One patient with glioblastoma still alive nine years later
by cokers on Fri Sep 17, 2010 05:48 PM
Hi there,I am 38 year old female with stage 4 lung cancer (adenocarcinoma).I am devestated by this I have 6 year old twins and never been ill in my life until now.
I am on last chemo session (4th) and tumor not shrunk but has not progressed either. Dr. wants me to go on Tarceva after 4th chemo treatment.I have heard alot of good about it.I have been so depressed lately as been having lots of lung cancer side effects,does anyone have any positive stories about a similar situation to mine?
I need to stay strong and have years to come with my young family and would appreciate any advice or stories my way. Hope to chat to you soon
ps I live in the UK
by tabbycat66 on Fri Sep 17, 2010 07:14 PM
Hi Sharon, Im so sorry for what you are going through, for each and every person i write to, i tell them that- because i sincerely am. You stated you have stage 4 cancer. Is it primary lung cancer and if so where has it mets-spread to? On this site you will most likely find answers to your questions and people with experiences similar to yours.
I dont have experience with that particular drug but i just wanted to say to try and stay as healthy as you can, with diet, supplements etc. And wondering if you have researched any natural/holistic treatments as well. I do believe in alot of that stuff working- with no side effects- along with whatever treatment your doctor is recommending.
Stay strong , one day at a time. Ill be thinking of you, my children just lost their father- my husband- on July 1st. He was 41 . My boys are 9 and 12. So although i dont know exactly what you are going through, i know enough... Im always here to listen or give advice. Please keep in touch!
by cokers on Fri Sep 17, 2010 07:27 PM
Hi Tracey,firstly so sorry to hear you lost your husband/partner so recently. My goodness how are you and your little ones coping??? It is so hard when there are young children involved - I can't even imagine what you are going through.I am so sorry.
This is when I find it hard to cope,my little ones are my world. The diagnosis 3 months ago has just knocked us all off our feet,my children only know that mummy is unwell and has to have medicine that makes her feel sick. Thats all I can tell them at the moment.
My cancer is stage 4,with lymph node and bone mets in a small area only.I had no symptoms just tiredness for a while and some chest/shoulder pain as a one off and thats it!!! nothing,and then to be told that! Oh,and its primary lung cancer.
I havn't yet looked at diet,I have been told that diet isn't particularly important,what do you think?
Where are you from???
You take care,hope to keep in touch xxx
by sshif9 on Fri Sep 17, 2010 09:21 PM
PLEASE check out www.eden-valley.org .. if they are to far from you seek out your local seventh-day adventist church and they should be able to direct you to one closer to you..All Natural treatment is your answer..please research it.. you are so young...You can beat and reverse cancer by changing your diet. My Dad is stage 4 colon cancer and with changing his diet and the grace of God..he's still in the battle...He's doing good and we have more hope than we ever did with the dr's... Let me know what you think after you check out the information or if I can help you in anyway. No I am not a seventh-day adventist...however I have discovered through them that God tells us what foods we should eat right in the Bible, in the book of Leviticus!!!! Read it you will be amazed!!!!!!
by pepper2010 on Sat Sep 18, 2010 01:40 AM
I am sorry for you and your family for your diagnosis.
I wish you the best treatment and healing. I wish you relief from anxiety.
My mom died in June from Lung Cancer NSCL, and my brother has been stoically battling the disease for two years. I am so proud of him and his strength and grace, but that is another story.
Some of the things I have learned and want to share is that there is not an all or nothing approach. Combining your medical treatment(s) with a healthy, conscious diet and lifestyle will do wonders. Definitely get a second and third opinion and investigate new treatment options available....different treatments work for different people...make sure you believe in your doctor...you will have the best response if your have faith and trust is those treating you.
Let others help you. Its ok.
Do the things that matter the most to you and your family...tell them you love them, hug them and let them hug you and hold your hand.
Peace, love and hope to you.
by NSCLC2009 on Sat Sep 18, 2010 03:30 PM
I was diagnosed April’s Fool Day 2009 with Staged IV NSCLC. I went through 6 cycles of chemo (including Avastin). The chemo reduced the tumors substantially until slight progression was noted along with some bone met in November 2009. I started Tarceva since then and the bone met was gone and my situation is rendered stable. Tarceva works best for those who are tested EGFR positive; mine has a 70% match which is considered high. I have been reacting well to Tarceva. The side effects (e.g., skin rash mostly on my back and occasional stomach upset) are much more tolerable than the chemo cocktails. Quality of life has been good and I have been functioning normally maintaining a challenging full time job. My prognosis on that fateful April’s Fool Day was 3-6 months without treatment and up to a year with treatment. So I am on bonus time and living each day to its fullest while maintaining a positive attitude. I am going to take advantage of this extra time Tarceva has given me, one day at a time and no matter how long it will be. Keep your chin up and I am sure you will be successful in fighting this Big C demon.
by NSCLC2009 on Sat Sep 18, 2010 03:43 PM
I was diagnosed April’s Fool Day 2009 with Staged IV NSCLC. I went through 6 cycles of chemo (including Avastin). The chemo reduced the tumors substantially until slight progression was noted along with some bone met in November 2009. I started Tarceva since then and the bone met was gone and my situation is rendered stable. Tarceva works best for those who are tested EGFR positive; mine has a 70% match which is considered high. I have been reacting well to Tarceva. The side effects (e.g., skin rash mostly on my back and occasional stomach upset) are much more tolerable than the chemo cocktails. Quality of life has been good and I have been functioning normally maintaining a challenging full time job. My prognosis on that fateful April’s Fool Day was 3-6 months without treatment and up to a year with treatment. According to that prediction, I am on bonus time but living each day to its fullest while maintaining a very positive attitude. I am going to take advantage of this extra time Tarceva has given me, one day at a time and no matter how long it will be. Keep your chin up and I am sure you will be successful in fighting this Big C demon.
by Canuckgirl on Thu Sep 23, 2010 10:52 PM
Hi there - (hugs)
Tarceva was a godsend to my brother in law who was dxd with Stage IV lung cancer as well, 14 months ago. It knocked down the tumor markers, improved his cough, improved his quality of life. Did give him a skin rash and some mouth ulcers as it works with disrupting how a protein binds to some cells (I think).
It worked for several months for him, and we are grateful. It does work longer for some people. We were not so lucky, but happy that it did what it did, when it did.
by mandivan on Tue Sep 28, 2010 11:31 PM
My prayers are with you and your family. My mom was diagnosed in 2007 with NCSLC. She had surgery which was supposed to have gotten all of her tumor. Two years later, in April, 2009 she had a "irritating cough" which was found to be another large tumor in her lung. She was also diagnosed with bone mets in rib and pelvis and several lymph nodes. Because of her age (82 at the time of 2nd diagnosis), her doctor prescribed Tarceva along with bone infusions monthly. She has been on 100mg tarceva since April, 2009 and has not slowed down at all! Her large tumor has begun to "die" from the inside out. Her bone mets have not progressed at all. She, recently, started to lose weight and have pain in her side. Just today a biopsy revealed a very small tissue mass that is malignant, but will be treated with radiation starting Monday. Her doctor is sure this small mass will be taken care of with the radiation. Tarceva has been a Godsend for my mom. Her only side effects were a rash (little whiteheads on her face) for a couple of weeks, treated successfully with clindamycin and occassionally diarrhea. One thing that I truly believe has kept my mom strong is the fact that she does not give in to the cancer. She has lived her life since Tarceva with very little change in her routine! God Bless you and your family! Stay positive - I believe attitude is such a big percentage on beating this!
by cokers on Sat Oct 02, 2010 08:53 PM
Thankyou Amanda,so glad your mum is doing well.
Hope it is as successful for me.
Like your Mum I will not allow the big C to take over my life,my children need me and I need them.
You stay positive for your Mum too
Lovely message thankyou
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