One patient with glioblastoma still alive nine years later
by aaapetersen on Fri Aug 20, 2010 05:06 PM
Hi I'm 29 years old, I had my first child last Oct that was 10lbs 3 oz. A few months later I had the left side of my throat swell up to the size of a pingpong ball. I was having difficutly breathing because of it and took a benadryl(s/p?), the swelling went down but the lump stayed. I had never noticed it before. Origionally they thought it was mono and I had tested positive for it but they said it was in the past, I however don't recall having Mono and am confused on how I got it while faithfully married.
The lump has shrunk and swelled with anitbiotics, but has always remained the size of three finger tips in length in some form or another for the last 4 months. I went to the doc. who refered me to several other doctors and had blood work done. It said my thyroid was fine. I however was extremely fatigued, really hungry all the time, gained weight - but am not obeses (s/p?), couldn't taste, smell or hear as well on my left side.
I then had an ultrasound, and CAT scan, where they discovered the left side of my throat has (3 complex cysts) from right below my chin to above my collar bone in my neck all symptoms were on the left side of my body. I also have a 4th issue. I have a (mass on my left side of my thyroid that isn't a complex cyst). Doctor thought the cysts could be cold nodules? I had a fine needle aspiration done on only the thyroid mass, during which I had a sharp stabbing pain in my upper back, and chest pains in my upper left chest cavity, it all really hurt. After the biopsy, I discovered that I kept itching, and had a rash which looks like open small sores on my neck where they did the biopsy and have been going through hot flashes and cold flashes and memory lapses.
I am awaiting the results. I can't find anything online remotely similar. I'm really concerned because even my doctors act like it's unusual. Please let me know if anyone has anything similar. I hate being in the dark, I'd like to know what I'm dealing with. My father's family medical information is non existant, so I'm even more concerned that it could be genitic. I find out my biopsy result on Monday, however haven't heard back after calling my suregon about the rash? I also have been having chest pains about a week after biopsy. Please help, anything similar?
by Klynn63 on Fri Aug 20, 2010 06:06 PM
My husband had a golf ball lump on the left side of his neck and was also perscribed antibiotics. The lump would increase and decrease in size, we thought the antibiotics were working. After 5 months, it was still there and we got him to a ENT doctor who did a needle bioposy. His came back as cancerous and we were referred to his Oncologist.
After radiation and chemo, the lump is now very small. He goes in for his first PET scan late September, and then we have no idea what is next. But we take one day at a time. Unfortunately there are no guarentees that he will be here in 5 or 10 years. But we realize that we were never given guarentees anyhow. A bus could take him out tomorrow, you know? So enjoy today, and don't worry about what you can not control. Try to be positive, and don't let the stress of this determine how your days will be while waiting for what the results could be. They could be nothing serious as well, so just let it be for today.
I know you are scared and I totally understand, but please try to get through today and worry about tomorrow, when it gets here. One day at a time, because that is all we really have anyhow. So do your best to have a great weekend, and you will deal with the results on Monday when you have a better idea of what you have to deal with. The "what if's? " can drive you crazy.
I wish you the very best, and pray that all this worry is for nothing.
by Klynn63 on Fri Aug 20, 2010 06:11 PM
One more comment about the Mono. My Grandma used to call it "the Kissing Disease" , because it is a way of spreading. However, people can get it just as they do the flu. So catching Mono has nothing to do with being faithful. Don't let it stress you out more.
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