One patient with glioblastoma still alive nine years later
by Marcyb on Tue Apr 11, 2006 12:00 AM
by NanaMelissa on Mon Nov 12, 2007 12:00 AM
by Cyteh6 on Sun Dec 02, 2007 12:00 AM
by roula on Sat Jun 28, 2008 12:00 AM
I too have ET and have had it for 15 years. I am now 49 and was diagnosed after I had my 2 children.
I was on Hydrea at the beginning and because of the risk of developing Leukemia my doctor took me off it. I was then on Asprin for about 6 years but have stopped that too.
My count is now at 710 and goes up and down. I also have an enlarged spleen and have had the JAK2 mutation blood test and I am negative.
I don't totally understand what that means but my doctor said that I am lucky that it is negative. He also says that its not if I get worse its just a case of when. He says that this condition usually goes for about 10-15 years before things start to go wrong. Well I've reached 15 years and I'm starting to get nervous.
My doctor insists that I have a well balanced diet and a no stress life.
Yeah right..........thats going to happen....no stress.....
But he insists that stress makes this condition worse.
With the diet I personally don't think it changes ET at all but it does ensure our immune system is in top order and able to fight off whatever is thrown at us.
I too wish I knew more about this so if anyone has anything that they feel can help please let me know.
Good luck to you all and strength to all of us.
by ruselrones on Thu Jun 10, 2010 10:55 AM
ARelative has been diagnosed with Essential Thrombocytosis. The condition was detected due to a high platlette count, and confirmed by a bone marrow biopsy.I also prefer liquid mineral called Fulvic . Extract and Olive Leaf Extract. Modulating the immune system is key, especially in individuals with autoimmune disorders.
by JeanneLeslie on Fri Mar 06, 2015 12:20 PM
I am 58 and was diagnosed w ET last year. My platelet count has been a little over 1 million. In response to this diagnosis I sought out an experienced homeopath. It has taken almost a year in making adjustments within finding the correct remedy. I was not feeling well for most of that time: fatigue, headaches and depression -- but over the past three months I have seen a restoration of my vitality. I may not have significantly lowered my count but I feel a lot better. The only other medication I take is a baby aspirin. I suggest anyone interested in homeopathy as an alternative treatment to seek out the most experienced and venerable practitioner you can find. Read as much as you can. It's good enough for the royal family of England!
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