer section on that site as well as brain cancer.

RE: Rare form of brain cancer - Malignant mixed Glioneuronal Neoplasm

by KarenTang on Wed Feb 12, 2014 10:16 AM

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Hi there,

My sister, who is 25 years old was diagnosed with a Glianeuronal grade 3m malignant brain tumour in the cerebellum last year.

This all started in April 2012 when she started throwing up in the morning, we all thought she had contracted a stomach bug but then she rapidly stared losing weight, her vision was affected and she started getting pressure headaches. The GP aren't very good at diagnosing brain tumours and seem reluctant to just send you for MRI's as they are expensive.

She had 70% of the tumour taken out via surgery and has had 6 weeks of radiotherapy and is on steroids at the moment.

I have not found much information on this tumour either and the surgeons/nurses can't tell us much either.

How has your husband got on? I see that this post was 3 years ago now, I'm keen to see how your husband is doing? hopefully all is well.

Thanks

Karen

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