Small trial suggests the scans might help, but experts aren't so sure
by airotciv25 on Thu Oct 28, 2010 03:57 AM
My girlfriend recently found of she has melanoma. She is a hair stylist and they don't offer health insurance. Ironically she was just about to sign up for a self insurance plan but now its too late....
She has applied for financial assistance but yesterday she got a call that she was denied for any type of help because "she makes too much money". What I don't understand is that after all my research is that financial assistance is only out there if you are dirt poor, or you jump through a million hoops before anything can happen.
She and I are both young. We are in our twenties. Both just young professionals trying to make it. Does anyone know where to go to find help for the middle of the road people like myself and my friend.
This is been such an exhausting experience. The doctors say you need to get the wide excision surgery done ASAP but then the financial people are on the other end saying.. wait wait wait.. you need to be able to pay for this before you move forward. Well She doesn't have insurance, she can't pay a lump sum of money upfront, she has been denied for any financial assistance, and I feel helpless.
There has to be something out there...
Thanks for reading.... :)
by bikergirl on Mon Nov 01, 2010 01:29 AM
Look up Larrysteps on bing or on this site. They help people that have melanoma but little or no insurance, they should be able to help with some of the costs. The people that run it had there brother die of melanoma and had trouble with insurance companies not wanting to give him the care he needed and DESERVED,sad story. My prayers are with you and your girlfriend.
by CalJordan on Tue Nov 23, 2010 08:15 PM
Look for programs in your area for low income people, or have her move to a place that does have those types of programs. For example, here in San Jose, CA they only charge me copays of like $10 to see the doctor, even though I don't have insurance, because I'm low income. The big problem though is that you get put on a waiting list for referrals. I was at the doctor a week ago because I was worried about a mole that's changing, and I have to wait a month to see a dermatologist and get it biopsied. I don't know how it would work with somoene with cancer, but it's better than nothing. I am low income but I was surprised that they've never asked me to prove my income or residence or anything. So if it comes down to not having treatment at all, I wouldn't do that and I would move somewhere like here if you don't have programs in your area like that. If she can't afford the move, worse comes to worse, she could stay in one of the many homeless shelters here. I hate to suggest it but I'd do it if I had no other resources to get treatment or money.
by CalJordan on Tue Nov 23, 2010 08:17 PM
P.S. the place they have here that I go to is called Valley Health Center, and it's part of the network of hospitals here.
by Bombeni on Tue Dec 21, 2010 03:13 PM
You should see if there is a Good Samaritans program in your area. They treat anyone and they have doctors surgeons radiologists etc. from the local area who volunteer for no cost. It is a Christian organization and they are truly angels. They provide meds too. I am lucky to have insurance but I have friends who have used the GS, one who goes every month to get her diabetes med and other meds and a check up and it does not cost her a dime. Good luck.
by rachellebc on Wed Dec 22, 2010 03:54 PM
I don't know what part of the country you are in but MD Anderson Cancer Center in houston, texas will take her without insurance their toll free number is 1-800-392-1611 you can also do a self ref. on their website at www.mdanderson.org
great place! I have also heard that The Cancer Center of America will take people with out insurance also...best wishes please let me know how it goes for your girl friend
by laniebug6 on Thu Jan 13, 2011 07:42 AM
i too was uninsured. It was such a stress. Have your friend check out the federal high risk pool. Just google it and go from there. I think it varies state by state (for now) but it is the best thing I could find for my situation.
by AllanandDebra on Thu Jan 13, 2011 07:54 AM
Please understand that at all costs you must avoid letting it metasticise by waiting. The other posts are correct there are places (MD Anderson for one) that will help you without insurance. Cost of living is cheap in TX and there are many jobs available in certain industries (even if they are not great jobs you may be able to work there while she is treated). Once it gets into her lymphatic system it can travel anywhere in her body and does so quickly (my wife is stage 4 reproductive cancer that spread fast). Get treatment NOW figure out how to pay as you go along..if you have engineering experience or mechanical experience Haliburton based in TX is hiring and the refinieries are looking for numerous welders all of which pay $40-70K plus.
I know what I am saying sounds a bit extreme, but DO not let it metasticise at any and all costs. If you must do out of the ordinary things to make this happen then take action as best you can and do it now. God be with you both.
by sunadvocate on Wed Jun 01, 2011 06:12 AM
When my friend found out that she had a mole which was oozing blood, she went right away to her original Dermatologist. He took a biopsy and later on diagnosed her as having Malignant Melanoma.
But here is the thing, he wanted her to check into the hospital so they could cut her skin wide open. That would have been real costly. So she found another Dermatologist who was an expert in Mohs Skin Cancer Surgery ( read more about it here www.sun-protection-and-you.com /mohs-skin-cancer-surgery.html ).
That turned out the way to go with, and much less expensive. I urge anyone facing this, to consult about MOHS Surgery first before having a wide cut into your body.
She told me, this way if the mole re-appears it will be easily spotted.
Wishing you all the best .
by ssoutherland on Sun Jun 12, 2011 02:02 AM
Where do to two of you live? I live in Florida and I was diagnosed with melanoma-also with no insurance. The counties here have some help. It sucks that people who are not bums and are trying get no help. I am 54 years old and had just became unemployed-the plant closed! when I was diagnosed.I am on disability but since I have worked all my life I get too much(haha) money to get medicaid.So I had surgery but could not get follow up treatment. It is SO unfair!!! If we were in jail or prison we could get all the treatment we needed. Try the American Cancer Society and your local health department. Good Luck
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
We care about your feedback. Let us know how we can improve your CancerCompass experience.