Hereditary

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Maeburr Message: Hereditary Caregiver Maeburr Recommend this Message Report Abuse Email a Friend Track this Message [Remove] Subject: Hereditary Date: 04/28/2006 Does anyone know is Linitis Plastica is hereditary? Private Reply Quote Reply to This Message Justme Message: Hereditary Patient Justme Recommend this Message Report Abuse Email a Friend Track this Message [Remove] Subject: Hereditary Date: 05/15/2006 YES! My sister and I both currently have linitis plastica. I am 39 and she is 46. I am being treated by Dr.s at Stanford in California. They are familiar with this cancer and highly aware of the genetic potentil/aspects. I urge you to seek out a genetic oncologist especially if you have siblings or children. The gene which can cause this is called CDH1. I have an article on this if you have a fax # I can send it to. I would love to communicate more with you but don't have time right now. Hang in there!!!!! Private Reply Quote Reply to This Message Maeburr Message: hi Caregiver Maeburr Recommend this Message Report Abuse Email a Friend Track this Message [Remove] Subject: hi Date: 05/16/2006 Yes, Please fax me the article to --- Message edited by CancerCompass staff: for personal protection, phone number removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----. Attn: Debbie. My sons father has it and he is only 45 also. I have tried to research this type of cancer and there is not much known. Thanks for your help. You & your sister will be in my prayers Private Reply Quote Reply to This Message Justme Message: Hereditary Patient Justme Recommend this Message Report Abuse Email a Friend Track this Message [Remove] Subject: Hereditary Date: 05/16/2006 They removed your fax number, sorry my mistake. I will look to see where the article came from and give you that info. My GI Dr. is the one who gave me a copy originally. He had never seen anyone with this type of cancer and when I developed this type of cancer while caring for my sister who was very sick with it he immediately investigated the genetic aspects. I pray your sons father seeks treatment from someone who is familiar with this cancer. This is an agressive cancer. Agressive treatment is a good thing and being your own advocate is also important. My sister was not pushy in getting treatment in our town and even a university hospital in Sacramento California was not agressive in treatment with her and her road has been extremly difficult to travel. The article was written by a Dr. Vanessa Blair MD From the New Zeland HDGC Group and University of Auckland. The article is called Identifying and treating Individuals at high risk for stomach cancer. Private Reply Quote Reply to This Message Maeburr Message: hi Caregiver Maeburr Recommend this Message Report Abuse Email a Friend Track this Message [Remove] Subject: hi Date: 05/19/2006 I am trying to find the article online. I am new to these boards. Not sure if we can give emails but I will try. --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---- If this goes through, email me and I will give you my fax number or address. I pray you and your sister are doing well. Private Reply Quote Reply to This Message
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