But it's too early to make blanket recommendation, expert says
by Trulite on Sun Nov 07, 2010 08:00 PM
Hi, I am new here and my husband just finished radiation therapy on the 27th of Oct. He had 25 treatments of IMPT for Adeniod Cyctic Carcinoma of the sublingual salivary gland. In July his ENT removed salivary gland. July 23rd. told it was a very rare cancer. The floor of his mouth, on the right side, was removed and he had 3 lymph nodes removed on the right side of hi neck on the 9th of Aug. He had a reconstructive flap attached to his tongue from his chin. All very good! Tissue removed during surgery showed no cancer. Good healing and began radiation in sept. He did very well thru radiation but lost about 22 lbs. (Horrible taste in his mouth).
Now over a week later, after last treatment, he was expecting to start feeling better and is not. Is this normal?He is exhausted and still really sore under his tongue and he feels "cloudy". He is eating soft foods and soup and shakes but still losing weight. We see the radiologist on the 19th of Nov. but I just wanted to see if you could clue me in so I could allieviate some of his fear.
by musicalmike on Wed Nov 10, 2010 05:52 AM
Wow....what an incredible journey you two have been through. My wife and I just finished a similar issue. I had 35 radiation treatments and 10 chemotherapy. My last treatment was August 16. I had all lymph nodes and a large mass in my gland removed from my neck due to cancer in my tonsil. So I know what you guys are going through. The good news is they removed the cancer. The bad news is, it is a long road to recovery. I lost over 30lbs. I have only regained 10% of my taste buds and that is the salty side. I have yet to taste sweet. It is still difficult to swallow anything. It is a very slow process and I have also been struggling with how long it has taken. The buckets of saliva I was producing daily for two months have subsided but felt never ending. I am 45 years old and consider myself in pretty decent shape. Before my treatment I was an avid SCUBA diver, snowboarder and into golf and fishing. I have lost all of my energy to do any of it. I really miss my life the way it was and I'm sure you do to....both of you. Things ARE slowly getting better and will take time. Be patient. Yes it is normal.
by yvette6321 on Wed Nov 10, 2010 06:27 AM
Good for you! I have had no radiation..chemo. I am on number 6 and can still taste and eat----god willing. bless all of you and keep well!
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