One patient with glioblastoma still alive nine years later
by jbicetime on Sat Oct 09, 2010 05:54 AM
My neighbor is Stage III and has gone through initial chemo with some reduction... followed by an increased ca125, then 7 rounds of Doxil (yes, she's a champ!). After a few months off from Doxil she finally started feeling some energy and looked better. We were surprised when her last few ca125's were 40, then two weeks later 60, and a week later 47. Her doctor wants to start her on a clinical trial of XL 184, a pill. I told her I'd look it up online, but on this forum (to which I'm new) I only see it mentioned in the Brain Cancer category. Has anyone on here used it in conjunction with ovarian or know of anyone who has? I'd appreciate any input. Thanks in advance!
Julie in Colorado
by Hedda_Langley on Wed Oct 27, 2010 08:39 AM
I have heard of 714-X therapy covered in depth in the book
Healing Cancer by Simon & Enrida Kelly its a non toxic treatment.
I have not heard of xl 184 I am interested let me know how it goes. I am a 7yr survivor ovarian cancer with 2 recurrences.
by jbicetime on Thu Oct 28, 2010 06:18 AM
Thanks, Hedda. I'll let you know. So far, so good. The clinical study people even called her unexpectedly to let her know that they have had great success with both prostate and ovarian cancers. She takes it daily along with an anti-nausea an hour before. I'm not sure if she has to take the anti-nausea pill for the full duration or only at the beginning. She hasn't experienced any real side effects yet (nothing like her first two rounds of chemo). We're cautiously optimistic. As she always says (even during her worst days), "It's a great life if you don't weaken!" :) Sometimes I think her positive attitude has been a huge assistance.
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