My husband, age 64, had glioblastoma in left parietal lobe operated on Dec 19 and removed; had follow up radiation with Temador. Five days after had a blood vessel bleed. Spent six weeks in rehab and is now home; memory is terrible short term and appears to be getting worse; his speech and fight for words is so sad to see. He is having physical therapy (he lost walking ability with the bleed) and speech therapy starts tomorrow. He had speech therapy after surgery and his cognitive skills were coming back. We feel that he never had the time to recover after the radiation before the bleed happened. The MRI shows the bleed is being absorbed and we don't know yet what is permanent and what isn't. He starts the 5 day (300) mg Temador tomorrow. Then waits two weeks and does it again. He tolerated it very well the first time.
There is a feeling that the radiation weakened the blood vessel..of course the whole area is weak. We did have second opinions at Dana Farber in Boston and Brigham and Women's in Boston.
It is so horrible to see him this way; sometimes we make it to 10 am before crying separately and together. He's fighting so hard and I fear he is losing the battle without the tumor even coming back.
Long days ahead for all of us who read this message board.