One patient with glioblastoma still alive nine years later
by dawny on Wed Nov 10, 2010 01:15 PM
For the last 4 motnhs my husband has been in coniderable pain inhis stomach and bowel area as well as his back, he is on oxynorm and gabapentin for the pain. He is very loose and feels sick all the time. he has lost 2 stone in weight as he is frightened of the pain he gets in both areas after eating. He descibes his pain as a burning, aching sucking, crushing kind of feeling. He looks very pale. I am scared as he is only 40 yr old and I have two children 8 and 3....macmillan nurse told me that with recurrent pancreatic cancer he is only has 12 months ....well we are at 14 months so far. He seems to be going down hill. Can somone tell me if this pain is what happens when your starting the slow path to death....need to know. thanks
by helgoland on Wed Nov 10, 2010 02:16 PM
Dawny, I am so sorry to hear about your husband's health. It is a painful time for the entire family. You mentioned a 'slow path to death.' I wanted to let you know that this is not always the case. It can be very quick and painless; as it was for my dear Mother. Her passing was so unexpected since during the early afternoon she was visiting with family. In the late afternoon/early evening she began to throw-up small quanties of liquid but she had no pain (I specifically asked her this question). When I left the room to prepare her bed for the night; she left our world... I was shocked , devastated and heartbroken ; but I know for her she was 'spared' what could have been much worse. The final days are difficult to generalize since it is different for everyone. Being a loving caregiver is very difficult; both emotionally and physically: however, it is the last loving gesture we can provide for our dear loved ones. No one knows when someone will pass away; but we can try to do what we can to let the person die in peace knowing how much they are loved and will always be remembered. Peace to all of you.
by goodlife on Wed Nov 10, 2010 06:59 PM
Have they checked to make sure he doesn't have any blockages that could be causing this pain?
by charlottez on Fri Nov 19, 2010 03:39 AM
My dad has had a stent and I know of people who have had a stent put in to relieve a blockage and then after a few months it blocks back up and needs more surgery. This surgery would only be considered mind if he was fit enough. My dad underwent two procedures in 5 days, he had a plastic stent put in the pancreas and a metal one finally put in his liver. It has bought him 4 weeks at the moment, and hopefully will be more BUT he is really unwell again and has started to be sick. Now we are wondering if the stent is blocked and if it is what should we do? I mean, it is unfair for him to go through another procedure as he took a week to get over the others and now he is weaker....i have read that other people have said there has been a fluid build up and that can cause extra pain. My dad was coping ok and this week has taken a turn for the worse- it seems that at the moment he is having to have his dose of morphine patches upped every two weeks or so. He has a new pain in his stomach and is worried that it has now spread to his stomach. PC is the most aggressive cancer you can have and everybody is different so it is difficult to say.
I have found this forum amazing and have been able to answer so many of my questions through reading other peoples stories. I have found comfort and have been amazed at some of the stories that are so personal yet have helped people like me to move forward. Thanks to everybodies support and sharing it helps so many people x
by Mike_in_Co on Tue Nov 23, 2010 01:25 AM
As mentioned, be sure to check into possible blockages. If there simply is nothing that can be medically done to *relieve* the issue(s), seek out hospice for pallative assitance. They can help alleviate the pain and improve the quality of life for your husbands final days. It is so very hard to face, but they can be so very helpful for your husband as well as emotional support for you.
by attyh on Wed Jan 05, 2011 09:28 PM
My Dad also has pancreas cancer and has a metal stent in but at the moment his meds keep upping. He is so weak and isn't eating. His stomach is swelling up he cannot get comfy either. I just don't no what else to expect.
by squand on Wed Jan 05, 2011 09:41 PM
God Bless you caretakers - we do appreciate you
by KaylainTx on Tue Jan 11, 2011 02:00 AM
My dad has stage iv pc and he's in considerable pain as well. That was his first symptom last march. He didn't get a diagnosis until August when he had been dealing with the pain for 6 months.
Dad's chemo has helped his pain. I guess it has shrunk the tumors a little. His CA19-9 was over 1600 and is down to 105 now.
Dad was on gabapentin for the pain as well. He no longer requires pain meds. He always said it didn't help the pain though, when he needed it to.
PC is a horrible disease! Many prayers are with you, your husband and children. Is your hubby taking treatments?
by eclecticgirl on Wed Jan 19, 2011 12:58 AM
My husband got diagnosed with inoperable pancreatic cancer 2 weeks ago. He is only 52 and has never been sick. He has had 2 stents placed in his common bile duct and now has 2 spots on his liver too. He has lost 15 lbs in the last month before we found out. He has abdominal pain, back pain and extreme feelings of fullness after eating. I think it is more advanced since reading these message boards and the symptoms people are having. We were told he only has a matter of months. I feel like the rug has been pulled out from under us, mentally, physically, financially. I feel so helpless and don't know what to do. does anyone know if these symptoms mean it is more advanced?? Thanks in advance and everyone on these boards has my prayers.
.............**************************************************** and has had 2 stents placed in his common bile duct (before we found out). He has abdominal pain, back pain and feelings of extreme fullness after eating. He has dropped 15 lbs in a month. He has never been sick ever and suddenly this. I feel I've been kicked in the solar plexus. At first they said a whipple surgery then said his portal vein is involved and 2 spots on his liver so th
by Jillian_Jarzombek on Wed Jan 19, 2011 04:01 AM
My mom was 48 years old and a health freak, but for some reason God gave her this painful, horrific disease.
Please my advice as a critical care nurse and watching my own beautiful mother die at the ripe age of 49 years old (6 months after being diagnosed) get him some great pain medication and sedation. Please.... If anything I suggest taking him to a hospital when the end comes near. I did as a very educated critical care nurse used hospice care and it did not bring a peaceful death at all.
I am so sorry to be so blunt. I am just honest with you and know how that rug has been taken away from you and your family.
Please make sure he is comfortable in his last days of life. Good ass IV drugs are the way to go...
I am sorry.....
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
If you were considering traveling for cancer treatment, which headline would you find more interesting?
Destination: HOPE. Cancer care that is worth the trip.
Over 84% of our patients travel to our hospital from another state
Neither headline is interesting
We care about your feedback. Let us know how we can improve your CancerCompass experience.