Women who don't have BRCA mutations could have other high-risk genes that affect treatment choices
by paysongeorgi on Tue Sep 14, 2010 11:39 PM
I am almost two years dealing with EC. So far my scans are clear. ThankYou Lord! The main problem I am having is that I am never hungry. I force myself to eat. Is there anyone else out there that is having this problem? If so, what helps. I still get very scared the the cancer is coming back. Wish that I could get that outof my mind. Thanks
by Aoife on Wed Sep 15, 2010 08:34 AM
just checked your history - I also had radiation treatment but as a young child for graves disease. I also had pneumonia after the surgery but they did not keep me on the respirator and I also had acute kidney failure after the surgery and died a few times...well I am still here. I have found that I can not eat as much as before but I still managed to have my son. I tend to eat foods that I really like and watch a lot of cookery programmes to make me hungry, my husband dispares sometimes. I eat tapas when out or two starters, it makes me feel normal...it really does get easier with time. I was diagnosed in October 2006. Yes you will always be scared, I have my times when I get so scared but most of the time I live.
Aoife and baby Shane
by mapesuma on Wed Sep 15, 2010 08:22 PM
by rickjenn on Thu Sep 16, 2010 02:24 AM
Hi Georgi, I don't really get hungry like I used to, but most of the time I can eat. I think part of it is because I just stack all the time. I don't really get hungry because I'm eating little meals when it feels like I can fit one in but I try to avoid overeating, because that is when problems occur. Occasionally I still have days when it is hard to eat much due to stomach irritation but I don't get hungry. I still think staying hydrated helps with the eating, and I have to drink more fluids now than I did prior to surgery. Good luck finding some answers. Rick
by andy2009 on Thu Sep 16, 2010 03:25 AM
hi georgi - come to think about it, i don't think i experience or understand what is my hunger feeling. i go by the clock and eat breakfast,lunch and dinner at usual time. i am lucky that i can eat everything and i find that i actually look forward to meal time and eating. i find myself chewing a lot more than i used to and the portion are just a little less than pre cancer. i am a meat eater but now i find i eat a lot more vegetables compared to pre cancer. my issue is that i tend to eat and drink too much and then i don't leave enough time before i sleep and gets punished with acid reflux - like last night.
cancer coming back - maybe, who knows. i tell everyone who asked that i am completely cured. no reasons to deal on whether it will or will not come back as you cannot control it. just got my blood test yesterday and they came back fine. i am also onto one once a year CT scan unless i notice changes in my body that suggest that i shud do a CT scan immediately.
keep up the spirit and enjoy your meals.
by LSCHWILKE on Fri Sep 17, 2010 03:22 PM
had esophagectomy over 25 years ago. no chemo or radiation. but i do know about that can't eat routine and then when i would i would cramp up and it was real painful. rest assured, life does get better. within 15 years i returned to my pre surgery size, which was a 70 lb gain. the problem with eating or not being able to eat, is that you find out what a social thing eating is!! how do you go to a potluck and appear normal?? i found just nibbling on things that didn't cramp me up, like crackers, hard candy, in other words, highly refined foods, helped slow down the wt loss. unfortunately, it also helped put it back on. for the first several years, my concentration was on getting 1 well balanced meal a day, and it took me all day to do it. a little protein here, some carbs there, add a well cooked vegie, a little bit of something throughout the day until at night i could look back and see i had the equivalent of 1 meal. hang in there kiddo, life does get better!!!! i didn't think it would, but it does.
by rogerworldie on Fri Sep 17, 2010 07:26 PM
Smoking marijuana will help all you have to do is get over the American government mind set that you will become a heroin addict!
Don't pay twice, you pay once by having the disease and pay twice by having fear of dying.
by dreiley2 on Sat Sep 18, 2010 08:48 AM
I am one of those fortunate folks who was skinny, but always put away tons of food before diagnosis with glioblastoma (bfain cancer). AS part of my regimen, I take anitinflamatory steroids (dexamethasone) which appently, keep my body both motivated to keep up input as well as triggering storage of food I eat. I have actually had to watch what I eat a little to prevent weight gain. NO reason to take a steroid if it is not useful for other reasons. Almost all negative side effects from Tx coming from steroid. That said, I also live in a medical marijuana state (MI) and have aplied and been accepted into the program. While it is very different from simply getting a prescription for something, picking it up at local pharmacy, using it until needing a refill and repeating, one of the "benefits" is that smoking (or othewise ingesting) marihuana does temporarily lower your blood sugar, making you hungry. In this way it aids in fighting the "wasting away" that occassionally comes with various cancers in various people.
I don't share your problem, and I don't like smoking (though did quite a bit as a teen) and there is no sensible marketing/pharmacy system here in Michigan. You bascially have to get in illegally, then the laws allow you o grow your own plants and/or possess "prepared marijuana" and here is no wording limiting how it got there and processed in he first place. Just a thought based on the problem you proposed... take no offense if for some reason that would simply NOT be an option for you. Good luck! DKR
by AliceJane on Sun Sep 19, 2010 11:36 PM
I had 36 radiation treatments, finishing two and a half years
ago. I had throat cancer. About for months ago I lost my
desire to eat and like you, I force myself to eat. I am afraid
of losing weight so I have a milkshake every day for lunch. I
like chocolate so it helps to drink that. The other meals are
very difficult. Good luck, Alice
by loupat on Thu Oct 07, 2010 12:37 AM
My mother has esophageal cancer and has had 3 stents put in - the 1st 2 didn't work and the 2nd one caused a perforation into her lung. I'm amazed reading the feedback here that other people have experienced these "leakages"! She then had a 3rd stent inserted and the hole has now closed - relief, and also the previous cancer "nodules" (which she received radiation for) are currently dormant. However, 2 new nodules have developed in her lungs which are treatable, but she is now so thin and weak that the Oncologist can't begin the treatment until she has picked up weight. She has stayed a very low weight for a long time now (at least since the beginning of this year) and say's she's trying to eat as much as she can. Her stomache has probably shrunk so much by now that if she tries to give it anything different or tries to eat a bit more, it just comes up. She also can't keep down ANY supplement or protein shakes. Now that I've found people that seem to be going or have gone through a similar experience, does anyone have any pointers? We need to get her over this "hump" so that she can start gradually building up the size of her meals again - then she can have her cancer treatment.
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