Hi,
I'm not sure if my lifestyle has helped me (yet) or not. I hadn't had blood tests for at least 6 or 7 years but had not felt well during the past couple of years. My platelets have been high now for 9 months and I tested positive for the Jac2 test.
I am fairly active -- I excercise -- take dance classes (that make me sweat) 2 times a week 1 to 2 hours each and sometimes go to yoga or the gym as well. I find that my limbs do not fall asleep when I keep active.
My main problem has been muscle pain, an odd pressure in my limbs, sometimes they fall asleep, constant headaches (which finally disappeared last week) and fatigue.
Since I've been diagnosed I started to losely follow a ph balance diet (because they say this is cancer and cancer cannot live in a ph balance of 7.0) which means eating a lot more fresh, organic vegitables. See www.ph-ion.com/
My son made me promise to drink fresh (organic) wheatgrass juice daily, so I get two onces @ day at least 5 days a week when and where I can. When I cannot get it I take E3 Live which I have at home or powdered Pure Chlorella. These are supposed to oxogenate the blood. See:
http://ask.yahoo.com/20010802.html and
http://en.wikipedia.org/wiki/Wheatgrass. I take fresh bee pollen almost daily:
http://www.goddess-within.com/11652.html This is the product I take. Take a look at:
http://www.envirobee.com/beepollen.htm I have ordered a homeopathic remedy from www.mobcitin.com in Germany -- but have not yet received it. It has claims to completely cure thrombo. But we shall see. I've been waiting to get this product since the beginning of Oct. with no luck.
Also I have been researching (on-line) other ways to thin or relax the blood. Garlic is one such way, as is (and I don't know much about this one) Olive Leaf extract. I've been taking garlic (which I believe the pills are contrindicated with blood thinners) and I've tried the Olive Leaf extract for about 2 months -- which claims to relax the blood and also to eliminate parasites. I spoke with one alternative doctor on a radio show and he said to check into leaky bowl syndrom and also parasites as a cause. Though I'm not convinced about all that.
Other than those supplements I also take a liquid mineral called Fulvic Minerals:
http://www.vitalearth.org/index.htm These have some good claims re cancer.
I try to take a organic liquid vitamin each morning along with higher doses of natural vitamin E, Ester C
http://en.wikipedia.org/wiki/Vitamin_C Okay have I overwelmed you yet? I must spend most of my paycheck on my lifestyle now. I have a son and a grandson and I don't want to have complications as I'm only 45 years old.
I also juice fresh organic vegitables. Celery and beets are especially good for the blood. I juice carrots, kale, spinich, etc. and add lemon juice. I do this at least once a day and would do it more often if I wasn't out at work or dance class. It's not cheep, but it sure makes you feel good.
As for drinking water I was told to drink Reverse Osmosis purified water. I also carry Figi water around with me to drink. I don't drink coffee, caffinated tea or hot chocolate, no soda, no diet products, no chlorinated or florinated water.
I stopped eating wheat and all forms of processed foods. No refined white flour or sugar. I felt a great deal better when I did this and my allergies stopped completely. I recently cooked with a peanut sauce that I had in the frig and had a terrible reaction (sneazing and watery burning eyes) and than read the label -- it had WHEAT!
Last but most important is NO BAD OILS such as canola (which is rapeseed oil, sunflower, safflower, etc.). All I use is olive oil for everything. This is one of the most difficult to control because we like to eat out once or twice a week.
I've also read that salt is bad for any blood disorder. And drinking lots of water helps.
Okay, I hope this information helps you. Friends tell me that if I wasn't this healthy in the first place I might be a lot sicker. My doctor says that nutrition/lifestyle does not effect thrombo.
I guess all that I can suggest to anyone who wants to be healthy is eat whole organic foods, limit the amount of meat, wheat and chemicals you put in your body, drink plenty of good water and exercise at least 3 times a week.
I am very curious what the link is between all of us patients who have this. I've read that chemical exposure, radiation exposure or electrical exposure may play a part in acquiring this disease. I'd love to see a profile for all of us patients. Ciao